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- Path: sparky!uunet!paladin.american.edu!auvm!UKANVM.BITNET!GOLEM
- Message-ID: <AUTISM%93012214490156@SJUVM.STJOHNS.EDU>
- Newsgroups: bit.listserv.autism
- Date: Fri, 22 Jan 1993 13:10:58 CST
- Sender: SJU Autism and Developmental Disablities List
- <AUTISM@SJUVM.BITNET>
- From: Jim Sinclair <GOLEM@UKANVM.BITNET>
- Subject: Re: A Little Help From My Friends
- In-Reply-To: Message of Tue, 19 Jan 1993 15:36:47 EST from <D6M@CORNELLA>
- Lines: 64
-
- On Tue, 19 Jan 1993 15:36:47 EST Daniel Mont said:
- >However, the video kept stressing the "loneliness" and social
- >isolation of being a high functioning autistic adult.
- >
- >I know that Jim S. has written that non-autistics have a tendency
- >to project their own desires and needs on to autistics ( often
- >mistakenly, he says). However, I am still torn on this issue.
-
- Well, I never said that NO autistics ever experience loneliness or distress
- over social isolation, only that *I* don't. Most high-functioning autistic
- people I know, as well as quite a few low-functioning ones, are considerably
- more socially motivated than I am. I think if an autistic person *is*
- interested in social contact, it should certainly be made available. My
- concern is that it not be forced because *other* people decide it's what
- the autistic person wants or needs. In your example of Alex's response to
- the birthday party, the activity involved both something Alex ordinarily
- doesn't request and is indifferent to when it happens (getting together
- with other kids), and something he does enjoy and seek opportunities for
- (bowling). The party may have appealed to him for the very reasons you
- mentioned: It was a way to get together with kids from school in the
- context of a familiar structured activity that he knows how to handle.
- Or it could be that he was completely indifferent to the company, and
- only excited about the chance to experience a familiar activity in a
- slightly novel way. Or the reason(s) for his excitement may have been
- somewhere in between, or something completely different (e.g., maybe he
- just wanted to see what the bowling alley looks like at a different time
- of day). Another point to remember is that a person may very much enjoy
- an experience if it happens to come along, but that doesn't mean he goes
- through life being miserable and pining for the experience when it's not
- available.
-
- >I think he would
- >have been hurt if he was not invited. I guess I am saying that it is hard
- >for me to determine what degree of contact Alex would like with other
- >kids.
-
- It seems to me that you're doing a good job of picking up on Alex's cues
- and letting him decide. Since he enjoyed the party, you might try asking
- him if he'd like to invite one or two of his classmates to go bowling
- some afternoon. If he seems open to this, see if he has any preference for
- which kid(s) to ask, or if he wants you to pick them for him. If he's not
- interested, don't push it. Who are the other kids in his bowling league?
- Does he see them in any other context?
-
- Why do you think he would have been hurt if he hadn't been invited? Is he
- aware of things like parties, and of whether or not he's invited? I wasn't
- at his age. Somehow my mother always knew that classmates were having
- birthday parties and that I had been invited to them, but if she hadn't
- told me, "You're going to Nancy's birthday party this Sunday," I never
- would have known about it. I certainly wouldn't have picked up on it from
- the other kids at school! As an adult, I usually find being invited to
- parties a mildly unpleasant experience. It requires me to risk offending
- someone who I know is trying to be nice to me, by declining the invitation.
- Then they think maybe I just have other plans that time, so they invite me to
- another party some other time, and I decline that invitation too, and soon
- they think I don't like them. The nicest invitation I ever received was
- stated in the form of, "There's going to be a party this Saturday night
- and I want you to know you're welcome to come if you want to, but I don't
- know if it would be too much for you." The person extending the invitation
- let me know that she enjoyed my company enough to want me at the party,
- but that she understood why I probably wouldn't want to go, and she wouldn't
- be upset when I didn't come.
-
- JS
-