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- Message-ID: <AUTISM%93012615232631@SJUVM.STJOHNS.EDU>
- Newsgroups: bit.listserv.autism
- Date: Tue, 26 Jan 1993 14:55:44 EST
- Sender: SJU Autism and Developmental Disablities List
- <AUTISM@SJUVM.BITNET>
- From: Daniel Mont <D6M@CORNELLA.BITNET>
- Subject: Mentors
- Lines: 67
-
- My wife met Alex's mentor (you may remember that among other services
- the school is providing a mentor for Alex -- he is a physicist¢computer
- person who also works with gifted children) the other day. He
- was quite enthusiastic about working with Alex and said he had lots
- of ideas. He said he did not think it best to work only one-on-one
- with Alex. He thinks that bringing maybe two other kids into their
- interaction would still enable him to keep Alex engaged but maybe
- afford him the opportunity to connect with other kids who are also
- mathematically and scientifically inclined.
-
- Anyway, there first meeting was a smash success! Carl came into the
- room carrying an abacus and Alex, who was in the process of undressing
- from playing outside in the snow, supposedly pounced on him, one
- shoe off and one shoe on, and started his barrage of questions. The
- two of them got so absorbed in what they were doing that they never
- made it to the conference room. They sat down right in the doorway for
- an hour and added and multiplied away on the abacus. Then they looked
- at different fabrics under a microscope. This meeting for some reason
- was one-on-one. Alex's teacher said it was like one math aura meeting
- a similar math aura and fusing as one. There was an immediate bond
- supposedly. This week Carl is bringing an alarm clock. They are going to
- take it apart and see how it works. I really think this may relieve
- some of Alex's boredom factor at school.
-
- When he got home he did not want to talk about his meeting with Carl.
- My wife had the clever idea of taking an abacus that we had around the
- house and lying it conspicuously in the middle of the living room. It
- didn't take long before Alex went over to it and started excitedly
- showing her all the things he had learned that day.
-
- People have suggested to us that Alex may be "outgrowing his autism".
- I don't believe that is possible, although I do think his autistic
- behaviors are much less pronounced. When he was 2,3, and even 4 it
- was clear even to the casual observer that something was different
- about Alex and he fit all the classic signs: echolalia, pronoun
- reversal, difficulty in transitions, lack of eye contact and affect,
- at first outright fear and then just intense discomfort with other
- children, lack of imaginitive play, liking structure, learning to
- read at a very early age, even spinning some objects when he
- was younger. Now much of that is gone. His speech is not totally
- "normal" -- his intonation is somewhat odd as are some of his speech
- patterns, but he is "catching up" to other children. All the other
- non-speech "symptoms" are there but are much less pronounced -- in
- many cases it takes a "trained eye" to see them and how they fit
- together. I suspect therefore that we will continue to confront the
- "he has outgrown whatever autism he may have had" argument for years
- to come. Even though we have started the evaluation process again
- with Dr. Coplan in Syracuse (an M.D. so the school will put more faith
- in what he has to say -- don't ask me why, that's just the way it is)
- that will not prevent people from saying (if as we expect Dr. Coplan
- agrees with us and Alex's previous evaluators) well he may still have
- had "traces" of autism at that time but it is gone now-- he is just an
- eccentric precocious child. Is there anything written that talks about
- HFA's and how even though they learn (with much effort) to cope well
- in a non-autistic world, that at there core there are differences that
- still lead to problems (I know that some HFA's, like Sean Barron,
- think autism can be overcome -- we have talked about that before on
- this list, though --Sean's case aside because I do not know him -- I
- find that hard to believe from what I know)?
-
- We will ask Dr. Coplan when we see him. He requires a referral, which we
- have gotten. We are now in the process of sending him all of Alex's
- voluminous records. He'll then send us a questionnaire. After that we
- take Alex up for a visit to his office. If he has anything I will let
- you all know. On one level I don't care if schools think Alex is autistic
- or not if they give him the right services. However, without the diagnosis
- I do no think there is a way to ensure the provision of services.
-