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1995-06-25
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GUIDE TO HIV/AIDS SERVICE PROVIDERS
supported by Title I, Ryan White CARE Act
INTRODUCTION
BACKGROUND ON CARE ACT
In 1990, Congress passed P.L. 101-381, the Ryan White
Comprehensive AIDS Resources Emergency (CARE) Act, to
improve the quality and availability of care for individuals
and families with HIV disease who have no other access to
such care. This includes people living with HIV/AIDS who are
low income, and uninsured or underinsured. The CARE Act is
administered by the Health Resources and Services
Administration (HRSA).
The four Titles of the Act direct grant support as
follows:
* Title I supports emergency service needs of
Eligible Metropolitan Areas (EMAs) with the
largest number of reported cases of AIDS;
* Title II supports States to improve the quality,
availability, and organization of health care and
support services. It also supports a separate
competitive grant program of Special Projects of
National Significance (SPNS) to advance knowledge
and skills in the delivery of health and support
services to persons with HIV infection;
* Title III(b) funds early intervention services
through national competitive grant awards; and
* Title IV, funded for the first time in fiscal
year 1994, supports research and service
demonstrations for pediatric HIV patients.
DEVELOPMENT OF GUIDE
This Guide was developed for medical and support
service providers, and people living with HIV/AIDS. It
lists services and providers supported by Ryan White
Title I funding in EMAs with large HIV/AIDS caseloads
and, for each provider, gives addresses, phone numbers,
contacts and a brief description of available services.
At the end of 1993, each of the 25 EMAs receiving
Title I grants that year reported on the providers they
had contracted with to serve people living with HIV.
These lists were verified, data were entered, and early
in 1994, HRSA contacted each EMA, including the nine
cities receiving Ryan White grants for the first time in
1994, asking them to revise their provider listing, or,
in the case of the new EMAs, to provide a listing of
service providers.
This Guide lists EMAs alphabetically by City, and
service providers alphabetically within each EMA. Each
EMA's section starts with the name, address, and contact
person for the grant, a brief background the EMA's
demographics, and history of the HIV epidemic in the EMA.
Appendix A is a listing of the service category
definitions provided by HRSA to guide EMA reporting. When
a directory entry describes a service very briefly,
referring to these definitions may be helpful. Some EMAs
went well beyond these definitions to include broader
descriptions of services provided by subcontractors.
HOW EMAs WORK
Metropolitan areas are eligible for Title I grants
when they report 2,000 or more cumulative cases of AIDS
to the Centers for Disease Control and Prevention (CDC),
or a per capita incidence of .0025. Title I grants are
based on reports made by March 31 of the most recent
fiscal year (thus, 1994 grants are based on cases
reported by March 31, 1993).
Grants are awarded to the Chief Elected Official
(CEO) of the EMA, who must establish an HIV Health
Services Planning Council. That Council establishes
priorities for awarding Title I grants in the area,
develops a plan for organizing and delivering HIV health
services, and assesses how efficiently the city allocates
funds to areas of greatest need. Council membership must
represent the community of HIV/AIDS providers and people
affected and infected by HIV.
The EMAs use various procedures to contract with
public and non-profit entities that then provide
outpatient and ambulatory health and support services,
determined by the Planning Council as priorities for area
residents living with HIV. These can cover a wide range
of services, from primary medical care to transportation,
food, in-home services and hospice care.
USING THE GUIDE
HRSA developed this Guide to assist providers of
HIV/AIDS care and people seeking such care. Though HIV
service providers within one city are usually
knowledgeable about other area resources to whom they can
refer patients, they are not as familiar with resources
in other cities. So, when a patient is moving to another
city listed here, the provider can make referral
suggestions. For people with HIV who are seeking
additional resources and care providers, or their friends
and relations, this Guide can be a valuable resource.
A comprehensive, alphabetical index of service
providers by EMA currently is being developed, and will
be sent to all Title I grantees as soon as it is
completed.
Every effort has been made to ensure accuracy of the
listings. However, changes do occur and people using this
Guide may find that addresses, phone numbers, personnel,
and even services may not be as listed here. In those
cases, we would appreciate hearing from you. We would
also appreciate receiving your comments and suggestions
on ways to improve this document.
Please send suggestions, additions and corrections to:
Health Resources and Services Administration
5600 Fishers Lane, Room 7-46
Rockville, MD 20857
Attn: Dorothy Bailey
(301) 443-6652; FAX (301) 443-0791
January 1995