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- $Unique_ID{BRK01365}
- $Pretitle{}
- $Title{A Special Letter About Chronic Fatigue Immune Deficiency Syndrome}
- $Subject{chronic fatigue ill defined symptoms symptom resources immune
- deficiency syndrome cfids down lupus hypoglycemia thyroid yuppie flu epstein
- barr virus activity fever muscle weakness headaches joint pain sore throat
- sleep disturbances behavior behaviors lifestyle lifestyles resource resources
- headache}
- $Volume{N-23,U-23}
- $Log{}
-
- Copyright (c) 1991-92,1993 Tribune Media Services, Inc.
-
-
- A Special Letter About Chronic Fatigue Immune Deficiency Syndrome
-
-
- ------------------------------------------------------------------------------
-
- A SPECIAL LETTER: When I saw the letter to you about Chronic Fatigue Immune
- Deficiency Syndrome (CFIDS) I had to write to you. I am 23 years old and have
- had CFIDS for almost 5 years. It's been difficult but I am getting stronger.
- I would like to help the person who wrote in. 1) Don't think you're a
- hypochondriac, you're not. 2) You have to know your body better than you
- think possible. Keep a health diary of what you eat and do, what illnesses
- you get and how you feel. Eventually a pattern will develop and you can cut
- certain foods and/or activities that trigger a "down" time. 3) Take vitamin
- supplements. They won't work miracles but they will help your body's immune
- system, and they won't hurt you if taken properly. 4) have tests run to rule
- out other problems such as Lupus, hypoglycemia, or thyroid problems. 5) Find
- a support group. If you are near a larger city, chances are there are
- several. Knowing you are not alone helps immeasurably. You will also get:
- information from fellow sufferers on their trials and successes, names of
- doctors that will listen and believe you, and information on the latest
- research. 6) There are several books on the market that deal with CFIDS. If
- you don't have the energy for a support group, one of the books will help
- almost as much. Good luck. It will seem like an eternity, but there is hope.
- L.H.
-
- ------------------------------------------------------------------------------
-
- ANSWER: I couldn't pass up publishing this letter from a charming young
- woman, for it provided the answers that many CFIDS sufferers need to read.
- And it is much better coming from someone who has fought and seems to be
- winning the battle. She sounded so up beat when I spoke to her on the phone,
- that I knew her message was a sincere and hopeful one. And it is not a rare
- disorder. Once called "yuppie flu", it was also thought to be the result of
- an infection with the Epstein Barr virus at one time. According to some
- estimates as many as 3 million Americans may be afflicted, and there is still
- no known cause or cure. According to the new definition of this syndrome,
- sufferers have a quick onset of fatigue that decreases their activity level by
- fifty percent for at least six months and have no other conditions diagnosed
- that can explain the symptoms. Other symptoms may include a mild fever,
- muscle weakness, headaches, joint pain, sore throat and sleep disturbances.
- With no definitive treatment the symptoms are treated with aspirin for muscle
- and joint aches and pains, sleeping pills to help sleep disturbance and low
- dose antidepressants to help overcome the general stress that accompanies the
- ailment. And there are many resources for more information about the current
- state of knowledge of the disease, as well as the availability of local
- chapters and support groups. Interested readers can contact one of these
- national associations: Chronic Fatigue Immune Dysfunction Syndrome Society,
- Box 230108, Portland, Oregon 97223; Chronic Fatigue and Immune Dysfunction
- Syndrome Association, Box 220938, Charlotte North Carolina, 28222; and the
- National Chronic Fatigue Association, 919 Scott Avenue, Kansas City, Kansas,
- 66105. All of the associations publish newsletters about the disease, have
- information about other informative publications, and support and know the
- locations of local patient support groups. While there were no support groups
- back in 1980, there are now literally hundreds all over the country to provide
- needed help and information.
-
- ----------------
-
- The material contained here is "FOR INFORMATION ONLY" and should not replace
- the counsel and advice of your personal physician. Promptly consulting your
- doctor is the best path to a quick and successful resolution of any medical
- problem.
-
-