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$Title{Neurofibromatosis}
$Subject{Neurofibromatosis NF genetic genetics gene genes disorder disorders
National Foundation inform information organization organizations resource
resources booklet booklets sheet sheets pamphlet pamphlets brochure brochures
literature clinic Clinics location locations material materials}
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Copyright (c) 1993  Tribune Media Services, Inc.


A Resource About Neurofibromatosis


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     A recent response to a question on neurofibromatosis (NF), has generated
a new flood of letters requesting even more information about this serious
genetic disorder.  It was first described by Friedrich Von Recklinghausen in
1882 and so bears his name as well.  At least 100,000 Americans and 1.5
million more people worldwide are affected, with 400,000 new children born
with NF each year, according to the National Neurofibromatosis Foundation.
And it is this Foundation that can provide all the very important information
you have requested from me.  As a non-profit, voluntary organization, it is
organized to provide the resources you are seeking and to supply the
information you need.  Several booklets and information sheets are available,
and a listing of all the NF Clinics and their locations is also available.
Anyone seeking more information about neurofibromatosis should write directly
to The National Neurofibromatosis Foundation, Inc., 141 Fifth Avenue, Suite
7-S, New York, NY 10010.  I found their brochure "Information for Patients and
Families" of particular value, for the material is covered in a comprehensive
and easy to understand fashion, with just enough illustrations to help you
grasp the complexities of the pattern of inheritance of this disorder.

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The material contained here is "FOR INFORMATION ONLY" and should not replace
the counsel and advice of your personal physician.  Promptly consulting your
doctor is the best path to a quick and successful resolution of any medical
problem.