Guide to NIH HIV/AIDS Information Services with Selected Public Health Service Activities U.S. Department of Health and Human Services Public Health Service National Institutes of Health NIH Publication No. 96-3731 September 1996 ------------------------------ Guide to NIH HIV/AIDS information services : with selected Public Health Service activities / prepared by the National Library of Medicine. -- [Bethesda, Md.] : U.S. Dept. of Health and Human Services, National Institutes of Health, [1996] -- (NIH publication ; no. 96-3731) "September 1996." 1. National Institutes of Health (U.S.) 2. United States. Public Health Service 3. HIV Infections - United States - directories 4. Acquired Immunodeficiency Syndrome - United States - directories 5. Information Systems - United States - directories 6. Information Services - United States - directories I. National Library of Medicine (U.S.) II. Series 02NLM: WD 308 G9453 1996 ------------------------------ PREFACE In this Guide, the National Library of Medicine draws together in a single, easy-to-use source, a variety of data about the many HIV/AIDS information-related activities of NIH along with selected PHS offerings. It is hoped that the Guide will be a useful tool for health professionals, caregivers, the affected community, and others to learn about AIDS information resources supported by public funds and available to them. The Guide was first prepared for the NIH HIV/AIDS Information Services Conference, co-sponsored by the National Library of Medicine and the NIH Office of AIDS Research, in June 1993. Those attending the conference, most from outside the Federal Government, were enthusiastic about the Guide and recommended that the Library keep it current and make it widely available. This revised edition has been prepared for wide distribution. We plan to keep it up-to-date and republish as necessary. Additional copies may be requested by using the form on the last page. Donald A. B. Lindberg, M.D. Director, National Library of Medicine ------------------------------ Guide to NIH HIV/AIDS Information Services The National Institutes of Health (NIH) supports research to provide insight into the nature of HIV infection, the genetic and biological properties of the virus, immunopathogenesis, the natural history of HIV, consequences of HIV infection on the body, risk factors, and various modes of transmission. NIH supports a major effort to develop vaccines and to develop and test new agents for the treatment of AIDS and HIV infection, including opportunistic infections and HIV-associated malignancies. NIH sponsors many information services to assist professionals, patients, and the public in the quest for knowledge about HIV/AIDS. This brochure describes many of those services, some of which are components of other HIV/AIDS-related projects, as well as selected information services sponsored by other agencies of the Public Health Service. The symbols below identify the categories of HIV/AIDS information services of each institute, office, or center. R= Research CT= Clinical Trials T= Treatment PE= Patient Education P= Prevention PT= Professional Training GI= General Information The symbols below are used to identify the type or format of each HIV/AIDS information service provided. Tel= Telephone Pub= Publication Db= Online Database, Ex= Exhibit, Educational Electronic Bulletin Campaign, Training Board, or Internet Program/Materials, or Service Conference Office of AIDS Research (OAR), R, CT, T, PT, P, GI Pub Annual NIH Comprehensive Plan and Budget Estimate for Scientific Opportunities in AIDS Research: In response to a congressional mandate, OAR annually develops a detailed plan for NIH AIDS-related research activities in seven areas: (1) Natural History and Epidemiology, (2) Etiology and Pathogenesis, (3) Therapeutics, (4) Vaccines, (5) Behavioral Research, (6) Training and Infrastructure, (7) Information Dissemination. The plan summarizes the status of NIH-sponsored activities in these areas and presents the goals and strategies for future efforts. This plan is also linked to the annual budget estimate submitted directly to the President for review and transmittal to Congress. Pub NIH AIDS Research Program Evaluation Report: The first comprehensive evaluation of the entire NIH AIDS research program, conducted by more than 100 nongovernment experts. The evaluation group, chaired by Dr. Arnold Levine of Princeton University, assessed each of the components of the NIH AIDS research endeavor to determine whether those components are appropriately designed and coordinated to provide the knowledge that will lead to more effective prevention, better treatments, and eventually a cure for AIDS. Both of these documents are available in hardcopy, on diskette, and on the NIH World Wide Web site (http://www.nih.gov). For more information about resources and services provided by OAR, contact the NIH Office of AIDS Research, Building 31, Room 4C02, Bethesda, MD 20892. National Library of Medicine (NLM), R, CT, T, P, GI Db AIDSLINE(TM): This database contains over 100,000 bibliographic references to published literature about HIV/AIDS and related issues, including prevention and treatment. The database includes citations to journal articles, books, audiovisual materials, and newsletter articles. AIDSLINE(TM) also contains the abstracts from many AIDS-related conferences. Db AIDSTRIALS: This database contains information about HIV-related clinical trials, both open (currently enrolling patients) and closed. Information about NIH-sponsored clinical trials is provided by the National Institute of Allergy and Infectious Diseases (NIAID); information about privately sponsored efficacy trials is provided by the Food and Drug Administration (FDA). Db AIDSDRUGS: This database contains information about the agents being tested in trials included in AIDSTRIALS. Db HSTAT (Health Services and Technology Assessment Text): This fully searchable database provides access to the full text of all of the Agency for Health Care Policy and Research (AHCPR) guidelines, NIH Consensus Development Conference Reports, and NIH Technology Assessment Conference Reports. As part of the Public Health Service's HIV/AIDS Treatment Information Service (ATIS), which is cosponsored by NIH, all federally approved HIV/AIDS-related treatment guidelines and recommendations are included. HSTAT is available through the World Wide Web (http://www.nlm.nih.gov) or through Grateful Med(TM). Db DIRLINE: This database is an online directory of information resources covering all areas of biomedicine. Included are over 2,500 HIV/AIDS-specific resources such as organizations, self-help groups, and information systems. Access to NLM's databases: NLM's online databases are available to health professionals, libraries, and others. Users can access these databases through Grateful Med(TM), a user-friendly software package available from the National Technical Information Service at 1-(800) 423-9255. For more information about NLM's databases, including AIDSLINE(TM), and about obtaining access to them, call 1-(800) 638-8480. For more information specifically on the AIDSTRIALS and AIDSDRUGS databases, call (301) 496-3147. Information from these two databases is also available through the toll-free AIDS Clinical Trials Information Service, cosponsored by NLM, at 1-(800) TRIALS-A (874-2572). Db AIDS Internet Resource: The NLM Specialized Information Services World Wide Web site (http://sis.nlm.nih.gov) contains the text of various AIDS-related documents produced by the Library, including reports and factsheets, information about the Library's services, and access to online databases (user code may be required). In addition, this Web site provides organized access to selected AIDS-related Internet resources from other government and nongovernment sources. Pub Clinical Alert: Clinical Alert is used by NIH in Db urgent cases in which timely and broad dissemination of results of clinical trials could prevent morbidity and mortality. These clinical trials results are released pending the formal release of the findings through conventional journal publication. Once the decision to issue a Clinical Alert is made by the director of the relevant NIH institute, both traditional and electronic communication channels are used to disseminate the Clinical Alert to health professionals, the media, and the public. These channels currently include press releases and press conferences, online through NLM's MEDLARS(TM)computer system, and through telefacsimile and mailings. Open trials from the AIDSTRIALS database, the entire AIDSDRUGS database, AIDS-related issues of Clinical Alert, and other publications are available via FTP from the NLM Publications Server. (FTP to ftp://nlmpubs.nlm.nih.gov and login as nlmpubs.) National Institute of Allergy and Infectious Diseases (NIAID), R, CT, T, PE NIAID provides major support and direction for the national cadre of scientists conducting research to understand, treat, and ultimately prevent the many infectious, immunologic, and allergic diseases that afflict people worldwide. NIAID is also a cosponsor of the HIV/AIDS Treatment Information Service and the AIDS Clinical Trials Information Service. Tel NIH clinical trials information phone line: NIAID's Division of Intramural Research/Clinical Center operates a free telephone service for individuals seeking information about participating in clinical trials at NIH. Call 1-(800) AIDS-NIH (243-7644). Pub NIAID updates on basic and clinical research: NIAID's Office of Communications distributes factsheets, press releases, and other print materials about NIAID research results and HIV/AIDS clinical trials. NIAID disseminates research results relevant to clinical practice through press releases, Notes to Physicians, and Clinical Alert. Pub NIAID reports: NIAID's Office of Communications disseminates materials describing NIAID's current research initiatives, such as information about HIV vaccine development, preclinical drug development, basic research, and epidemiologic studies. Pub NIAID pamphlets and factsheets: NIAID's Office of Communications has developed a number of materials addressing HIV-related clinical trials and treatment issues for health care providers to use in counseling people with HIV or AIDS. Db NIAID World Wide Web site: The NIAID WWW site (http://www.niaid.nih.gov) contains AIDS-related press releases, publications, and grant and contract information. For more information, or to receive a free list of available materials, write to the National Institute of Allergy and Infectious Diseases, Office of Communications, Building 31, Room 7A-50, 31 Center Drive, MSC 2520, Bethesda, MD 20892. Many of these materials are also available by calling the AIDS Clinical Trials Information Service at 1-(800) TRIALS-A (874-2574). National Institute on Aging (NIA), R, GI Pub AIDS and the Older Adult: NIA produces this document, one in a series of "Age Pages," that provides general information to the public on AIDS in the older population and lists resources to contact for more information. For a free copy, call 1-(800) 222-2225, or write the National Institute on Aging, Building 31, Room 5C-27, 31 Center Drive, MSC 2292, Bethesda, MD 20892-2292. National Institute on Alcohol Abuse and Alcoholism (NIAAA), T, P Pub "Alcohol and AIDS": This issue of the National Institute on Alcohol Abuse and Alcoholism (NIAAA) quarterly bulletin Alcohol Alert provides information to health professionals about the relationship between alcohol consumption and HIV infection and AIDS. It focuses on the relationship of alcohol consumption to unsafe sexual behavior and on the treatment implications of alcohol's effect on the immune system. Copies are available free from NIAAA, Willco Building, Suite 409, 6000 Executive Boulevard, Bethesda, MD 20892-7003; (301) 443-3860. Pub Alcohol Health & Research World: Two issues of this peer-reviewed journal feature information about the relationship between alcohol consumption and HIV infection and AIDS: "Alcohol, Infectious Diseases, and Immunity" ($19.50, PB93160604) and "Prevention of Alcohol Related Problems" ($19.50, PB94113503). These issues are available from the National Technical Information Service (NTIS). Call NTIS at (703) 487-4650 for more information. National Cancer Institute (NCI), R, CT, T, PE Tel Cancer Information Service: NCI provides a toll-free telephone service for access to information specialists who can provide information about therapies for AIDS-related malignancies and answer questions from physicians, other health care providers, service providers, and the public. Call 1-(800) 4-CANCER (422-6237). Spanish-speaking specialists are available. Db Physician's Data Query (PDQ): In cooperation with the National Library of Medicine (NLM), NCI provides an online system for professionals and nonprofessionals containing state-of-the-art treatment information about AIDS-related malignancies and other cancers. A bibliographic database, CANCERLIT, is also available. For more information, call 1-(800) 4-CANCER (422-6237) or NLM at 1-(800) 638-8480. Db CancerFAX: Health professionals with access to a computer with a fax modem can receive summaries directly from the PDQ database (see above). Summaries are available in both English and Spanish. The fax number is (301) 402-5874. Db CancerNet: Information on the Internet is available for patients, health professionals, and people doing basic research. The World Wide Web address is http://cancernet.nci.nih.gov. National Institute of Child Health and Human Development (NICHD), R, CT, T, P, GI Pub Final Report: Secretary's Work Group on Pediatric HIV Infection and Disease: NICHD produced this report containing the findings and recommendations of a workgroup convened to delineate the problems faced in confronting pediatric HIV infection and to suggest strategies for their solution. Other publications are being developed with information on maternal and pediatric AIDS. Pub The New Face of AIDS: Lists HIV/AIDS-related research projects supported by NICHD. It includes project descriptions and information on principal investigators and Institute funding. Pub Reports: NICHD's Office of Research Reporting disseminates reports on various Institute-supported conferences and workshops related to HIV infection and AIDS in women, adolescents, and children. Some recent topics include AZT prophylaxis in perinatal HIV transmission, the effects of pregnancy on disease progression, and the natural history of HIV infection in women and adolescents. Pub Information on clinical research: NICHD issues press releases and newsletters summarizing current research advances in HIV/AIDS prevention, diagnosis, and treatment. Reprints of research findings published by NICHD staff in leading scientific journals also are available. Pub Pediatric AIDS Rehabilitation Research: Report of a Workshop: This publication addresses the need for rehabilitation in HIV-infected children. The goals of rehabilitation in this population include gaining optimal function within the scope of medical, physical, and/or mental limitations, and diminishing disability or handicap by maximizing function and quality of life. The report grew out of a workshop sponsored by NICHD's National Center for Medical Rehabilitation Research. Pub Public Health Service Reports: NICHD staff have been instrumental in preparing several Public Health Service documents, including the report of the Task Force on the Use of Zidovudine to Reduce Perinatal Transmission of HIV and the Morbidity and Mortality Weekly Report (MMWR) guidelines for PCP prophylaxis in HIV-infected children. For more information contact the National Institute of Child Health and Human Development, Public Information and Communications Branch, Building 31, Room 2A-32, 31 Center Drive, MSC 2425, Bethesda, MD 20892-2425; (301) 496-5133. National Institute for Dental Research (NIDR), R, PE, PT, P Pub Oral Health Aspects of HIV Infection and AIDS: This literature search on the oral health aspects of HIV infection and AIDS from the National Oral Health Information Clearinghouse is from the Oral Health subfile of the Combined Health Information Database (CHID). Designed with a strong patient education focus, CHID brings together health-related materials that fall outside the scope of more technical, research-based collections. The search focuses on the availability of educational materials for both the professional and the patient and includes topics such as the oral manifestations of HIV, oral hygiene for the HIV patient, oral health information for caregivers, adverse oral effects of medical management of HIV infection, and periodontal disease in the patient with HIV. Single copies of the search are available free of charge from the National Oral Health Information Clearinghouse, a service of the National Institute of Dental Research (NIDR). Contact the National Oral Health Information Clearinghouse, One NOHIC Way, Bethesda, MD 20892-3500; (301) 402-7364. Pub A Guide for Epidemiologic Studies of Oral Manifestations of HIV Infections: NIDR, in collaboration with the World Health Organization, has produced this document, which provides practical information for the design,implementation, and reporting of epidemiological studies. Ex Training manuals: Two training manuals explain steps for preventing HIV transmission in the dental setting: Building the Capacity for an Oral Health Response to the Global HIV Epidemic--Principles for Developing a Country-Specific Approach, for all national dental coordinators of HIV/AIDS activities, and Mobilizing Oral Health Personnel to Respond to the Development of Country-Specific Plans, which will be available in the near future, for local, regional, and national oral health personnel. For more information, write to NIDR, Building 31, Room 2C-35, Bethesda, MD 20892. National Institute on Drug Abuse (NIDA), R, PE, P, GI Ex National Media Campaign on Drug Abuse and AIDS: NIDA conducts a campaign to make the general public aware that alcohol or other drug abuse could lead to exposure to HIV. Focusing on teenagers, young adults, and women, the campaign includes television and radio public service announcements, advertisements in newspapers and consumer magazines, posters, and pamphlets. Innovative communication channels such as movies are also used. Pub Public Information: In addition to the campaign, NIDA has produced two booklets for teens and young adults on drug abuse-related HIV risk and exposure: How Getting High Can Get You AIDS (teen brochure) and How Not to Get High, Get Stupid, Get AIDS (guide to partying for young adults). Pub Community Alerts: Two publications addressing drug abuse and drug abuse-related HIV/AIDS issues are available. The first concerns the reemergence of tuberculosis among HIV/AIDS-infected injection drug users (IDUs). The second alerts the drug abuse community to the limitations of bleach disinfection of drug-use paraphernalia. Ex Drug Abuse and HIV: Reaching Those at Risk: This new videotape designed for use by drug abuse personnel provides a firsthand look at research-based strategies for educating IDUs in risk reduction and AIDS prevention. Pub Publications: The following publications are currently available: Outreach/Risk Reduction Strategies for Changing HIV-Related Risk Behaviors; NIDA Research Monograph 143: The Context of HIV Risk Among Drug Users and Their Sexual Partners; and NIDA Research Monograph 93: AIDS and Intravenous Drug Use. For more information about NIDA's resources and services, write to the National Institute on Drug Abuse, 5600 Fishers Lane, Room 10A-39, Rockville, MD 20857. National Eye Institute (NEI), CT, T, GI Pub Studies of the Ocular Complications of AIDS: NEI disseminated the results of the Foscarnet-Ganciclovir Retinitis Trial by distributing a Clinical Alert, press release, and media kit. NEI disseminated the results of the Ganciclovir Implant Study for Cytomegalovirus Retinitis by issuing a press release. NEI continues to conduct the CMV Retinitis Retreatment Trial, the HPMPC Peripheral CMV Retinitis Trial, and the Monoclonal Antibody Retinitis Trial. General information is available on the ocular complications of AIDS, basic research, and clinical trials completed and underway. For more information, contact the National Eye Institute, Office of Health Education and Communication, Building 31, Room 6A32, 31 Center Drive, MSC 2510, Bethesda, MD 20892-2510; (301) 496-5248. National Institute of General Medical Sciences (NIGMS), R Ex AIDS Targeted Drug-Design Project: Every June, NIGMS sponsors a national meeting of groups active in targeted drug design against AIDS. Abstracts are widely disseminated to interested parties. For more information, contact the National Institute of General Medical Sciences, Room 2AS-19, 45 Center Drive, MSC 6200, Bethesda, MD 20892-6200; (301) 594-0828. National Heart, Lung, and Blood Institute (NHLBI), R Pub AIDS Research Programs: NHLBI issues a yearly report on its AIDS research programs. Copies of this report may be obtained by writing to the National Heart, Lung, and Blood Institute AIDS Program, 31 Center Drive, MSC 2490, Building 31, Room 4A11, Bethesda, MD 20892-2490; (301) 496-3245. Pub NHLBI Repository: NHLBI issues a yearly catalog of the clinical samples in their repository, which can be obtained by individual investigators for their research. For information contact Dr. Luiz Barbosa, Rockledge 2, Room 10146, Bethesda, MD 20892-7950; (301) 435-0073. National Institute of Mental Health (NIMH), R, CT, T, P Pub AIDS Research: An NIMH Blueprint for the Second Decade: The NIMH Office on AIDS prepared this document to provide a brief overview of NIMH's role in AIDS research, including major initiatives in the areas of prevention and behavior change, neurobehavior, and neuroscience. Each section includes a discussion of issues, research opportunities, and questions. Copies of the document are available from the NIMH Mental Health Fax4U system by calling (301) 443-5158 and requesting document #933563. Ex Conference on the Role of Families in Preventing and Adapting to HIV/AIDS: The NIMH Office on AIDS sponsors this annual conference for researchers to present findings on family processes and HIV disease and to stimulate future collaborative research. A program book is produced before each conference. In 1996, this conference was designated an official satellite conference of the XI International Conference on AIDS in Vancouver, Canada. The next conference is planned for July 23-25, 1997, in Washington, DC. Pub Preparation of Research Grant Proposals for NIMH Support: As an outcome of a NIMH Office on AIDS Technical Workshop, Plenum Press has published How To Write a Successful Research Grant Application: A Guide for Social and Behavioral Scientists. This book provides technical assistance for researchers applying for biobehavioral or psychosocial research funding on all aspects of research, from grantsmanship and completing the Public Health Service 398 application to understanding the review process. There are separate chapters providing guidance on the development of the research plan, which cover theory development, hypothesis testing, preparing an intervention, and writing a data analytic plan, as well as practical considerations in presenting a budget. The document (ISBN 0-306-44965-X) may be obtained from Plenum Press, 233 Spring Street, New York, NY 10012-1578. Call (212) 620-8000 for further ordering information. Pub Workgroup Report: Assessment of AIDS-Related Cognitive Changes: Recommendations of the NIMH Workshop on Neuropsychological Assessment Approaches: This report presents a brief and extended battery designed to evaluate early cognitive changes associated with seropositive, asymptomatic persons. Pub "Special Issue: Serving People with Psychiatric Disability at Risk for HIV/AIDS": Psychosocial Rehabilitation Journal, Volume 17, Number 14, 1994: The NIMH Office on AIDS, in collaboration with the International Association of Psychosocial Rehabilitation Services, edited this special issue that reviews the major seroprevalence and HIV prevention issues of concern to persons with mental illness. There are also several articles on incentives and barriers to collaboration among researchers, service providers, and persons living with AIDS. Tel NIMH Office on AIDS research grant announcements are available: by calling the NIMH Mental Health Fax4U system, (301) 443-5158. To obtain the 6-digit code necessary to retrieve specific documents, press 1 when prompted in order to request the complete list of announcements and other materials. These documents are also available on the NIMH Home Page: http://www.nimh.nih.gov. For further information concerning the National Institute of Mental Health's Program on AIDS research, write to the Information Resources and Inquiries Branch, National Institute of Mental Health, 5600 Fishers Lane, Room 7C-02, Rockville, MD 20857; (301) 443-4513 or e-mail: nimhinfo@nih.gov. National Center for Research Resources (NCRR), R, GI Ex RCMI International AIDS Symposium: NCRR provides this forum for Research Centers in Minority Institutions (RCMI) to stimulate discussion and ideas that will lead to collaborative research on AIDS. Proceedings are produced after each symposium in the series. Pub NCRR Office of Science and Health Reports: NCRR's Office of Science and Health Reports produces several publications describing recent NCRR accomplishments, resources, and services, including: NCRR Highlights, an annual report; NCRR Reporter, a bimonthly periodical; and resource directories. AIDS research is one of many biomedical research topics covered in these documents. Ex AIDS Animal Models Program: NCRR's Office of Science and Health Reports provides information about the AIDS Animal Models Program and alerts qualified researchers to AIDS animal models. Ex National Traveling AIDS Exhibit and Education Program: NCRR has funded a hands-on exhibit and associated educational materials to improve public understanding of the fundamentals of microbiology underlying the AIDS epidemic. The target audiences are students in grades 6-12 and their families and teachers. Additional small modules on Understanding AIDS and a CD-ROM version are being prepared for use by schools, public libraries, and other institutions. For more information, contact New York Hall of Science, 47-01 111th Street, Corona, NY 11368. For more information about resources and services provided by NCRR, contact the National Center for Research Resources, Office of Science and Health Reports, One Rockledge Centre, Room 5040, 6705 Rockledge Drive, MSC 7965, Bethesda, MD 20892-7965. Fogarty International Center, R, CT, T, PT, P Ex AIDS International Training and Research Program: The Fogarty International Center sponsors training for foreign scientists to increase their capacity to deal with the AIDS epidemic through epidemiological research, clinical trials, and other prevention projects, and to stimulate cooperation and sharing of research knowledge. For more information, write to the Fogarty International Center, National Institutes of Health, Building 31, Room B2-C32, Bethesda, MD 20892. National Institute of Neurological Disorders and Stroke (NINDS), GI Pub Neurological Manifestations of AIDS: NINDS produces this fact sheet that provides general information to the public on the neurological sequelae of AIDS and lists resources to contact for more information. For a free copy, call (301) 496-5751 or write to the National Institute of Neurological Disorders and Stroke, Building 31, Room 8A16, MSC 2540, Bethesda, MD 20892-2540. National Institute on Deafness and Other Communication Disorders (NIDCD), R, GI NIDCD supports and conducts research in the areas of hearing, balance, smell, taste, voice, speech, and language. For information about HIV/AIDS-related research at NIDCD, contact the Policy Planning and Health Reports Branch, 31 Center Drive, MSC 2320, Bethesda, MD 20892-2320; (301) 496-7243. Pub Bibliography: For people who are deaf or hard of hearing, NIDCD prepares an annual bibliography of HIV/AIDS information materials available to patients and health professionals. To receive a copy, contact the NIDCD Information Clearinghouse, 1 Communication Avenue, Bethesda, MD 20892-3456; 1-(800) 241-1044 (voice), 1-(800) 241-105 (TTY). Db NIDCD's home page (http://www.nih.gov/nidcd) on the World Wide Web also provides information about the Institute and a health information database that users can search online. ------------------------------ Selected Public Health Service HIV/AIDS Information Activitites Agency for Health Care Policy and Research (AHCPR), R, T, PE AHCPR supports activities designed to enhance the quality, appropriateness, and effectiveness of health care services and to improve access to that care through various programs, including its Research on Health Care Outcomes and Quality and Research on Health Care Systems Cost and Access programs. AHCPR is also a cosponsor of the HIV/AIDS Treatment Information Service. Ongoing and completed AHCPR-sponsored research projects related to HIV/AIDS pertain to the cost of care and issues important to women, children, and minority populations, among others. Pub AHCPR reports: AHCPR has produced more than 20 reports related to HIV/AIDS, including Pediatric AIDS-Related Discharges in a Sample of U.S. Hospitals: Demographics, Diagnoses, and Resource Use and Forecasts of the Costs of Medical Care for Persons With HIV: 1992-1995. To obtain copies of the above publications or the AHCPR Publications Catalog, contact the AHCPR Publications Clearinghouse, P.O. Box 8547, Silver Spring, MD 20907-8547; 1-(800) 358-9295. For more information write to the Agency for Health Care Policy and Research, 2101 East Jefferson Street, Suite 501, Rockville, MD 20852. Further information on the Agency for Health Care Policy and Research can also be found on its Web site: http://www.ahcpr.gov. Centers for Disease Control and Prevention (CDC), R, PE, PT, P, GI CDC assesses the status and characteristics of the AIDS epidemic and the prevalence of HIV infection and supports, via financial and technical assistance, the design, implementation, and evaluation of HIV prevention and education activities. Db CDC Division of HIV/AIDS Prevention, National Center for HIV, STD, and TB Prevention: The Division of HIV/AIDS Prevention, in collaboration with community, State, national, and international partners, works to prevent HIV infection and to reduce the incidence of HIV-related illness and death. The DHAP Web site (http://www.cdc.gov/nchstp/hiv_aids/dhap.htm) includes information on statistics, funding, media campaigns, publications, software, training, and links to related sites. Tel CDC National AIDS Clearinghouse: The CDC National AIDS Db Clearinghouse is a comprehensive HIV/AIDS information Pub service targeting health professionals, managers of HIV/AIDS programs, educators, and information providers. The Clearinghouse helps professionals access key HIV/AIDS-related materials, access information through its online databases, and share the latest HIV information through CDC NAC ONLINE, an electronic bulletin board service for AIDS-related organizations. The Clearinghouse also operates the AIDS Clinical Trials Information Service and the HIV/AIDS Treatment Information Service, which are cosponsored by CDC. The Clearinghouse's services are available Monday through Friday, 9 a.m. to 7 p.m. eastern time, by calling 1-(800) 458-5231 (English and Spanish) or 1-(800) 243-7012 (TTY). Information from the Clearinghouse can also be accessed through NAC FAX, a 24-hour, fax-on-demand service at 1-(800) 458-5231, as well as a variety of Internet services. The Clearinghouse has a World Wide Web site (http://www.cdcnac.org); an FTP site (ftp://ftp.cdcnac.org/pub/cdcnac); a gopher site (gopher://gopher.cdcnac.org:72); and AIDSNEWS, a listserv of HIV/AIDS-related news (listserv@cdcnac.aspensys.com). Tel CDC National AIDS Hotline: The CDC National AIDS Hotline is a toll-free HIV/AIDS-related information service that provides personal and confidential information, referrals, and educational materials to the public. The Hotline also offers free group calls and classroom calls, which provide an opportunity for groups to talk to trained information specialists and ask questions about serious issues in a relaxed environment. The Hotline operates 24 hours a day, 7 days a week. Call 1-(800) 342-AIDS (342-2437); 1-(800) 344-SIDA (334-7432) (Spanish); or 1-(800) 243-7889 (TTY). Tel CDC National STD Hotline: The CDC National STD Hotline (NSTDH) provides callers with current, disease-specific STD prevention information and referrals via toll-free calling. The hotline serves the general population throughout the country. NSTDH operates Monday through Friday, 8 a.m. to 11 p.m. A 2-minute taped message is provided after business hours and on weekends and holidays. The toll-free number is 1-(800) 227-8922. Tel CDC automated telephone services: For current statistics on HIV infection and AIDS, call the CDC HIV/AIDS Statistics Information Line at (404) 332-4570. CDC's Voice Information System also provides up-to-date information on a variety of health-related topics, including HIV/AIDS; call (404) 332-4555. To receive free facsimile documents on a variety of HIV/AIDS-related topics, call the CDC Fax Information Service at (404) 332-4565. Food and Drug Administration (FDA), CT, T, GI FDA is responsible for assuring the safety and effectiveness of drugs, biologics, vaccines, and medical devices used in the diagnosis, treatment, and prevention of HIV infection, AIDS, and AIDS- associated opportunistic infections. FDA also works with the blood banking industry to help ensure the safety of the Nation's blood supply. The agency is a cosponsor of the AIDS Clinical Trials Information Service. For more information, contact the FDA Office of AIDS and Special Health Issues (HF-12), 5600 Fishers Lane, Room 9-49, Rockville, MD 20857; (301) 443-0104. Db FDA has opened a home page on the World Wide Web to replace its electronic bulletin board. The address is http://www.fda.gov. FDA's Office of AIDS nd Special Health Issues has a home page on the World Wide Web at http://www.fda.gov/oashi/home.html. Health Resources and Services Administration (HRSA), R, CT, T, PE, PT, GI HRSA administers education and training programs for health care providers and community service workers who care for AIDS patients. HRSA also administers programs to demonstrate how communities can organize their health care resources to develop an integrated, comprehensive system of care for those with AIDS and HIV infection. The agency is a cosponsor of the HIV/AIDS Treatment Information Service. Tel National HIV Telephone Consulting Service: HRSA funds the toll-free National HIV Telephone Consulting Service to provide information on drugs, clinical trials, and the latest treatment methods to physicians and other health care professionals who have questions about providing care to people with HIV infection or AIDS. All staff members are health professionals with extensive experience in outpatient and inpatient primary care of people with HIV-related diseases. The service, accessible from 10:30 a.m. to 8 p.m. eastern time, can be reached by calling 1-(800) 933-3413. Ex HIV Clinical Conference Call Series: In collaboration with the National Institute of Allergy and Infectious Diseases (NIAID), HRSA offers interactive, toll-free audio teleconferences during which primary health care providers from many disciplines have the opportunity to discuss timely clinical issues with internationally renowned clinical experts. For more information, contact Abe Macher, M.D., Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20852; (301) 443-6364. Ex AIDS Education and Training Centers: HRSA supports a network of 17 regional centers that serve as resources for educating health professionals in prevention, diagnosis, and care of HIV-infected patients. The centers train primary care providers to incorporate HIV prevention strategies into their clinical priorities, along with diagnosis, counseling, and care of HIV-infected persons and their families. For more information, contact the AIDS ETC Program, Health Resources and Services Administration, 5600 Fishers Lane, Room 4C-03, Rockville, MD 20857; (301) 443-6364. Ex National Pediatric HIV Resource Center: The Bureau of Maternal and Child Health, HRSA, supports the National Pediatric HIV Resource Center, which offers a range of services to professionals caring for children, youth, and families affected by HIV infection. The Resource Center provides consultation, technical assistance, policy analysis, and clinical training. The center is accessible from 9 a.m. to 5 p.m. eastern time and can be reached by calling 1-(800) 362-0071, fax: (201) 485-2752, or by writing to the National Pediatric HIV Resource Center, 15 South Ninth Street, Newark, NJ 07107. Pub Reducing Perinatal HIV Transmission: Based on the results of the clinical trial known as ACTG 076, the U.S. Public Health Service recommends counseling and voluntary HIV testing of pregnant women and offering zidovudine to pregnant women with HIV infection to reduce perinatal transmission of HIV. HRSA developed a Program Advisory, Use of Zidovudine (ZDV) to Reduce Perinatal HIV Transmission in HRSA-Funded Programs, to assist its grantees in implementing these recommendations. With the Agency for Health Care Policy and Research, HRSA supports preparation of consumer educational materials regarding reducing perinatal HIV transmission. With the AIDS Education and Training Centers, HRSA is evaluating provider educational materials regarding reducing perinatal HIV transmission. Ex HRSA AIDS Advisory Committee: The HRSA AIDS Advisory Committee was established to advise the Secretary of the U.S. Department of Health and Human Services on agency policies and strategic issues related to the support of health care services to persons living with HIV/AIDS and education of health professionals about HIV/AIDS. The Committee supports HRSA's process of identifying and responding to the health service delivery needs of affected communities and to the needs of individuals living with this disease. Meetings are open to the general pulic and are held twice a year. For information contact Judith Hagopian, M.S.W., M.P.H., AIDS Program Office, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857; (301) 443-4588. Substance Abuse and Mental Health Services Administration (SAMHSA), R, PE, P, GI Drug abuse treatment is a primary HIV prevention strategy. SAMHSA administers the Alcohol, Drug Abuse, and Mental Health Services Block Grant and other grant programs providing States and localities with support for substance abuse and mental illness treatment and prevention programs. The agency is a cosponsor of the HIV/AIDS Treatment Information Service. Tel National Clearinghouse for Alcohol and Drug Information: Pub SAMHSA's Center for Substance Abuse Prevention (CSAP) sponsors the National Clearinghouse for Alcohol and Drug Information (NCADI), which provides current print and audiovisual materials about alcohol and other drugs, including materials explaining the risk of HIV transmission from sharing needles during injection drug use and from unsafe behaviors practiced due to the effects of substance abuse. NCADI's resources include scientific findings; databases on prevention programs and materials, field experts, Federal grants, and market research; and information about organizations and groups concerned with alcohol and other drug problems. For more information, call NCADI at 1-(800) 729-6686 (English and Spanish), or 1-(800) 487-4889 (TTY). NCADI is also accessible through the World Wide Web (http://www.health.org), gopher (gopher://gopher.health.org), FTP (ftp://ftp.health.org), and telnet (ncadi.health.org). Db PREVLINE (Prevention OnLine): This database is a computer-based message and information service used to exchange ideas and information with SAMHSA's Center for Substance Abuse Prevention. It seeks to promote communication within the prevention community at a very personal level by providing a direct link among CSAP, the National Clearinghouse for Alcohol and Drug Information, and prevention professionals in the field. Included are HIV/AIDS and substance abuse-related information. The forum promotes research and evaluation, networking on issues related to state-of-the-art technologies and methodologies, data exchange, and sharing new ideas. The forum allows for placing orders for materials from NCADI, requesting searches from the Clearinghouse's extensive databases, and searching through an online library of research data and scientific studies on HIV/AIDS. For more information, contact Luisa Del Pollard at (301) 443-0377. Db National Women's Resource Center for the Prevention and Ex Treatment of Alcohol, Tobacco and Other Drug Abuse and Mental Illness: The National Women's Resource Center provides knowledge exchange and development, information and referral services, and training and technical assistance on preventing and treating women's substance abuse, mental illness, and issues of HIV/AIDS in women. A key service of the Center will be PREMIS, a centralized online information system that serves as a source of information on substance abuse and mental health issues for women across the lifecycle, including HIV/AIDS. The toll-free number for the National Women's Resource Center is 1-(800) 354-8824. AIDS Clinical Trials Information Service (ACTIS), R, CT, PE Tel ACTIS, a toll-free telephone service, is a Public Health Pub Service collaborative project provided by the National Institute of Allergy and Infectious Diseases, the National Library of Medicine, the Food and Drug Administration, and the Centers for Disease Control and Prevention. It provides free, up-to-date information on clinical trials that evaluate experimental drugs and other therapies for adults and children with HIV infection and AIDS. ACTIS also has information on studies of experimental HIV vaccines. Spanish- and English-speaking Reference Specialists are available weekdays, 9 a.m. to 7 p.m., eastern time, by calling 1-(800) TRIALS-A (874-2572); TTY: 1-(800) 243-7012. ACTIS is also accessible through the Internet; e-mail: actis@cdcnac.org; Web site address: http://www.actis.org. HIV/AIDS Treatment Information Service (ATIS), R, T, PE Tel ATIS, a toll-free telephone service, provides information Pub about federally approved treatment guidelines for people with HIV disease, their families and friends, and health care providers. ATIS is sponsored by the following Public Health Service agencies: Agency for Health Care Policy and Research, Centers for Disease Control and Prevention, Health Resources and Services Administration, Indian Health Service, National Institutes of Health, and Substance Abuse and Mental Health Services Administration. Spanish- and English-speaking Reference Specialists are available weekdays, 9 a.m. to 7 p.m., eastern time, by calling 1-(800) HIV-0440 (448-0440); or 1-(800) 243-7012 (TTY). ATIS is also accessible through the Internet; e-mail: atis@cdcnac.org; Web site address: http://www.hivatis.org. ------------------------------ Order Form Please send _______ additional copies of the Guide to NIH HIV/AIDS Information Services to: Name ____________________________________________________ Organization ____________________________________________ Street address __________________________________________ City _________________________ State _____ ZIP___________ _____ In addition, please send me an application packet for online access to NLM's AIDS databases. Mail to: Office of Public Information Guide National Library of Medicine 8600 Rockville Pike Bethesda, MD 20894 E-mail: publicinfo@occshost.nlm.nih.gov