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(83) Fri 8 Jan 93 2:10p
By: Gordon Gillesby
To: All
Re: UNITED NATIONS
----------------------------------------------------------------------
United Nations Sets World Agenda on Disability Issues
United Nations Recommends
Full Participation for People with Disabilities
(Number One in a Monthly Series)
On December 3, 1982, the United Nations General Assembly adopted
the "World Program of Action Concerning People with
Disabilities." It was about the same time that 1983 through 1992
was declared the United Nations Decade of Persons with
Disabilities. This is the first in a series of articles each
month that is intended to summarize some of the principles and
recommendations outlined in the World Program of Action
Concerning Persons with Disabilities (August 1992). The
following passages are direct quotes from the report:
The purpose of the World Program of Action Concerning
Persons with Disabilities is to promote effective measures
for prevention of disability, rehabilitation, and the
realization of the goals of "full participation" of persons
with disabilities equal to those of the whole population
and an equal share in the improvement in living conditions
resulting from social and economic development. These
concepts should apply with the same scope and with the same
urgency to all countries, regardless of their level of
development.
There are more than 500 million people in the world who have
disabilities as a consequence of mental, physical, or
sensory impairments. They are entitled to the same rights
as all other human beings and to equal opportunities. Too
often their lives are restricted by physical and social
barriers in society which hamper their full participation.
Because of this, millions of children and adults in all
parts of the world often face a life that is segregated and
debased.
Everywhere, the ultimate responsibility for remedying the
conditions that lead to disabling conditions and dealing
with the consequences of disability rests with Governments.
Governments should take the lead in awakening the
consciousness of populations regarding the gains to be
derived by individuals and society from the inclusion of
persons with disabilities in every area of social,
economic, and political life. Governments must also ensure
that people who are made dependent by severe disability
have an opportunity to achieve a standard of living equal
to that of their fellow citizens.
Though some countries may already have initiated or carried
out some of the actions recommended in this Program, more
needs to be done. This applies also to countries with a high
general standard of living.
Human Rights
As a first in a series covering several areas for action, human
rights is central to this historical document. Specific
recommendations made about human rights include:
To achieve the theme of the International Year of Persons
with Disabilities, "Full participation and equality," it is
strongly urged that the United Nations system make all its
facilities totally barrier-free, ensure that communication
is fully available to persons with sensory impairments and
adopt an affirmative action plan that includes
administrative policies and practices to encourage the
employment of persons in the entire United Nations system.
Priority should be placed on the use of United Nations
covenants, other instruments, and organizations within the
United Nations, e.g.: International Covenants on Human
Rights; the Economic and Social Council entrusted with the
examination of reports under the International Covenant on
Economic, Social and Cultural Rights; and the Commission on
Human Rights.
Incidents of gross violation of basic human rights,
including torture, can be a cause of mental and physical
disability. The commis-sion on Human Rights should give
considera-tion, inter alia, to such violations for the
purpose of taking appropriate ameliorative action.
The Commission on Human Rights should continue to consider
methods of achieving international cooperation for the
implementa-tion of internationally recognized basic rights
for all, including persons with disabilities.
Note: Future issues of Futurity will list specific
recommendations made in several areas, including: participation
of people with disabilities in decision-making; prevention;
equalization of opportunities; legislation; physical environment;
income maintenance and social security; education and training;
employment; recreation; and culture.
- - - - END ARTICLE - - - -
This article is a reprint from FUTURITY NEWSLETTER. Editorial
content may be reprinted with attribution to Futurity
Newsletter. Letters and editorial submissions are welcome.
For more information or to submit material for publication,
contact:
Roger Strand
Governor's Planning Council on Develomental Disabilities
Minnesota Department of Administration
300 Centennial Building
658 Cedar Street
St. Paul, MN 55155
612/296-9963
* Hey! Don't pick up that pho+>+Abe+++f
* Origin: DRAGnet - Disability Resources - (612) 753-1942
(1:282/1007)
----------------------------------------------------------------------
(109) Wed 13 Jan 93 12:31p
By: Gordon L. Gillesby
To: All
Re: NEVER SAY NEVER
----------------------------------------------------------------------
Never Say Never
New Jersey's "Johnstone" Closes
by Marc Mercer
Ada Lippens, Cynthia's mother, is very pleased at the new
opportunities in her daughter's life. "It's like a miracle from
heaven," she told me in a recent interview. "I never thought that
Cyndy would be able to do such things. I can't believe how she
has changed. She has grown stronger both physically and
emotionally. It just goes to show you--never say never."
On September 30, 1992, the last resident left Johnstone, a state-
operated residence in New Jersey. Ada Lippens, like other
Johnstone parents, was extremely upset by the closing and very
fearful for her daughter's future.
"I have been a grandmother eight times and I had never been to a
pumpkin patch," she said. "I don't know how to say this. This
time of year, I understand, all the vines start to die and the
pumpkins get bigger. Something has to die and go to the pumpkin.
Johstone had to close for this to happen. I am not sure that I
can explain just what I mean. It's like the things that support
us have to wither away sometimes before we can grow."
Yes, you read correctly. . . a pumpkin patch. I had gone to visit
Community Options, founded by Bob Stack, and discovered a
powerful demonstration of what you can do with a lot of
imagination and some aspirations for people with developmental
disabilities that stretch, rather than limit their potential. The
pumpkin patch is where Cynthia participates in supported
employment. At Johnstone, she had worked at the on-grounds
workshop making pens and packaging small items. "I liked it
okay, but, after 15 years, I wanted to leave," she said of her
life at Johnstone. Asked about her current job, she says, "I
love it. It's my job and I get paid for it." Cynthia is moving
on. She has a job interview at Bradlee's in the near future.
I asked Mrs. Lippen if she thinks that Cyndy will ever live on
her own. "Never say never," she reminded me.
It's society, really," she added. "Society needs to change.
People are afraid of people who are different. I think that
closing the institutions will change that. People will get to
know them and will understand that there is nothing to be afraid
of."
Marc Mercer is Senior Writer for the New Jersey Developmental
Disabilities Council. This article appeared in a special feature
edition about the closing of Johnstone, People with Disabilities,
October 1992, Vol. 2, No. 4. p. 27. Contact: The New Jersey
Developmental Disabilities Council, CN 700, 32 West State Street,
Trenton, New Jersey 08625-0700. 609/777-3238.
- - - - END ARTICLE - - - -
This article is a reprint from FUTURITY NEWSLETTER. Editorial
content may be reprinted with attribution to Futurity
Newsletter. Letters and editorial submissions are welcome.
For more information or to submit material for publication,
contact:
Roger Strand
Governor's Planning Council on Develomental Disabilities
Minnesota Department of Administration
300 Centennial Building
658 Cedar Street
St. Paul, MN 55155
612/296-9963
* !enif tsuj si gnihtyrevE
* Origin: DRAGnet - Disability Resources - (612) 753-1942
(1:282/1007)
----------------------------------------------------------------------
(122) Fri 15 Jan 93 7:29p
By: Mike Adams
To: Gordon L. Gillesby
Re: Re: NEVER SAY NEVER
----------------------------------------------------------------------
GLG> It's society, really," she added. "Society needs to change.
People are afraid of people who are different. I think that
closing the institutions will change that. People will get
to know them and will understand that there is nothing to be
afraid of."
The move away from institutions is present in a number of states.
Here in Oklahoma, one institution is being closed by court order,
and I'm sure others will soon follow. For the most part, all of
the reports I've heard about the folks being moved has been
positive. They're involved in activities formerly believed
beyond their abilities, and the general public's response has
been favorable.
With the possible exception of the institutional employees, of
course. Many of them are having to adjust their lives as
reductions in force take affect. However difficult that may be
for them, the evidence clearly shows the move to group homes and
other community environments is the way to go.
* Origin: Majik Shoppe Point 1 (1:19/10.1)
----------------------------------------------------------------------
(190) Thu 28 Jan 93 3:52a
By: Arlette Lefebvre
To: All
Re: Chronic fatigue news
----------------------------------------------------------------------
From September 1992 CFIDS Chronicle Physician's Forum (Published
by the CFIDS Assoc., PO Box 220398, Charlotte,NC 28222-0398)
Editor: Marc Iverson "Chronic Fatigue Syndrome: Recent Advances
in Diagnosis and Treatment"
David S.Bell, MD, FAAP, Harvard School of Medicine, Boston, Mass.
Chronic fatigue syndrome is a chronic debilitating illness that
affects both ad Whether chronic fatigue syndrome is psychological
or physiologic has been an is In the United States, the
controversy began in 1984 with an outbreak in Incline
DIAGNOSTIC CRITERIA
A working case definition of chronic fatigue syndrome published
in 1988 established:
TABLE ONE:
Diagnostic CRiteria for Chronic FAtigue Syndrome
Major Criteria:
- New onset of fatigue causing 50 percent reduction in activity for
at least six months - Exclusion of other illnesses that cause fatigue
Minor Criteria:
- Presence of 8 or the 11 symptoms listed, or - Presence of 6 of
the 11 symptoms and 2 of the 3 signs listed:
Symptoms: 1. Mild fever
2.Recurrent sore throat
3. Painful lymph nodes
4. Muscle weakness
5. Myalgia
6. Prolonged fatigue after exercise
7. Recurrent headache
8. Migratory arthralgia
9. Neuropsychological comp[laints
10. Sleep disturbance
11. Sudden onset of symptom complex
Signs
1. Low-grade fever
2. Nonexudative pharyngitis
3. Palpable or tender lymph nodes
(Adapted from Holmes et. al.(5)
Laboratory Workup for Patients with Suspected Chronic Fatigue
Syndrome Complete blood cell count Routine chemical analysis
Measurement of erythrocyte sedementation rate Thyroid function
studies Chest film Test for:
Antinuclear antibody
Rheumatoid factor
Lyme disease antibody
Hepatitis A and Ba antibodies
Human immunodeficiency virus antibody
FDA Authorizes HEM Pharmaceuticals to Initiate
Phase II/III Clinical Trial of Ampligen(t)
in Myalgic Encephalomyelitis (Chronic Fatigue Syndrome):
First Nucleic Acid Pharmaceutical to
Enter Phase II/III Clinical Testing Philadelphia,
Pennsylvania, Monday, October 19, 1992 -- HEM Pharma- ceuticals
Corporation today announced that it has been authorized by the U.S.
Food and Drug Administration to begin a Phase II/III study of Poly
I: poly C12U (Ampligen(t)), an investigational RNA therapeu- tic
developed by the Company, for the treatment of Myalgic Encephalo-
myelitis (ME), also known as Chronic Fatigue Syndrome. The Company
believes that Ampligen(t) is the first of the new class of nucleic
acid pharmaceuticals to enter advanced clinical trials. HEM
Pharma- ceuticals plans to begin enrolling patients by the end of
1992.
Au revoir, I hope...?
Arlette.
* Nothing is too wonderful to be true...with AbleLINK!
* ADAnet: Ability OnLine - Toronto Canada - 416/650-5411