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- $Unique_ID{BRK01821}
- $Pretitle{}
- $Title{Neurofibromatosis}
- $Subject{Neurofibromatosis NF genetic genetics gene genes disorder disorders
- National Foundation inform information organization organizations resource
- resources booklet booklets sheet sheets pamphlet pamphlets brochure brochures
- literature clinic Clinics location locations material materials}
- $Volume{}
- $Log{}
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- Copyright (c) 1993 Tribune Media Services, Inc.
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- A Resource About Neurofibromatosis
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-
- A recent response to a question on neurofibromatosis (NF), has generated
- a new flood of letters requesting even more information about this serious
- genetic disorder. It was first described by Friedrich Von Recklinghausen in
- 1882 and so bears his name as well. At least 100,000 Americans and 1.5
- million more people worldwide are affected, with 400,000 new children born
- with NF each year, according to the National Neurofibromatosis Foundation.
- And it is this Foundation that can provide all the very important information
- you have requested from me. As a non-profit, voluntary organization, it is
- organized to provide the resources you are seeking and to supply the
- information you need. Several booklets and information sheets are available,
- and a listing of all the NF Clinics and their locations is also available.
- Anyone seeking more information about neurofibromatosis should write directly
- to The National Neurofibromatosis Foundation, Inc., 141 Fifth Avenue, Suite
- 7-S, New York, NY 10010. I found their brochure "Information for Patients and
- Families" of particular value, for the material is covered in a comprehensive
- and easy to understand fashion, with just enough illustrations to help you
- grasp the complexities of the pattern of inheritance of this disorder.
-
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- The material contained here is "FOR INFORMATION ONLY" and should not replace
- the counsel and advice of your personal physician. Promptly consulting your
- doctor is the best path to a quick and successful resolution of any medical
- problem.
-