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Guide to NIH
HIV/AIDS Information Services with Selected Public
Health Service Activities
U.S. Department of Health and Human Services
Public Health Service
National Institutes of Health
NIH Publication No. 96-3731
September 1996
------------------------------
Guide to NIH HIV/AIDS information services : with selected Public
Health Service activities / prepared by the National Library of
Medicine. -- [Bethesda, Md.] : U.S. Dept. of Health and Human
Services, National Institutes of Health, [1996] -- (NIH
publication ; no. 96-3731)
"September 1996."
1. National Institutes of Health (U.S.) 2. United States. Public
Health Service 3. HIV Infections - United States - directories 4.
Acquired Immunodeficiency Syndrome - United States - directories
5. Information Systems - United States - directories 6.
Information Services - United States - directories I. National
Library of Medicine (U.S.) II. Series
02NLM: WD 308 G9453 1996
------------------------------
PREFACE
In this Guide, the National Library of Medicine draws together in
a single, easy-to-use source, a variety of data about the many
HIV/AIDS information-related activities of NIH along with
selected PHS offerings. It is hoped that the Guide will be a
useful tool for health professionals, caregivers, the affected
community, and others to learn about AIDS information resources
supported by public funds and available to them.
The Guide was first prepared for the NIH HIV/AIDS Information
Services Conference, co-sponsored by the National Library of
Medicine and the NIH Office of AIDS Research, in June 1993. Those
attending the conference, most from outside the Federal
Government, were enthusiastic about the Guide and recommended
that the Library keep it current and make it widely available.
This revised edition has been prepared for wide distribution. We
plan to keep it up-to-date and republish as necessary. Additional
copies may be requested by using the form on the last page.
Donald A. B. Lindberg, M.D.
Director, National Library of Medicine
------------------------------
Guide to NIH HIV/AIDS Information Services
The National Institutes of Health (NIH) supports research to
provide insight into the nature of HIV infection, the genetic and
biological properties of the virus, immunopathogenesis, the
natural history of HIV, consequences of HIV infection on the
body, risk factors, and various modes of transmission. NIH
supports a major effort to develop vaccines and to develop and
test new agents for the treatment of AIDS and HIV infection,
including opportunistic infections and HIV-associated
malignancies.
NIH sponsors many information services to assist professionals,
patients, and the public in the quest for knowledge about
HIV/AIDS. This brochure describes many of those services, some of
which are components of other HIV/AIDS-related projects, as
well as selected information services sponsored by other agencies
of the Public Health Service.
The symbols below identify the categories of HIV/AIDS
information services of each institute, office, or center.
R= Research CT= Clinical Trials
T= Treatment PE= Patient Education
P= Prevention PT= Professional Training
GI= General Information
The symbols below are used to identify the type or format
of each HIV/AIDS information service provided.
Tel= Telephone Pub= Publication
Db= Online Database, Ex= Exhibit, Educational
Electronic Bulletin Campaign, Training
Board, or Internet Program/Materials, or
Service Conference
Office of AIDS Research (OAR), R, CT, T, PT, P, GI
Pub Annual NIH Comprehensive Plan and Budget Estimate for
Scientific Opportunities in AIDS Research: In response to a
congressional mandate, OAR annually develops a detailed plan
for NIH AIDS-related research activities in seven areas: (1)
Natural History and Epidemiology, (2) Etiology and
Pathogenesis, (3) Therapeutics, (4) Vaccines, (5) Behavioral
Research, (6) Training and Infrastructure, (7) Information
Dissemination. The plan summarizes the status of
NIH-sponsored activities in these areas and presents the
goals and strategies for future efforts. This plan is also
linked to the annual budget estimate submitted directly to
the President for review and transmittal to Congress.
Pub NIH AIDS Research Program Evaluation Report: The first
comprehensive evaluation of the entire NIH AIDS research
program, conducted by more than 100 nongovernment experts.
The evaluation group, chaired by Dr. Arnold Levine of
Princeton University, assessed each of the components of the
NIH AIDS research endeavor to determine whether those
components are appropriately designed and coordinated to
provide the knowledge that will lead to more effective
prevention, better treatments, and eventually a cure for
AIDS.
Both of these documents are available in hardcopy, on
diskette, and on the NIH World Wide Web site
(http://www.nih.gov).
For more information about resources and services provided
by OAR, contact the NIH Office of AIDS Research, Building
31, Room 4C02, Bethesda, MD 20892.
National Library of Medicine (NLM), R, CT, T, P, GI
Db AIDSLINE(TM): This database contains over 100,000
bibliographic references to published literature about
HIV/AIDS and related issues, including prevention and
treatment. The database includes citations to journal
articles, books, audiovisual materials, and newsletter
articles. AIDSLINE(TM) also contains the abstracts from many
AIDS-related conferences.
Db AIDSTRIALS: This database contains information about
HIV-related clinical trials, both open (currently enrolling
patients) and closed. Information about NIH-sponsored
clinical trials is provided by the National Institute of
Allergy and Infectious Diseases (NIAID); information about
privately sponsored efficacy trials is provided by the Food
and Drug Administration (FDA).
Db AIDSDRUGS: This database contains information about the
agents being tested in trials included in AIDSTRIALS.
Db HSTAT (Health Services and Technology Assessment Text): This
fully searchable database provides access to the full text
of all of the Agency for Health Care Policy and Research
(AHCPR) guidelines, NIH Consensus Development Conference
Reports, and NIH Technology Assessment Conference Reports.
As part of the Public Health Service's HIV/AIDS Treatment
Information Service (ATIS), which is cosponsored by NIH, all
federally approved HIV/AIDS-related treatment guidelines and
recommendations are included. HSTAT is available through the
World Wide Web (http://www.nlm.nih.gov) or through Grateful
Med(TM).
Db DIRLINE: This database is an online directory of information
resources covering all areas of biomedicine. Included are
over 2,500 HIV/AIDS-specific resources such as
organizations, self-help groups, and information systems.
Access to NLM's databases: NLM's online databases are
available to health professionals, libraries, and others.
Users can access these databases through Grateful Med(TM), a
user-friendly software package available from the National
Technical Information Service at 1-(800) 423-9255. For more
information about NLM's databases, including AIDSLINE(TM),
and about obtaining access to them, call 1-(800) 638-8480.
For more information specifically on the AIDSTRIALS and
AIDSDRUGS databases, call (301) 496-3147. Information from
these two databases is also available through the toll-free
AIDS Clinical Trials Information Service, cosponsored by
NLM, at 1-(800) TRIALS-A (874-2572).
Db AIDS Internet Resource: The NLM Specialized Information
Services World Wide Web site (http://sis.nlm.nih.gov)
contains the text of various AIDS-related documents produced
by the Library, including reports and factsheets,
information about the Library's services, and access to
online databases (user code may be required). In addition,
this Web site provides organized access to selected
AIDS-related Internet resources from other government and
nongovernment sources.
Pub Clinical Alert: Clinical Alert is used by NIH in
Db urgent cases in which timely and broad dissemination of
results of clinical trials could prevent morbidity and
mortality. These clinical trials results are released
pending the formal release of the findings through
conventional journal publication. Once the decision to issue
a Clinical Alert is made by the director of the relevant NIH
institute, both traditional and electronic communication
channels are used to disseminate the Clinical Alert to
health professionals, the media, and the public. These
channels currently include press releases and press
conferences, online through NLM's MEDLARS(TM)computer
system, and through telefacsimile and mailings.
Open trials from the AIDSTRIALS database, the entire
AIDSDRUGS database, AIDS-related issues of Clinical Alert,
and other publications are available via FTP from the NLM
Publications Server. (FTP to ftp://nlmpubs.nlm.nih.gov and
login as nlmpubs.)
National Institute of Allergy and Infectious
Diseases (NIAID), R, CT, T, PE
NIAID provides major support and direction for the national cadre
of scientists conducting research to understand, treat, and
ultimately prevent the many infectious, immunologic, and allergic
diseases that afflict people worldwide. NIAID is also a cosponsor
of the HIV/AIDS Treatment Information Service and the AIDS
Clinical Trials Information Service.
Tel NIH clinical trials information phone line: NIAID's Division
of Intramural Research/Clinical Center operates a free
telephone service for individuals seeking information about
participating in clinical trials at NIH. Call 1-(800)
AIDS-NIH (243-7644).
Pub NIAID updates on basic and clinical research: NIAID's Office
of Communications distributes factsheets, press releases,
and other print materials about NIAID research results and
HIV/AIDS clinical trials. NIAID disseminates research
results relevant to clinical practice through press
releases, Notes to Physicians, and Clinical Alert.
Pub NIAID reports: NIAID's Office of Communications disseminates
materials describing NIAID's current research initiatives,
such as information about HIV vaccine development,
preclinical drug development, basic research, and
epidemiologic studies.
Pub NIAID pamphlets and factsheets: NIAID's Office of
Communications has developed a number of materials
addressing HIV-related clinical trials and treatment issues
for health care providers to use in counseling people with
HIV or AIDS.
Db NIAID World Wide Web site: The NIAID WWW site
(http://www.niaid.nih.gov) contains AIDS-related press
releases, publications, and grant and contract information.
For more information, or to receive a free list of available
materials, write to the National Institute of Allergy and
Infectious Diseases, Office of Communications, Building 31,
Room 7A-50, 31 Center Drive, MSC 2520, Bethesda, MD 20892.
Many of these materials are also available by calling the
AIDS Clinical Trials Information Service at 1-(800) TRIALS-A
(874-2574).
National Institute on Aging (NIA), R, GI
Pub AIDS and the Older Adult: NIA produces this document, one in
a series of "Age Pages," that provides general information
to the public on AIDS in the older population and lists
resources to contact for more information. For a free copy,
call 1-(800) 222-2225, or write the National Institute on
Aging, Building 31, Room 5C-27, 31 Center Drive, MSC 2292,
Bethesda, MD 20892-2292.
National Institute on Alcohol Abuse and
Alcoholism (NIAAA), T, P
Pub "Alcohol and AIDS": This issue of the National Institute on
Alcohol Abuse and Alcoholism (NIAAA) quarterly bulletin
Alcohol Alert provides information to health professionals
about the relationship between alcohol consumption and HIV
infection and AIDS. It focuses on the relationship of
alcohol consumption to unsafe sexual behavior and on the
treatment implications of alcohol's effect on the immune
system. Copies are available free from NIAAA, Willco
Building, Suite 409, 6000 Executive Boulevard, Bethesda, MD
20892-7003; (301) 443-3860.
Pub Alcohol Health & Research World: Two issues of this
peer-reviewed journal feature information about the
relationship between alcohol consumption and HIV infection
and AIDS: "Alcohol, Infectious Diseases, and Immunity"
($19.50, PB93160604) and "Prevention of Alcohol Related
Problems" ($19.50, PB94113503). These issues are available
from the National Technical Information Service (NTIS). Call
NTIS at (703) 487-4650 for more information.
National Cancer Institute (NCI), R, CT, T, PE
Tel Cancer Information Service: NCI provides a toll-free
telephone service for access to information specialists who
can provide information about therapies for AIDS-related
malignancies and answer questions from physicians, other
health care providers, service providers, and the public.
Call 1-(800) 4-CANCER (422-6237). Spanish-speaking
specialists are available.
Db Physician's Data Query (PDQ): In cooperation with the
National Library of Medicine (NLM), NCI provides an online
system for professionals and nonprofessionals containing
state-of-the-art treatment information about AIDS-related
malignancies and other cancers. A bibliographic database,
CANCERLIT, is also available. For more information, call
1-(800) 4-CANCER (422-6237) or NLM at 1-(800) 638-8480.
Db CancerFAX: Health professionals with access to a computer
with a fax modem can receive summaries directly from the PDQ
database (see above). Summaries are available in both
English and Spanish. The fax number is (301) 402-5874.
Db CancerNet: Information on the Internet is available for
patients, health professionals, and people doing basic
research. The World Wide Web address is
http://cancernet.nci.nih.gov.
National Institute of Child Health and Human
Development (NICHD), R, CT, T, P, GI
Pub Final Report: Secretary's Work Group on Pediatric HIV
Infection and Disease: NICHD produced this report containing
the findings and recommendations of a workgroup convened to
delineate the problems faced in confronting pediatric HIV
infection and to suggest strategies for their solution.
Other publications are being developed with information on
maternal and pediatric AIDS.
Pub The New Face of AIDS: Lists HIV/AIDS-related research
projects supported by NICHD. It includes project
descriptions and information on principal investigators and
Institute funding.
Pub Reports: NICHD's Office of Research Reporting disseminates
reports on various Institute-supported conferences and
workshops related to HIV infection and AIDS in women,
adolescents, and children. Some recent topics include AZT
prophylaxis in perinatal HIV transmission, the effects of
pregnancy on disease progression, and the natural history of
HIV infection in women and adolescents.
Pub Information on clinical research: NICHD issues press
releases and newsletters summarizing current research
advances in HIV/AIDS prevention, diagnosis, and treatment.
Reprints of research findings published by NICHD staff in
leading scientific journals also are available.
Pub Pediatric AIDS Rehabilitation Research: Report of a
Workshop: This publication addresses the need for
rehabilitation in HIV-infected children. The goals of
rehabilitation in this population include gaining optimal
function within the scope of medical, physical, and/or
mental limitations, and diminishing disability or handicap
by maximizing function and quality of life. The report grew
out of a workshop sponsored by NICHD's National Center for
Medical Rehabilitation Research.
Pub Public Health Service Reports: NICHD staff have been
instrumental in preparing several Public Health Service
documents, including the report of the Task Force on the Use
of Zidovudine to Reduce Perinatal Transmission of HIV and
the Morbidity and Mortality Weekly Report (MMWR) guidelines
for PCP prophylaxis in HIV-infected children.
For more information contact the National Institute of Child
Health and Human Development, Public Information and
Communications Branch, Building 31, Room 2A-32, 31 Center
Drive, MSC 2425, Bethesda, MD 20892-2425; (301) 496-5133.
National Institute for Dental Research (NIDR), R, PE, PT, P
Pub Oral Health Aspects of HIV Infection and AIDS: This
literature search on the oral health aspects of HIV
infection and AIDS from the National Oral Health Information
Clearinghouse is from the Oral Health subfile of the
Combined Health Information Database (CHID). Designed with a
strong patient education focus, CHID brings together
health-related materials that fall outside the scope of more
technical, research-based collections. The search focuses on
the availability of educational materials for both the
professional and the patient and includes topics such as the
oral manifestations of HIV, oral hygiene for the HIV
patient, oral health information for caregivers, adverse
oral effects of medical management of HIV infection, and
periodontal disease in the patient with HIV.
Single copies of the search are available free of charge
from the National Oral Health Information Clearinghouse, a
service of the National Institute of Dental Research (NIDR).
Contact the National Oral Health Information Clearinghouse,
One NOHIC Way, Bethesda, MD 20892-3500; (301) 402-7364.
Pub A Guide for Epidemiologic Studies of Oral Manifestations of
HIV Infections: NIDR, in collaboration with the World Health
Organization, has produced this document, which provides
practical information for the design,implementation, and
reporting of epidemiological studies.
Ex Training manuals: Two training manuals explain steps for
preventing HIV transmission in the dental setting: Building
the Capacity for an Oral Health Response to the Global HIV
Epidemic--Principles for Developing a Country-Specific
Approach, for all national dental coordinators of HIV/AIDS
activities, and Mobilizing Oral Health Personnel to Respond
to the Development of Country-Specific Plans, which will be
available in the near future, for local, regional, and
national oral health personnel.
For more information, write to NIDR, Building 31, Room
2C-35, Bethesda, MD 20892.
National Institute on Drug Abuse (NIDA), R, PE, P, GI
Ex National Media Campaign on Drug Abuse and AIDS: NIDA
conducts a campaign to make the general public aware that
alcohol or other drug abuse could lead to exposure to HIV.
Focusing on teenagers, young adults, and women, the campaign
includes television and radio public service announcements,
advertisements in newspapers and consumer magazines,
posters, and pamphlets. Innovative communication channels
such as movies are also used.
Pub Public Information: In addition to the campaign, NIDA has
produced two booklets for teens and young adults on drug
abuse-related HIV risk and exposure: How Getting High Can
Get You AIDS (teen brochure) and How Not to Get High, Get
Stupid, Get AIDS (guide to partying for young adults).
Pub Community Alerts: Two publications addressing drug abuse and
drug abuse-related HIV/AIDS issues are available. The first
concerns the reemergence of tuberculosis among
HIV/AIDS-infected injection drug users (IDUs). The second
alerts the drug abuse community to the limitations of bleach
disinfection of drug-use paraphernalia.
Ex Drug Abuse and HIV: Reaching Those at Risk: This new
videotape designed for use by drug abuse personnel provides
a firsthand look at research-based strategies for educating
IDUs in risk reduction and AIDS prevention.
Pub Publications: The following publications are currently
available: Outreach/Risk Reduction Strategies for Changing
HIV-Related Risk Behaviors; NIDA Research Monograph 143: The
Context of HIV Risk Among Drug Users and Their Sexual
Partners; and NIDA Research Monograph 93: AIDS and
Intravenous Drug Use.
For more information about NIDA's resources and services,
write to the National Institute on Drug Abuse, 5600 Fishers
Lane, Room 10A-39, Rockville, MD 20857.
National Eye Institute (NEI), CT, T, GI
Pub Studies of the Ocular Complications of AIDS: NEI
disseminated the results of the Foscarnet-Ganciclovir
Retinitis Trial by distributing a Clinical Alert, press
release, and media kit. NEI disseminated the results of the
Ganciclovir Implant Study for Cytomegalovirus Retinitis by
issuing a press release. NEI continues to conduct the CMV
Retinitis Retreatment Trial, the HPMPC Peripheral CMV
Retinitis Trial, and the Monoclonal Antibody Retinitis
Trial. General information is available on the ocular
complications of AIDS, basic research, and clinical trials
completed and underway. For more information, contact the
National Eye Institute, Office of Health Education and
Communication, Building 31, Room 6A32, 31 Center Drive, MSC
2510, Bethesda, MD 20892-2510; (301) 496-5248.
National Institute of General Medical
Sciences (NIGMS), R
Ex AIDS Targeted Drug-Design Project: Every June, NIGMS
sponsors a national meeting of groups active in targeted
drug design against AIDS. Abstracts are widely disseminated
to interested parties. For more information, contact the
National Institute of General Medical Sciences, Room 2AS-19,
45 Center Drive, MSC 6200, Bethesda, MD 20892-6200; (301)
594-0828.
National Heart, Lung, and Blood Institute (NHLBI), R
Pub AIDS Research Programs: NHLBI issues a yearly report on its
AIDS research programs. Copies of this report may be
obtained by writing to the National Heart, Lung, and Blood
Institute AIDS Program, 31 Center Drive, MSC 2490, Building
31, Room 4A11, Bethesda, MD 20892-2490; (301) 496-3245.
Pub NHLBI Repository: NHLBI issues a yearly catalog of the
clinical samples in their repository, which can be obtained
by individual investigators for their research. For
information contact Dr. Luiz Barbosa, Rockledge 2, Room
10146, Bethesda, MD 20892-7950; (301) 435-0073.
National Institute of Mental Health (NIMH), R, CT, T, P
Pub AIDS Research: An NIMH Blueprint for the Second Decade: The
NIMH Office on AIDS prepared this document to provide a
brief overview of NIMH's role in AIDS research, including
major initiatives in the areas of prevention and behavior
change, neurobehavior, and neuroscience. Each section
includes a discussion of issues, research opportunities, and
questions. Copies of the document are available from the
NIMH Mental Health Fax4U system by calling (301) 443-5158
and requesting document #933563.
Ex Conference on the Role of Families in Preventing and
Adapting to HIV/AIDS: The NIMH Office on AIDS sponsors this
annual conference for researchers to present findings on
family processes and HIV disease and to stimulate future
collaborative research. A program book is produced before
each conference. In 1996, this conference was designated an
official satellite conference of the XI International
Conference on AIDS in Vancouver, Canada. The next conference
is planned for July 23-25, 1997, in Washington, DC.
Pub Preparation of Research Grant Proposals for NIMH Support: As
an outcome of a NIMH Office on AIDS Technical Workshop,
Plenum Press has published How To Write a Successful
Research Grant Application: A Guide for Social and
Behavioral Scientists. This book provides technical
assistance for researchers applying for biobehavioral or
psychosocial research funding on all aspects of research,
from grantsmanship and completing the Public Health Service
398 application to understanding the review process. There
are separate chapters providing guidance on the development
of the research plan, which cover theory development,
hypothesis testing, preparing an intervention, and writing a
data analytic plan, as well as practical considerations in
presenting a budget. The document (ISBN 0-306-44965-X) may
be obtained from Plenum Press, 233 Spring Street, New York,
NY 10012-1578. Call (212) 620-8000 for further ordering
information.
Pub Workgroup Report: Assessment of AIDS-Related Cognitive
Changes: Recommendations of the NIMH Workshop on
Neuropsychological Assessment Approaches: This report
presents a brief and extended battery designed to evaluate
early cognitive changes associated with seropositive,
asymptomatic persons.
Pub "Special Issue: Serving People with Psychiatric Disability
at Risk for HIV/AIDS": Psychosocial Rehabilitation Journal,
Volume 17, Number 14, 1994: The NIMH Office on AIDS, in
collaboration with the International Association of
Psychosocial Rehabilitation Services, edited this special
issue that reviews the major seroprevalence and HIV
prevention issues of concern to persons with mental illness.
There are also several articles on incentives and barriers
to collaboration among researchers, service providers, and
persons living with AIDS.
Tel NIMH Office on AIDS research grant announcements are
available: by calling the NIMH Mental Health Fax4U system,
(301) 443-5158. To obtain the 6-digit code necessary to
retrieve specific documents, press 1 when prompted in order
to request the complete list of announcements and other
materials. These documents are also available on the NIMH
Home Page: http://www.nimh.nih.gov.
For further information concerning the National Institute of
Mental Health's Program on AIDS research, write to the
Information Resources and Inquiries Branch, National
Institute of Mental Health, 5600 Fishers Lane, Room 7C-02,
Rockville, MD 20857; (301) 443-4513 or e-mail:
nimhinfo@nih.gov.
National Center for Research Resources (NCRR), R, GI
Ex RCMI International AIDS Symposium: NCRR provides this forum
for Research Centers in Minority Institutions (RCMI) to
stimulate discussion and ideas that will lead to
collaborative research on AIDS. Proceedings are produced
after each symposium in the series.
Pub NCRR Office of Science and Health Reports: NCRR's Office of
Science and Health Reports produces several publications
describing recent NCRR accomplishments, resources, and
services, including: NCRR Highlights, an annual report; NCRR
Reporter, a bimonthly periodical; and resource directories.
AIDS research is one of many biomedical research topics
covered in these documents.
Ex AIDS Animal Models Program: NCRR's Office of Science and
Health Reports provides information about the AIDS Animal
Models Program and alerts qualified researchers to AIDS
animal models.
Ex National Traveling AIDS Exhibit and Education Program: NCRR
has funded a hands-on exhibit and associated educational
materials to improve public understanding of the
fundamentals of microbiology underlying the AIDS epidemic.
The target audiences are students in grades 6-12 and their
families and teachers. Additional small modules on
Understanding AIDS and a CD-ROM version are being prepared
for use by schools, public libraries, and other
institutions. For more information, contact New York Hall of
Science, 47-01 111th Street, Corona, NY 11368.
For more information about resources and services provided
by NCRR, contact the National Center for Research Resources,
Office of Science and Health Reports, One Rockledge Centre,
Room 5040, 6705 Rockledge Drive, MSC 7965, Bethesda, MD
20892-7965.
Fogarty International Center, R, CT, T, PT, P
Ex AIDS International Training and Research Program: The
Fogarty International Center sponsors training for foreign
scientists to increase their capacity to deal with the AIDS
epidemic through epidemiological research, clinical trials,
and other prevention projects, and to stimulate cooperation
and sharing of research knowledge. For more information,
write to the Fogarty International Center, National
Institutes of Health, Building 31, Room B2-C32, Bethesda, MD
20892.
National Institute of Neurological Disorders and
Stroke (NINDS), GI
Pub Neurological Manifestations of AIDS: NINDS produces this
fact sheet that provides general information to the public
on the neurological sequelae of AIDS and lists resources to
contact for more information. For a free copy, call (301)
496-5751 or write to the National Institute of Neurological
Disorders and Stroke, Building 31, Room 8A16, MSC 2540,
Bethesda, MD 20892-2540.
National Institute on Deafness and Other
Communication Disorders (NIDCD), R, GI
NIDCD supports and conducts research in the areas of hearing,
balance, smell, taste, voice, speech, and language. For
information about HIV/AIDS-related research at NIDCD, contact the
Policy Planning and Health Reports Branch, 31 Center Drive, MSC
2320, Bethesda, MD 20892-2320; (301) 496-7243.
Pub Bibliography: For people who are deaf or hard of hearing,
NIDCD prepares an annual bibliography of HIV/AIDS
information materials available to patients and health
professionals. To receive a copy, contact the NIDCD
Information Clearinghouse, 1 Communication Avenue, Bethesda,
MD 20892-3456; 1-(800) 241-1044 (voice), 1-(800) 241-105
(TTY).
Db NIDCD's home page (http://www.nih.gov/nidcd) on the World
Wide Web also provides information about the Institute and a
health information database that users can search online.
------------------------------
Selected Public Health Service HIV/AIDS Information
Activitites
Agency for Health Care Policy and
Research (AHCPR), R, T, PE
AHCPR supports activities designed to enhance the quality,
appropriateness, and effectiveness of health care services and to
improve access to that care through various programs, including
its Research on Health Care Outcomes and Quality and Research on
Health Care Systems Cost and Access programs. AHCPR is also a
cosponsor of the HIV/AIDS Treatment Information Service.
Ongoing and completed AHCPR-sponsored research projects related
to HIV/AIDS pertain to the cost of care and issues important to
women, children, and minority populations, among others.
Pub AHCPR reports: AHCPR has produced more than 20 reports
related to HIV/AIDS, including Pediatric AIDS-Related
Discharges in a Sample of U.S. Hospitals: Demographics,
Diagnoses, and Resource Use and Forecasts of the Costs of
Medical Care for Persons With HIV: 1992-1995.
To obtain copies of the above publications or the AHCPR
Publications Catalog, contact the AHCPR Publications
Clearinghouse, P.O. Box 8547, Silver Spring, MD 20907-8547;
1-(800) 358-9295. For more information write to the Agency
for Health Care Policy and Research, 2101 East Jefferson
Street, Suite 501, Rockville, MD 20852.
Further information on the Agency for Health Care Policy and
Research can also be found on its Web site:
http://www.ahcpr.gov.
Centers for Disease Control and Prevention (CDC), R, PE, PT, P,
GI
CDC assesses the status and characteristics of the AIDS epidemic
and the prevalence of HIV infection and supports, via financial
and technical assistance, the design, implementation, and
evaluation of HIV prevention and education activities.
Db CDC Division of HIV/AIDS Prevention, National Center for
HIV, STD, and TB Prevention: The Division of HIV/AIDS
Prevention, in collaboration with community, State,
national, and international partners, works to prevent HIV
infection and to reduce the incidence of HIV-related
illness and death. The DHAP Web site
(http://www.cdc.gov/nchstp/hiv_aids/dhap.htm) includes
information on statistics, funding, media campaigns,
publications, software, training, and links to related
sites.
Tel CDC National AIDS Clearinghouse: The CDC National AIDS
Db Clearinghouse is a comprehensive HIV/AIDS information
Pub service targeting health professionals, managers of HIV/AIDS
programs, educators, and information providers. The
Clearinghouse helps professionals access key
HIV/AIDS-related materials, access information through its
online databases, and share the latest HIV information
through CDC NAC ONLINE, an electronic bulletin board service
for AIDS-related organizations. The Clearinghouse also
operates the AIDS Clinical Trials Information Service and
the HIV/AIDS Treatment Information Service, which are
cosponsored by CDC. The Clearinghouse's services are
available Monday through Friday, 9 a.m. to 7 p.m. eastern
time, by calling 1-(800) 458-5231 (English and Spanish) or
1-(800) 243-7012 (TTY). Information from the Clearinghouse
can also be accessed through NAC FAX, a 24-hour,
fax-on-demand service at 1-(800) 458-5231, as well as a
variety of Internet services. The Clearinghouse has a World
Wide Web site (http://www.cdcnac.org); an FTP site
(ftp://ftp.cdcnac.org/pub/cdcnac); a gopher site
(gopher://gopher.cdcnac.org:72); and AIDSNEWS, a listserv of
HIV/AIDS-related news (listserv@cdcnac.aspensys.com).
Tel CDC National AIDS Hotline: The CDC National AIDS Hotline is
a toll-free HIV/AIDS-related information service that
provides personal and confidential information, referrals,
and educational materials to the public. The Hotline also
offers free group calls and classroom calls, which provide
an opportunity for groups to talk to trained information
specialists and ask questions about serious issues in a
relaxed environment. The Hotline operates 24 hours a day, 7
days a week. Call 1-(800) 342-AIDS (342-2437); 1-(800)
344-SIDA (334-7432) (Spanish); or 1-(800) 243-7889 (TTY).
Tel CDC National STD Hotline: The CDC National STD Hotline
(NSTDH) provides callers with current, disease-specific STD
prevention information and referrals via toll-free calling.
The hotline serves the general population throughout the
country. NSTDH operates Monday through Friday, 8 a.m. to 11
p.m. A 2-minute taped message is provided after business
hours and on weekends and holidays. The toll-free number is
1-(800) 227-8922.
Tel CDC automated telephone services: For current statistics on
HIV infection and AIDS, call the CDC HIV/AIDS Statistics
Information Line at (404) 332-4570. CDC's Voice Information
System also provides up-to-date information on a variety of
health-related topics, including HIV/AIDS; call (404)
332-4555. To receive free facsimile documents on a variety
of HIV/AIDS-related topics, call the CDC Fax Information
Service at (404) 332-4565.
Food and Drug Administration (FDA), CT, T, GI
FDA is responsible for assuring the safety and effectiveness of
drugs, biologics, vaccines, and medical devices used in the
diagnosis, treatment, and prevention of HIV infection, AIDS, and
AIDS- associated opportunistic infections. FDA also works with
the blood banking industry to help ensure the safety of the
Nation's blood supply. The agency is a cosponsor of the AIDS
Clinical Trials Information Service. For more information,
contact the FDA Office of AIDS and Special Health Issues (HF-12),
5600 Fishers Lane, Room 9-49, Rockville, MD 20857; (301)
443-0104.
Db FDA has opened a home page on the World Wide Web to replace
its electronic bulletin board. The address is
http://www.fda.gov. FDA's Office of AIDS nd Special Health
Issues has a home page on the World Wide Web at
http://www.fda.gov/oashi/home.html.
Health Resources and Services Administration (HRSA), R, CT, T,
PE, PT, GI
HRSA administers education and training programs for health care
providers and community service workers who care for AIDS
patients. HRSA also administers programs to demonstrate how
communities can organize their health care resources to develop
an integrated, comprehensive system of care for those with AIDS
and HIV infection. The agency is a cosponsor of the HIV/AIDS
Treatment Information Service.
Tel National HIV Telephone Consulting Service: HRSA funds the
toll-free National HIV Telephone Consulting Service to
provide information on drugs, clinical trials, and the
latest treatment methods to physicians and other health care
professionals who have questions about providing care to
people with HIV infection or AIDS. All staff members are
health professionals with extensive experience in outpatient
and inpatient primary care of people with HIV-related
diseases. The service, accessible from 10:30 a.m. to 8 p.m.
eastern time, can be reached by calling 1-(800) 933-3413.
Ex HIV Clinical Conference Call Series: In collaboration with
the National Institute of Allergy and Infectious Diseases
(NIAID), HRSA offers interactive, toll-free audio
teleconferences during which primary health care providers
from many disciplines have the opportunity to discuss timely
clinical issues with internationally renowned clinical
experts. For more information, contact Abe Macher, M.D.,
Health Resources and Services Administration, 5600 Fishers
Lane, Rockville, MD 20852; (301) 443-6364.
Ex AIDS Education and Training Centers: HRSA supports a network
of 17 regional centers that serve as resources for educating
health professionals in prevention, diagnosis, and care of
HIV-infected patients. The centers train primary care
providers to incorporate HIV prevention strategies into
their clinical priorities, along with diagnosis, counseling,
and care of HIV-infected persons and their families. For
more information, contact the AIDS ETC Program, Health
Resources and Services Administration, 5600 Fishers Lane,
Room 4C-03, Rockville, MD 20857; (301) 443-6364.
Ex National Pediatric HIV Resource Center: The Bureau of
Maternal and Child Health, HRSA, supports the National
Pediatric HIV Resource Center, which offers a range of
services to professionals caring for children, youth, and
families affected by HIV infection. The Resource Center
provides consultation, technical assistance, policy
analysis, and clinical training. The center is accessible
from 9 a.m. to 5 p.m. eastern time and can be reached by
calling 1-(800) 362-0071, fax: (201) 485-2752, or by writing
to the National Pediatric HIV Resource Center, 15 South
Ninth Street, Newark, NJ 07107.
Pub Reducing Perinatal HIV Transmission: Based on the results of
the clinical trial known as ACTG 076, the U.S. Public Health
Service recommends counseling and voluntary HIV testing of
pregnant women and offering zidovudine to pregnant women
with HIV infection to reduce perinatal transmission of HIV.
HRSA developed a Program Advisory, Use of Zidovudine (ZDV)
to Reduce Perinatal HIV Transmission in HRSA-Funded
Programs, to assist its grantees in implementing these
recommendations. With the Agency for Health Care Policy and
Research, HRSA supports preparation of consumer educational
materials regarding reducing perinatal HIV transmission.
With the AIDS Education and Training Centers, HRSA is
evaluating provider educational materials regarding reducing
perinatal HIV transmission.
Ex HRSA AIDS Advisory Committee: The HRSA AIDS Advisory
Committee was established to advise the Secretary of the
U.S. Department of Health and Human Services on agency
policies and strategic issues related to the support of
health care services to persons living with HIV/AIDS and
education of health professionals about HIV/AIDS. The
Committee supports HRSA's process of identifying and
responding to the health service delivery needs of affected
communities and to the needs of individuals living with this
disease. Meetings are open to the general pulic and are held
twice a year. For information contact Judith Hagopian,
M.S.W., M.P.H., AIDS Program Office, Health Resources and
Services Administration, 5600 Fishers Lane, Rockville, MD
20857; (301) 443-4588.
Substance Abuse and Mental Health Services
Administration (SAMHSA), R, PE, P, GI
Drug abuse treatment is a primary HIV prevention strategy. SAMHSA
administers the Alcohol, Drug Abuse, and Mental Health Services
Block Grant and other grant programs providing States and
localities with support for substance abuse and mental illness
treatment and prevention programs. The agency is a cosponsor of
the HIV/AIDS Treatment Information Service.
Tel National Clearinghouse for Alcohol and Drug Information:
Pub SAMHSA's Center for Substance Abuse Prevention (CSAP)
sponsors the National Clearinghouse for Alcohol and Drug
Information (NCADI), which provides current print and
audiovisual materials about alcohol and other drugs,
including materials explaining the risk of HIV transmission
from sharing needles during injection drug use and from
unsafe behaviors practiced due to the effects of substance
abuse. NCADI's resources include scientific findings;
databases on prevention programs and materials, field
experts, Federal grants, and market research; and
information about organizations and groups concerned with
alcohol and other drug problems. For more information, call
NCADI at 1-(800) 729-6686 (English and Spanish), or 1-(800)
487-4889 (TTY). NCADI is also accessible through the World
Wide Web (http://www.health.org), gopher
(gopher://gopher.health.org), FTP (ftp://ftp.health.org),
and telnet (ncadi.health.org).
Db PREVLINE (Prevention OnLine): This database is a
computer-based message and information service used to
exchange ideas and information with SAMHSA's Center for
Substance Abuse Prevention. It seeks to promote
communication within the prevention community at a very
personal level by providing a direct link among CSAP, the
National Clearinghouse for Alcohol and Drug Information, and
prevention professionals in the field. Included are HIV/AIDS
and substance abuse-related information. The forum promotes
research and evaluation, networking on issues related to
state-of-the-art technologies and methodologies, data
exchange, and sharing new ideas. The forum allows for
placing orders for materials from NCADI, requesting searches
from the Clearinghouse's extensive databases, and searching
through an online library of research data and scientific
studies on HIV/AIDS. For more information, contact Luisa Del
Pollard at (301) 443-0377.
Db National Women's Resource Center for the Prevention and
Ex Treatment of Alcohol, Tobacco and Other Drug Abuse and
Mental Illness: The National Women's Resource Center
provides knowledge exchange and development, information and
referral services, and training and technical assistance on
preventing and treating women's substance abuse, mental
illness, and issues of HIV/AIDS in women. A key service of
the Center will be PREMIS, a centralized online information
system that serves as a source of information on substance
abuse and mental health issues for women across the
lifecycle, including HIV/AIDS. The toll-free number for the
National Women's Resource Center is 1-(800) 354-8824.
AIDS Clinical Trials Information Service (ACTIS), R, CT, PE
Tel ACTIS, a toll-free telephone service, is a Public Health
Pub Service collaborative project provided by the National
Institute of Allergy and Infectious Diseases, the National
Library of Medicine, the Food and Drug Administration, and
the Centers for Disease Control and Prevention. It provides
free, up-to-date information on clinical trials that
evaluate experimental drugs and other therapies for adults
and children with HIV infection and AIDS. ACTIS also has
information on studies of experimental HIV vaccines.
Spanish- and English-speaking Reference Specialists are
available weekdays, 9 a.m. to 7 p.m., eastern time, by
calling 1-(800) TRIALS-A (874-2572); TTY: 1-(800) 243-7012.
ACTIS is also accessible through the Internet; e-mail:
actis@cdcnac.org; Web site address: http://www.actis.org.
HIV/AIDS Treatment Information Service (ATIS), R, T, PE
Tel ATIS, a toll-free telephone service, provides information
Pub about federally approved treatment guidelines for people
with HIV disease, their families and friends, and health
care providers. ATIS is sponsored by the following Public
Health Service agencies: Agency for Health Care Policy and
Research, Centers for Disease Control and Prevention, Health
Resources and Services Administration, Indian Health
Service, National Institutes of Health, and Substance Abuse
and Mental Health Services Administration. Spanish- and
English-speaking Reference Specialists are available
weekdays, 9 a.m. to 7 p.m., eastern time, by calling 1-(800)
HIV-0440 (448-0440); or 1-(800) 243-7012 (TTY). ATIS is also
accessible through the Internet; e-mail: atis@cdcnac.org;
Web site address: http://www.hivatis.org.
------------------------------
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Organization ____________________________________________
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City _________________________ State _____ ZIP___________
_____ In addition, please send me an application packet for
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Mail to:
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Guide
National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
E-mail: publicinfo@occshost.nlm.nih.gov