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- Newsgroups: alt.med.cfs
- Date: Tue, 26 Jan 1993 17:04:06 -0500
- Sender: Chronic Fatigue Syndrome discussion CFIDS/ME
- <CFS-L@NIHLIST.BITNET>
- From: RICHARDSON@WVURTC.WVNET.EDU
- Subject: Re: COLDS?
- Lines: 37
-
- Replying to Kate's question about those of us who are feeling better....
- I didn't write the message you're responding to, but I'll tell you about
- my experiences with CFS. I became ill in the fall of 1990. I was intensely
- ill (weak, foggy-minded, etc) for the first year. I noticed a slight
- improvement in the summer of '91, but the winter of '91 was terrible. By the
- spring of '92, I had improved enough to begin some exercise. I started
- walking, gradually increasing the length of my walks, about every other
- evening. If I walked too far, I crashed the next day, so I had to be
- careful.
-
- Looking back at this point over the past two years, I see slow, steady
- improvement that began after the first six months. My strength tended to
- dip through the winter months. I was stronger in the winter of '91 than
- in the winter of '90. (Sensitivity to heat and light seems to be a factor
- with this disease; I can feel myself growing stronger in the sunny months,
- but other CFS sufferers I've met say they are worse when it's hot. The
- heat doesn't bother me but the lack of light seems to.)
-
- My friends and family have noticed a change in me too. I called a friend
- recently and she said, "You sound better than you did three months ago."
- My voice was more animated, she said. My wife to be, a former CFS sufferer
- herself, says that she's noticed that I'm stronger now than when she met
- me last summer. (How's that for inspiration--I know a FORMER CFS sufferer.)
- My improvement is so slow that I hardly notice it. And of course, there
- are set backs from time to time when I still crash into the bed.
-
- I work for a man who says he had CFS for 3 1/2 years. From my own rate of
- improvement, I think I'll be dealing with the disease for about the same
- amount of time, so I have about a year and a half to go. Of course, knock
- wood, this is unless nothing like a stressful event sets me back.
-
- The good news is that there is improvement. (Note the three examples I
- mention.) But the not so good news is that the improvement is usually at
- a slow rate.
-
- Preston Richardson
- Richardson@wvurtc.wvnet.edu
-