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ABLEnews Review, July 1993: Resources
(8) Thu 1 Jul 93 1:20p
By: Trudy Grable
To: All
Re: Children with Special Needs
I am the parent of a child with special needs, I also work at the
Family Resource Center in San Jose, CA. We also have a BBS that is
focused on special needs and children. If you would like to contact
me at the bbs our modem # is 408/294-6933. Our voice phone is
408/288-5010. We serve all types of disabilities.
[posted on New Parents Network Nat'l BBS (602) 326-9345 Tuc, AZ
(1:300/31)]
(35) Fri 2 Jul 93 5:37p
By: Gordon Gillesby
To: All
Re: WHOLE COMMUNITY CATALOGUE
Publication: The Whole Community Catalogue: Welcoming People with
Disabilities into the Heart of Community Life, David Wetherow (Ed.),
Communitas, 1992. A collection of works from thinkers and doers at
the leading edge of a paradigm shift--eliciting and supporting caring
within the subtle fabric of human relationships. Communitas, Inc.,
P.O. Box 374, Manchester, Connecticut 06040. 203/645-8034.
[posted on DRAGnet - Disability Information 612/753-1943 (1:282/1007)]
(36) Fri 2 Jul 93 5:41p
By: Gordon Gillesby
To: All
Re: CHILDREN WITH TOURETTE'S
Publication: Children with Tourette Syndrome: A Parent's Guide,
Tracy Haerle (Ed.), Woodbine House (1992). Parents and professionals
describe Tourette Syndrome (a neurological disorder) addressing:
diagnosis and treatment, child development and education, legal rights
and remedies, support to families, and suggestions for further
reading. [This item may be purchased directly from the publisher:
Woodbine House, 5615 Fishers Lane, Rockville, MD 20852.
1-800-843-7323, toll-free.]
[posted on DRAGnet - Disability Information 612/753-1943 (1:282/1007)]
(50) Sun 4 Jul 93 1:52p
By: KEN GLICKMAN
To: ALL
Re: New Deaf BBS in Maryland!
Greetings to all from Deaf New World BBS (DNW) in Silver Spring, MD!
Give us a call at 301-587-2277, 8N1 up to 14.4 K baudwise.
DNW offers over 50 FidoNet Echo Conferences, various deaf-related
forums and products (such as TTY modems for PCs). Plus, much more!
See you at DNW!
[posted on Deaf New World, Silver Spring, MD 301-587-2278 V32b
(1:109/468)]
(68) Thu 8 Jul 93 4:36p
By: Gordon Gillesby
To: All
Re: ADA - PUTTING EMPLOYMENT
The following disability-related text file has been electronically
published by DRAGnet (612/753-1943; 1:282/1007; 94:6120/1;
16:612/33). It may be read online, downloaded or obtained by
file request (FREQ) using the filename:
ADA-PEPW.ZIP
The following brief description gives you some idea of the contents.
The Americans with Disabilities Act
Putting the Employment Provisions to Work
A White Paper of The Annenberg Washington Program
Peter David Blanck, Fellow
The Annenberg Washington Program
Communications Policy Studies
Northwestern University
CONTENTS
Executive Summary
Introduction
Overview of Title I of the ADA
A. Defining the Terms
B. The Challenges of Title I
Providing Information About the ADA
A. Information on Americans with Disabilities in the Work
Force
B. Information Emerging from Empirical Studies
C. Study I: Employees with Disabilities
D. Study II: Employers of People with Disabilities
Implications and Next Steps
A. What Have We Learned?
B. What Should We Learn?
Future Efforts
Selected Bibliography
Appendices
Appendix B: List of Sources for Further Information
Executive Summary
The Americans with Disabilities Act (ADA) of 1990 is the first
comprehensive federal law to address discrimination against an
estimated 43 million Americans with disabilities in the areas of
employment, public accommodations, and telecommunications. This
"White Paper" discusses the challenges involved in putting the
employment provisions of the ADA into practice by providing an
overview of the Act, examining empirical studies pertinent to the Act,
and exploring future challenges in implementing the Act.
Copyright 1993 The Annenberg Washington Program in Communications
Policy Studies of Northwestern University. Distributed by permission.
[posted on DRAGnet - Disability Information 612/753-1943 (1:282/1007)]
(69) Thu 8 Jul 93 4:40p
By: Gordon Gillesby
To: All
Re: NEW IDDP RELEASED
For Immediate Release: July 8, 1993
Contact:
Monte Mace
IDDP Publisher
3600 W. Timber Court
Lawrence KS 66049
Lawrence, KS--The new, revised and updated Third Edition of The
Illustrated Directory of Disability Products (formerly The Illustrated
Directory of Handicapped Products) was released today. Aside from
finding and ordering product, this directory is an important reference
tool for finding disability-related resources.
The directory, last updated in 1991, contains newly verified company
contact information (name, address, telephone) along with a 50-75 word
product descriptions for thousands of disability-related products
(many with photographs) and services. Over 500 new organizations have
been added since the last edition.
The IDDP has twenty-one chapters covering such things as: Manual
Wheelchairs (and accessories); Mobility Equipment; Power Chairs (and
accessories); Power Scooters; Stairlifts, Elevators, Transfer; Vehicle
Lifts, Chair Carriers; Communication Aids; Bathroom Hygiene and
Safety; Walking Assistance; Specialized Chairs; Cushions and Pressure
Sore Prevention; Adapted Vehicles, Ramps and Controls; Eating and
Drinking Assistance; Sprts, Exercise and Recreation; Home and Office
Equipment and Controls; Clothing and Dressing Aids; Pediatric
Products; Respiratory Products; Therapy Products; Multi-Product
Catalogs; and Disability-related Organizations.
[posted on DRAGnet - Disability Information 612/753-1943 (1:282/1007)]
(89) Mon 12 Jul 93 2:26p
By: Gordon Gillesby
To: All
Re: Local Lymes Resources
This message was from LYNN OLIVIER to ALL originally in conference
News and was forwarded to you by GORDON GILLESBY
Minnesota Lymes Information
------------------------
The Lyme Disease Network Phone Contacts: (612)
Twin Cities Support group meeting: Carol 574-0231
Second Tuesday of every Month Mary 470-6147
First Luthern Church Sherri 441-2857
1550 40th Av NE
Columbia Heights MN 55421.
Lyme Library Services
for list of articles available
send SSAE to:
Helen Schendel Phone: (612)
510 Second Ave SW Home 983-3579
Milaca MN 56353 Office 227-5600
For Outstate Support Groups and Information Services:
State Coordinator Barb Jones RN 5739 Rose Road Duluth MN 55881
Austin Support Group Cloquet Support Group Cook Support Group
Lisa Beech Alice Johnson RN Lynn Zakrajshek
1916 NE 4th Av 812 Prospect Av 2016 S Beatty Rd
Austin MN 55912 Cloquet MN 55720 Cook MN
(507) 433-6400 (218) 879-1688
Cook Support Group Duluth Support Group Brainard Support Group
Kristi Rolf Tom Grier Ellen Bristow
9619 Pine Lane 902 Granfview Route 2 Box 94
Britt MN 55710 Duluth MN 55812 Bachus MN 56435
(218) 749-1177 (218) 728-3914 (218) 587-4742
Grand Marais Hudson Wisconsin Lyme Disease Network
Rosemary Lamson RN (715) 386-5464 Carol Bolte
Cook County Health 4448 Jefferson St NE
Department Courthouse Columbia Hghts MN 55421
PO Box 1150 (612)574-0231
Grand Marais MN 55604 (Twin Cities)
(218) 387-2282
Int'l Falls Support Group Iron Maple Plain
Lisa Besch (218) 263-6021 (612) 972-3762
109 Wayside Lane
Int'l Falls MN 55649
(218) 283-9685
Mora Support Group Princeton Support Group Raymond
Jim McDonald Joyce Wenzel (612) 967-4306
Box 236, Rte 3 29908 108th St
Mora MN 55051 Princeton MN 55371
(612) 679-5201 (612) 389-4743
Sandstone Support Group Staples Support Group Superior WI
Myrna Nelson Karen Simon (715) 392-8545
Sandstone Medical Group HCR3 Box 72
Sandstone MN 55072 Staples MN 56479
(612) 245-5291 (218) 894-1420
Two Harbors Support Group Virginia Support Group Willmar Support Group
Gigi McMillan Lois Anderson Lynn Zimmer
615 11th Av 3710 Hwy 25 14250 90th St SW
Two Harbors MN 55616 Iron MN 55751 Raymond MN 56282
(218) 834-5496 (218) 263-6021 (612) 967-4306
Newsletters
Lymes Disease Update Lymelight
1511 N Stockwell Rd Lyme Disease Foundation
Evansville IL 47715 PO Box 462
Phone (812) 471-1990 Tolland CT 06084-0462
(203) 871-2900
Other Organizations:
Lyme Disease Coalition of Minnesota (LDCM Inc)
Dan/Laura Sawyer Lynn McMichael
3032 Sandy Hook Drive 1629 132nd Av NE
Roseville MN 55113 Blaine MN 55434
(612) 483-2464 (612) 755-4394
Committe for Lymes Legislation
3714 York Circle
Woodbury MN 55125
[posted on DRAGnet - Disability Information 612/753-1943 (1:282/1007)]
(118) Thu 15 Jul 93 2:30p
By: Gordon Gillesby
To: All
Re: FAMILY SUPPORT SYNDICATE
Family Support Syndicate Created
The Human Services Research Institute (HSRI) recently organized "The
Family Support Syndicate." The Syndicate is an information sharing
network that provides family support groups nationwide with an avenue
for exchanging ideas, concerns, and materials on current issues
affecting individuals with disabilities and their families. A range
of topics/issues will be addressed, such as: defining family support,
identifying exemplary practices, educating policy makers, financing
supports to families, and promoting legislative action.
To find out more about the Syndicate, contact: Kerri Melda, Human
Services Research Institute, 525 Glen Creek Road NW (k#230), Salem,
Oregon. 503/362-5682.
[posted on DRAGnet - Disability Information 612/753-1943 (1:282/1007)]
(120) Thu 15 Jul 93 2:38p
By: Gordon Gillesby
To: All
Re: UCPA + RADISSON = RESPITALITY
UCPA Plus Radisson Hotels Equals: RESPITALITY
United Cerebral Palsy Associations, Inc. and Radisson Hotels
International have teamed up to give a break to parents of children
who have cerebral palsy or a similar disability. Radisson Hotels
offer parents a weekend away while respite care providers care for
their children at home. "They love just being able to relax and renew
a commitment between husband and wife," said Jo Ann Erbes, executive
director of United Cerebral Palsy of Minnesota, Inc.
Respitality began in the Twin Cities two years ago. More than 100
families have benefitted from the program, and approximately 100 more
are on a waiting list. To be eligible for respitality, family income
and/or noted financial obligations which limit the opportunity for out
of home entertainment are considered. Priority is given to those with
cerebral palsy, who are between the ages of one year and 21 years of
age, and are living at home.
United Cerebral Palsy Association and Radisson Hotels International
started the program as a pilot project several year ago, and
respitality is now nationwide. The company's goal is to provide one
weekend per hotel per month. In Minnesota, five of the Twin Cities
Radisson Hotels are participating, some committing more than one
weekend per month.
While Radisson provides a room for the parents, the United Cerebral
Palsy of Minnesota provides parents with a grant to pay for a care
provider for their children at home.
For more information, contact: United Cerebral Palsy of Minnesota,
1821 University Avenue (#233-S), St. Paul, MN 55104. 612/646-7588, or
1-800-328-4827, Ext. 1437, toll-free. Publications
This article is from FUTURITY Newsletter and may be reprinted with
attribution; letters and submissions are welcome. For more
information or to submit material for publication, please contact:
Roger Strand
Governor's Planning Council on Develomental Disabilities
Minnesota Department of Administration
300 Centennial Building
658 Cedar Street
St. Paul, MN 55155
612/296-9963
[posted on DRAGnet - Disability Information 612/753-1943 (1:282/1007)]
(121) Thu 15 Jul 93 2:42p
By: Gordon Gillesby
To: All
Re: NO PITY - A NEW BOOK ON DISABILITIES
No Pity: People with Disabilities Forging a New Civil Rights
Movement, Joseph P. Shapiro. New York, New York: Times Books/Random
House, 1993.
While working as Associate Editor (recently promoted to Senior Editor)
for U.S. News and World Report, Joe Shapiro received the Alicia
Patterson Fellowship to conduct an in-depth study of the issues in the
lives of people with disabilities. No Pity represents the culmination
of his travels and interviews across the country. Shapiro observed
that the disability movement is far different than other comparable
human rights movements. It has no one leader or organization that can
claim to speak for all people with disabilities, and because of this
it has gone largely unnoticed by nondisabled people. "But by its
acceptance of differences, the campaign for disability rights has
forged a powerful coalition of millions of people with disabilities,
their families, and those who work with them," said Shapiro. "The
disability movement is a mosaic movement for the 1990s. Diversity is
its central characteristic."
Price: $xx.xx, U.S.A.; $xx.xx, Canada; plus 6% shipping and handling.
Payable to: Random House Order Dept., 400 Hahn Road, Westminster, MD
21157. 1-800-733-3000 (toll-free).
[posted on DRAGnet - Disability Information 612/753-1943 (1:282/1007)]
(175) Wed 21 Jul 93 5:09p
By: Gordon Gillesby
To: All
Re: LEGAL CENTER FOR MEDICAL
The National Legal Center for the Medically Dependent and Disabled,
Inc. was established in 1984 to support legal services attorneys and
legal aid offices in their efforts to represent the rights of persons
with disabilities to receive necessary and appropriate medical treatment
and care.
These persons include medically fragile newborns and infants,
residents of long term care facilities, and patients in medical
facilities or home care programs. Persons with disabilites --
especially those with AIDS, brain injury, and severe physical
impairments -- are particularly vulnerable to discrimination in the
provision of health care services based on prejudicial assessments of
quality of life, expense or the burden of accommodation.
The National Legal Center is primarily concerned with disability-
related discrimination which denies essential life-preserving treatment
and care. It operates with four primary objectives:
1. To insure that the right of indigent persons to receive
beneficial medical treatment regardless of age, health,
funtion, dependency, or disability is adequately represented
and fully protected.
2. To advise legal services and pro bono attorneys on the legal
and medical issues arising in medical discrimination cases and
to equip them to provide effective assistance.
3. To gather and disseminate the latest information on legal and
medical developments regarding medically dependent persons.
4. To coordinate efforts of legal services and pro bono attorneys
by eliminating duplicate research.
Services include: technical assistance through legal research,
preparation of appellate briefs, consultation on litigation strategy,
and the development and maintenance of an expert witness talent bank.
They also offer a quarterly publication "Issues in Law and Medicine",
national conferences and litigation manuals that contain up-to-date
materials on recent court rulings and federal and state statues and
regulations.
If you have a question about the ADA or other civil rights
protections for medically dependent persons with disabilities, please
contact:
National Legal Center for the Medically Dependent and Disabled, Inc.
Litigation Office
50 South Meridian Street
Suite 605
Indianapolis, IN 46204-3541
317/632-6245
317/632-6542 (fax)
[posted on DRAGnet - Disability Information 612/753-1943
(1:282/1007.0)]
(243) Tue 27 Jul 93 3:45p
By: Gordon Gillesby
To: All
Re: TOLL-FREE ADA HELP
FYI.... ADA Information Line
The U.S. Department of Justice has awarded a grant to the Disability
Rights Education and Defense Fund (DREDF) to establish a toll-free
telephone service providing technical assistance on the Americans with
Disabilities Act to businesses, state and local government entities,
persons with disabilities, and their advocates.
The service began December 1, 1991 and will be available from 9:00
a.m. to 4:30 p.m. Pacific time. Spanish-speaking staff are available.
The toll-free number is; (800) 466-4ADA (466-4232) Voice/TTY.
[posted on DRAGnet - Disability Information 612/753-1943
(1:282/1007.0)]
(244) Tue 27 Jul 93 3:48p
By: Gordon Gillesby
To: All
Re: 4-H AND CHILDREN W/DISABILITIES
FYI.... 4-H and Children with Disabilities
The Department of 4-H Youth and the Breaking New Ground Resource
Center at Purdue University have developed a leader's guide for use by
4-H professional and volunteers as they work to involve more youth
with disabilities in the 4-H program. In addition to the leader's
guide, two brochures have been developed. One brochure is designed
for 4-H professionals and volunteers and the other is oriented towards
the parents of youth with disabilities.
The leader's guide contain sections on laws pertaining to
mainstreaming; definitions of mainstreaming and types of disabilities;
suggestions for involving youth with disabilities in 4-H projects and
activities; and recruiting youth with disabilities into the 4-H
program. The leaders' guide, although written for 4-H professionals
and volunteers, contains information which could be used by anyone
wishing to encourage greater participation by people with
disabilities.
For additional information on the "Perfect Fit" material please
contact: Roger Tormoehlen, Extension Specialist, 4-H Youth, AGAD
Building, Purdue University, West Lafayette, IN 47907. (317)
494-8429.
[posted on DRAGnet - Disability Information 612/753-1943
(1:282/1007.0)]
(260) Wed 28 Jul 93 8:03a
By: Gordon Gillesby
To: All
Re: EVACUATING IN CASE OF EMERGENCY
FYI... Emergency Evacuation
Evacuation in case of emergency is a major concern for both employees
with disabilities and their employers. A 14-minute training video,
"Everybody Needs a Buddy Sometime," produced by DCSAR, Boston for the
Defense Logistics Agency, examines the issue of evacuation in case of
fire and offers several concrete suggestions for developing evacuation
plans. The video may be borrowed for a free screening by contacting
Paula Sotnik, Seaside Education Associates, Inc., P.O. Box 341,
Lincoln Center, Massachusetts 01733; (617) 893-7990. Seaside Education
Associates, Inc., makes copies of the video available for loan under
the sponsorship of the Massachusetts Developmental Disabilities
Council.
[posted on DRAGnet - Disability Information 612/753-1943
(1:282/1007.0)]
...For further information, contact CURE, 812 Stephen Street, Berkeley
Springs, West Virginia 25411 (304-258-LIFE/258-5433).