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- $Unique_ID{BRK00244}
- $Pretitle{}
- $Title{A Question About "Anencephaly" concerning Donation}
- $Subject{anencephaly congenital malformation organ donations Ill Defined
- Symptoms symptom Rare Diseases disease genetic inherited brain dead stem organ
- donation organs donor community social}
- $Volume{N-1, Q-0}
- $Log{
- Posterior Cross Section of the Brain*0002402.scf}
-
- Copyright (c) 1991-92,1993 Tribune Media Services, Inc.
-
-
- A Question About "Anencephaly" concerning Donation
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-
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-
- QUESTION: I have read a great deal lately about the use of babies born
- without heads, for organ donations. There seems to be a discussion that I
- can't understand. If they are born this way, aren't they dead anyway? It
- would be a good idea to give some other child a chance by using the organs
- from the dead child. Why don't they just do it?
-
- ------------------------------------------------------------------------------
-
- ANSWER: A clarification or two first. These babies are born with a
- malformation called "anencephaly" or congenital absence of the brain. A head
- is present, though misshapen and shrunken. The part of the brain which
- controls respiration and basic functions, the brain stem, is also present.
- While the brain stem functions, the child can not be pronounced "brain dead,"
- and until brain death occurs, no organ donations can be recovered. However,
- the organs that could be used as donor organs, such as the liver, heart and
- kidneys, must be kept alive if they are to be used, and the procedures
- necessary for this may also give life to the brain stem. The problem of
- proper clinical management of these dying babies still has not been solved.
- The ethical problems of treating these children as different from other
- seriously ill newborns also warrants careful consideration and study. I agree
- with you, I too would like to see a way in which these organs could be used,
- but the rights of all, even these doomed babies, must be respected.
-
- ----------------
-
- The material contained here is "FOR INFORMATION ONLY" and should not replace
- the counsel and advice of your personal physician. Promptly consulting your
- doctor is the best path to a quick and successful resolution of any medical
- problem.
-
-