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Contents

Introduction

How to use the Resource Guide

Nonprofit organizations

Action on Smoking and Health

Al-Anon/Alateen Family Group Headquarters, Inc.

Alan Guttmacher Institute, The

Alcohol Research Information Service

Alcoholics Anonymous

Alliance of Genetic Support Groups

Alzheimer's Association

American Anorexia/Bulimia Association, Inc.

American Board of Medical Specialties

American Cancer Society

American Diabetes Association

American Fertility Society, The

American Heart Association

American Institute of Stress

American Liver Foundation

American Lung Association

American Red Cross

American Running and Fitness Association

American Social Health Association

American Speech-Language-Hearing Association

American Tinnitus Association

American Trauma Society

American Yoga Association

Aquatic Exercise Association, Inc.

Arlin J. Brown Information Center, Inc., The

Arthritis Foundation

Association for Macular Diseases, Inc.

Association of Birth Defect Children, Inc.

Asthma and Allergy Foundation of America

Better Hearing Institute

Cesareans/Support Education and Concern

CFIDS Association of America, Inc., The

Children of Aging Parents

Choice in Dying

Citizens for Public Action on Blood Pressure and Cholesterol

Cooley's Anemia Foundation

Coronary Club, Inc., The

EAR Foundation

Endometriosis Association

Epilepsy Foundation of America

Fitness Motivation Institute of America

Foundation for Glaucoma Research

Glaucoma Foundation, The

Health Education Foundation

Human Kinetics Publishers

Huntington's Disease Society of America

Hysterectomy Educational Resources and Services Foundation (HERS)

Impotence World Services

Informed Homebirth/ Informed Birth and Parenting

International Center for the Disabled

International Foundation for Homeopathy

International Stress Management Association

Interstitial Cystitis Association

Leukemia Society of America, The

Living Bank, The

Lupus Erythmetosus Support Club

Lupus Foundation of America, Inc.

Lupus Network

March of Dimes Birth Defects Foundation

Maternity Center Association

Medic Alert Foundation International

Melpomene Institute for Women's Health Research

Mended Hearts, Inc., The

Muscular Dystrophy Association

National Adrenal Diseases Foundation

National Association for Sickle Cell Disease, Inc.

National Association for Visually Handicapped

National Association of Anorexia Nervosa and Associated Disorders

National Center for Nutrition and Dietetics

National Council Against Health Fraud, Inc., The

National Council on Alcoholism and Drug Dependence, Inc.

National Council on Patient Information and Education

National Down Syndrome Congress

National Foundation for Infectious Diseases

National Headache Foundation

National Head Injury Foundation

National Hypoglycemia Association

National Institute of Hypertension Studies

National Insurance Consumer Helpline

National Kidney Foundation

National Multiple Sclerosis Society

National Organization for Rare Disorders

National Osteoporosis Foundation

National Perinatal Association

National Psoriasis Foundation

National Reye's Syndrome Foundation

National Safety Council

National Scoliosis Foundation

National Sleep Foundation

National Society to Prevent Blindness

National Spinal Cord Injury Association

National Stroke Association

National Tay-Sachs and Allied Diseases Association

National Vaccine Information Center

National Women's Health Resource Center

Natural Food Associates

North American Vegetarian Society

Overeaters Anonymous

Paget Foundation, The

Parkinson's Educational Program - PEP·USA

Phoenix Society for Burn Survivors, The

Physicians Who Care

Polio Society, The

PMS Access

Public Citizen Health Research Group

Rehabilitation International

Resolve, Inc.

Rose Kushner Breast Cancer Advisory Center

Self Help for Hard of Hearing People

Spina Bifida Association of America

Spondylitis Association of America

Strang Cancer Prevention Center/National High Risk Registry

Sudden Infant Death Syndrome (SIDS) Alliance

TOPS Club, Inc.

United Cerebral Palsy Associations, Inc.

Women's Sports Foundation

World Health Organization

World Research Foundation

Y-ME National Organization for Breast Cancer Information and Support

Government Organizations

Alzheimer's Disease Education and Referral Center

Cancer Information Service

Center for Chronic Disease Prevention and Health Promotion

Centers for Disease Control

Center for Environmental Health and Injury Control

Center for Infectious Diseases

Center for Prevention Services

Clearinghouse on Disability Information

Consumer Information Catalog

Family Life Information Exchange

Food and Drug Administration

Food and Nutrition Information Center

Food Safety and Inspection Service

Government Printing Office

Health Care Financing Administration

Human Nutrition Information Service

Indian Health Service

National AIDS Information Clearinghouse

National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse

National Center for Education in Maternal and Child Health

National Center for Health Statistics

National Diabetes Information Clearinghouse

National Digestive Diseases Information Clearinghouse

National Eldercare Institute on Health Promotion

National Eye Institute

National Heart, Lung, and Blood Institute Education Programs Information Center

National Information Center for Children and Youth with Disabilities

 National Information Center for Orphan Drugs and Rare Diseases

National Injury Information Clearinghouse

National Institute of Allergy and Infectious Diseases

National Institute of Child Health and Human Development

National Institute of Dental Research

National Institute of Environmental Health Sciences

National Institute of Mental Health

National Institute of Neurological Disorders and Stroke

National Institute on Aging Information Center

National Institute on Deafness and Other Communication Disorders Information Clearinghouse

National Kidney and Urologic Diseases Information Clearinghouse

National Library of Medicine

National Maternal and Child Health Clearinghouse

National Rehabilitation Information Clearinghouse

National Sudden Infant Death Syndrome Resource Center

National Worksite Health Promotion Resource Center

Occupational Safety and Health Administration

Office for Substance Abuse Prevention's National Clearinghouse for Alcohol and Drug Information

Office of Disease Prevention and Health Promotion National Health Information Center

Office of Minority Health Resource Center

Office on Smoking and Health

President's Council on Physical Fitness and Sports

Rural Information Center

Toxic Substances Control Act Assistance Information Service


How to use the Resource Guide

The Resource Guide contains a list of many health related organizations. Although there are many organizations listed here, this is only a sampling of the hundreds of organizations that exist to help you with your health needs. The list is divided into two sections, nonprofit and government organizations.

Phone hours are listed with the following abbreviations:

EST=Eastern Standard Time

CST=Central Standard Time

MST=Mountain Standard Time

PST=Pacific Standard Time

If the letters TDD, TTY or TT appear after a phone number, this indicates that the phone line has services for deaf or hard of hearing people.


Action on Smoking and Health

2013 H Street, NW

Washington DC  20006

(202) 659-4310

9:00am - 5:00pm, EST, Monday - Friday

Action on Smoking and Health (ASH) is a national nonprofit scientific and educational organization fighting for the rights of nonsmokers against the many problems of smoking. Using the tremendous power of legal action to represent nonsmokers in courts and legislative bodies and before regulatory agencies, ASH has been tremendously successful during the past quarter century. Although its income is tiny compared with the big national health organizations also active in this field, ASH has been a major factor in the war against smoking. For this reason, and because of its location in the nation's media center, ASH has also emerged as a major spokesperson for nonsmokers on radio and television and in the print media. Unlike the major national health organizations, ASH is concerned only with the problems of smoking. Unlike the many smaller state, local and specialty antismoking organizations with which it cooperates closely, ASH is active with regard to all aspects of the problems of smoking and smoker's rights, and has a truly national focus.

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Al-Anon/Alateen Family Group Headquarters, Inc.

P.O. Box 862, Midtown Station

New York, New York  10018-0862

1-800-344-2666

(202) 302-7240

FAX: (212) 869-3757

8:00am - 6:00pm, EST, Monday - Friday

Al-Anon and Alateen are a free, non-professional, self-help, 12 Step programs that offer help to families and friends of alcoholics whether the alcoholic is still drinking or not. It is a fellowship of men, women, and children whose lives have been or continue to be affected by the problem drinking of a family member or friend. Both programs offer free literature on alcoholism. Call their toll-free line for meeting information in your locality.


Alan Guttmacher Institute, The

111 Fifth Avenue

New York, New York  10003

(212) 254-5656

FAX: (212) 614-9203

9:00am - 5:00pm, EST, Monday - Friday

The Alan Guttmacher Institute is an independent, nonprofit organization focusing on reproductive health. Using research, policy analysis and public education, it translates facts into action in both the United States and worldwide. Their mission is to promote the prevention of unintended pregnancies, to guarantee the freedom to terminate unwanted pregnancies, to protect reproductive capacity and to promote the achievement of wanted pregnancies, to foster women's health and well-being before, throughout, and after pregnancy and childbirth, and to promote the birth of healthy infants. They have a number of publications (periodicals, books, and other materials) for sale to the general public.


Alcohol Research Information Service

1106 E. Oakland Avenue

Lansing, Michigan  48906

(517) 485-9900

FAX: (517) 485-1928

9:00am - 5:00pm, EST, Monday - Friday

The Alcohol Research Information Service is a nonprofit organization whose purpose is to collect, correlate and disseminate information regarding alcohol and alcoholic products, their manufacture, sale and use for beverage, industrial or other purposes, and their relation to the health and well-being of the United States. It admits to a bias, defined as an alterable conclusion based on a half century of research, that the result of human use of beverage alcohol, individually and collectively, has a net harmful effect.


Alcoholics Anonymous

Grand Central Station

P.O. Box 459

New York, New York  10163

(212) 870-3119 (Public Information Desk)

(212) 870-3199 (TTY)

FAX: (212) 870-3003

9:00am - 4:30pm, EST, Monday - Friday

Check white pages for local A.A. chapter

Alcoholics Anonymous (A.A.1) was founded in 1935, and today has over two million members across the world. A.A. is a fellowship of men and women who share their experience, strength and hope with each other that they may solve their common problem and help others to recover from alcoholism. The only requirement for membership is a desire to stop drinking. There are no dues or fees for A.A. membership; they are self-supporting through their own contributions. A.A. is not allied with any sect, denomination, politics, organization or institution; does not wish to engage in any controversy, neither endorses nor opposes any causes. Their primary purpose is to stay sober and help other alcoholics to achieve sobriety.

(1registered trademark of A.A. World Services, Inc.)


Alliance of Genetic Support Groups

35 Wisconsin Circle, Suite 440

Chevy Chase, Maryland  20815

1-800-336-GENE (1-800-336-4363)

(301) 652-5553

FAX: (301) 654-0171

9:00am  - 5:30pm, EST, Monday - Friday; answering machine on always

The Alliance of Genetic Support Groups (AGSG), founded in 1986, is a national coalition of genetic support groups, concerned individuals and involved health care providers. AGSG maintains strong linkages with voluntary, governmental and professional organizations on the local, regional and national levels in order to fulfill their mission to promote the sharing and prompt dissemination of new information, strategies, and technologies related to genetic services. They link families whenever possible to the appropriate support group or needed services, such as genetic counseling. AGSG also serves as a forum for addressing the needs of individuals and families affected by genetic disorders from a national and cross disability perspective. AGSG publications include monthly Alert, and resource materials including the Peer Support Training Resource Guide, the Health Insurance Resource Guide, and the Directory of National Voluntary Genetic Organizations.


Alzheimer's Association

919 N. Michigan Avenue, Suite 1000

Chicago, Illinois  60611-1676

1-800-272-3900 (toll-free information and referral service)

(312) 335-8700

(312) 335-9602 (Benjamin B. Green-Field National Alzheimer's Library and Resource Center)

(312) 335-8882 (TDD)

FAX (312) 335-1110

8:30am - 5:00pm, CST, Monday - Friday; voice mail after hours

The Alzheimer's Association promotes research to find a cause, cure and treatment of Alzheimer's disease and related disorders; provides educational programs and produces educational materials for the public, media, and health care professionals; represents continuing care needs of the affected population before government and social service agencies; works to develop family support systems for families of victims of the disease; sponsors educational forums; operates a speaker's bureau; presents Faculty Scholar Awards and research grants. The Association was founded in 1980. It works through a network of 220 chapters, 16,000 support groups and more than 35,000 volunteers nationwide. Published information includes the Alzheimer's Association Newsletter, Advances in Alzheimer Research Newsletter, Research and Practice Newsletter, Public Policy Update Newsletter, plus several pamphlets, fact sheets, handbooks, kits, videotapes, etc. A Public Catalog that lists the Alzheimer's Association materials can be received from the toll-free information and referral service. The Benjamin B. Green-Field Library also produces bibliographies on specialized topics and research assistance.


American Anorexia/Bulimia Association, Inc.

418 East 76th Street, #3B

New York, New York  10021

(212) 734-1114

9:00am - 5:00pm, EST, Monday - Friday; 24-hour answering machine

The American Anorexia and Bulimia Association, Inc. (AABA) is the oldest national nonprofit organization for the prevention, treatment and cure of eating disorders. Its mission to help sufferers, as well as their families and friends, is carried out through extensive services including: support groups, referral network, recovery panels, public information, educational programs, professional training, and research support. Since its founding in 1979, AABA has been guided by a Board of professionals in partnership with recovered patients and family members. AABA's Advisory Council is made up of national experts from leading research centers. As a unique source of information on the growing field of eating disorders, AABA answers more than 20,000 inquiries each year from patients, professionals, schools, media and the general public.


American Board of Medical Specialties

180 Allen Road, South Building, Suite 300

Atlanta, Georgia  30328

1-800-776-CERT (2378)

9:00am - 6:00pm, EST, Monday - Friday (Caller needs to know full name of physician)

The American Board of Medical Specialties (ABMS) is a nonprofit organization sponsoring the ABMS Public Education Program. The ABMS is the advisory board over the 24 specialty boards recognized by the American Medical Association. To become certified in a specialty after completion of medical school, physicians complete three to seven years of additional training and pass written and oral exams. The ABMS certification line operators tell the caller whether or not a physician is board-certified, the year certified and the board or boards under which a physician has received certification. If a caller requests the name of a board-certified specialist, the operator directs them to the listing page number in their community yellow page directory where a partial list of board-certifitied physicians appears under the ABMS trademark.


American Cancer Society

1599 Clifton Road, NE

Atlanta, Georgia  30329-4251

1-800-ACS-2345 (227-2345)

(404) 320-3333

9:00am- 5:00pm, PST, Monday - Friday

The American Cancer Society (ACS) is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives from cancer, and diminishing suffering from cancer through research, education, and service. Their programs include: support of medical and scientific research into all aspects of cancer; education to inform the public about cancer and to tell them about prevention and early detection, as well as risk reduction; education of medical professionals to ensure active support of Society programs and to provide information on the best possible techniques of cancer prevention, detection, and management; service and rehabilitation programs which provide practical help and emotional support to ease the impact of cancer on patients and their families; and collection of statistical and epidemiological information about cancer. The ACS has divisions in each state and over 3000 local units. Contact your local ACS, or call the toll-free number, for more information about cancer or the ACS and its programs. Publications they produce are: CA - A Cancer Journal for Clinicians (six times a year), Cancer (twice a month), Cancer Facts and Figures (annually), and numerous other publications and brochures for professionals, patients, and the general public.


American Diabetes Association

1660 Duke Street

Alexandria, Virginia  22314

1-800-ADA-DISC (232-3472)

(703) 549-1500

Telex: 901132

FAX (703) 836-7439

8:30am - 5:00pm, EST, Monday - Friday

The American Diabetes Association is the nation's leading voluntary health organization concerned with diabetes and its complications. Founded in 1940 as a medical society and reorganized in 1969 to increase its ability to serve the public, today the Association is a full-service nonprofit organization. Their reach extends worldwide to more than 70 countries. At home, their more than 800 affiliates and chapters conduct programs in all 50 states and Puerto Rico. The mission of the American Diabetes Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. They fund research, publish the latest scientific findings, and urge lawmakers to support critical funding for diabetes research and programs. They also provide education and other services to people with diabetes, their families, health care professionals, and the public.


American Fertility Society, The

1209 Montgomery Highway

Birmingham, Alabama  35216-2809

(205) 978-5000

FAX: (205) 978-5005

8:30am - 4:30pm, CST, Monday - Friday

The American Fertility Society (AFS) is a voluntary nonprofit organization devoted to advancing knowledge and expertise in reproductive medicine and biology.  Established in 1944, the Society has since achieved national as well as international recognition as the foremost organization promoting the study of reproduction and reproductive disorders.  Although a professional organization, they do offer patient education brochures on reproductive medicine and health care decision making.  Examples of these are: Infertility: An Overview, Endometriosis, Laparoscopy and Hysterectomy, and Male Infertility.


American Heart Association

7272 Greenville Avenue

Dallas, Texas 75231-4596

1-800-242-8721

(214) 373-6300

FAX (214) 706-1341

8:30am - 5:00pm, all time zones, Monday - Friday

The American Heart Association (AHA) was established in 1924 by six prominent cardiologists concerned about the lack of information about heart disease. In 1948 the AHA changed from being a primarily a medical association to a voluntary health organization involving people from many professions. Today the AHA is one of the world's premier health organizations with about 3.5 million volunteers. They are either involved nationally or with the association's nearly 2,000 state and metropolitan affiliates, divisions, and branches. The areas where the AHA concentrates both its volunteer and its physical resources are cardiovascular research, cardiovascular education, and revenue generation. The AHA provides money to support scientists and their projects. Results of research funded by the AHA and others are presented to the public and to health professionals through a wide range of educational and community programs conducted by the association. The money to support research and educational and community programs is derived primarily from contributions by individuals and from other sources such as corporations and foundations.


American Institute of Stress

124 Park Avenue

Yonkers, New York 10703

1-800-24-RELAX (1-800-247-3529) (cannot be accessed from the states of California or New York)

(914) 963-1200

FAX: (914) 965-6267

9:00am - 5:00pm, EST, Monday - Friday

The American Institute of Stress is a nonprofit organization founded in 1978 to serve as a clearinghouse on all stress related matters for the public and private sectors. They publish a monthly newsletter, conduct conferences, and maintain an up-to-date library of articles culled from scientific and lay literature from which reprints can be ordered.


American Liver Foundation

1425 Pompton Avenue

Cedar Grove, New Jersey  07009

1-800-223-0179 (information hotline)

(201) 256-2550

8:30am - 4:30pm, EST, Monday - Friday

The American Liver Foundation (ALF) is the only national volunteer health agency dedicated to fighting all liver diseases--over 100--though research, education, and patient self-help groups. The ALF awards fellowships to stimulate research on liver functions and diseases; brings information on liver health to millions of Americans through radio, television and printed materials; serves as a trustee for liver transplant funds; monitors pending legislation, encouraging research programs and government sensitivity to the needs of liver patients; provides supports groups for liver patients and their families and grassroots educational programs, including substance abuse programs, through local chapters; provides an toll-free information/referral hotline. The ALF presently has more than 21,000 members including physicians, other health professionals, patients, and supporters. There are 28 chapters nationwide, organized and operated by lay volunteers. The ALF is supported solely by private and corporate contributions.


American Lung Association

1740 Broadway

New York, New York  10019-4374

(212) 315-8700

9:00am - 5:00pm, EST, Monday - Friday

The American Lung Association (ALA) is dedicated to fighting lung disease, the third leading cause of death in the U.S., and seeks the eradication and control of tuberculosis and chronic obstructive pulmonary diseases, including chronic bronchitis, asthma, and emphysema. It develops materials and programs for professional publication, research, and advocacy in four major areas: (1) occupational health, (2) clean air conservation, (3) smoking and health, and (4) pulmonary disease. Printed materials, films and resource materials on emphysema, chronic bronchitis, asthma, air pollution, smoking and health, tuberculosis, and other lung disease are available free to lay and medical persons. Several pamphlets are available in Spanish. Local and constituent lung associations maintain local directories of facilities and direct care providers, and act as lung information and referral centers. For information, contact the ALA national headquarters at the above address or a local lung association listed in the telephone book.


American Red Cross

18th and D Streets NW

Washington DC  20013

Call your local chapter

The American Red Cross is the nation's foremost volunteer emergency services organization, helping to prevent and relieve human suffering. The mission of the Red Cross is to improve the quality of human life; to enhance self-reliance and concern for others; and to help people avoid, prepare for, and cope with emergencies. It does this through services that are governed and directed by volunteers and are consistent with its congressional charter and the principles of the International Red Cross. There are nearly 2800 chapters throughout the United States and its territories.


American Running and Fitness Association

4405 East-West Highway, Suite 405

Bethesda, Maryland 20814

1-800-776-ARFA (2732)

(301) 913-9517

FAX: (301) 913-9520

The American Running and Fitness Assocation (ARFA) is a nonprofit education association of athletes and sports medicine professionals who came together to educate and motivate people to exercise. Their public service programs include a sports medicine professional referral, a running shoe database, speakers bureau, as well as a publication on sports injuries, training and healthful lifestyles. Some services are free, some require minimal charges or ARFA membership.


American Social Health Association

P.O. Box 13827

Research Triangle Park, North Carolina  27709

(919) 361-8400

(919) 361-8422 (to order educational materials)

FAX: (919) 361-8425

Hotlines:

National STD Hotline: 1-800-227-8922 (8:00am - 11:00pm, EST, Monday - Friday)

National Herpes Hotline: (919) 361-8488 (9:00am - 7:00pm, EST, Monday - Friday)

National AIDS Hotline (English language service): 1-800-342-AIDS (1-800-342-2437) (24 hours)

National AIDS Hotline (Spanish language service): 1-800-344-7432 (8:00am -2:00am, EST, Monday - Friday)

National AIDS Hotline (TTY): 1-800-243-7889 (10:00am -10:00pm, EST, Monday - Friday)

These lines are very busy - the best times to call are on a weekday 6:00am to 8:00am or after 10:00pm, EST

The American Social Health Association (ASHA) is a national nonprofit agency that has been a leader in the fight against sexually transmitted diseases (STDs) since 1913. The ASHA operates hotlines to give basic information to the general public. AHSA's information services are complimented by a series of pamphlets developed to give basic information on symptoms, testing, treatment, and prevention for the major STDs. These publications feature accurate, up-to-date information to help the public deal rationally and realistically with STDs. The ASHA operates the Herpes Resource Center (HRC), offering support education and referral for anyone concerned about herpes, as well as HELP (self-help/support) groups for people living with herpes. The AHSA also operates the HPV Support Program (human papilloma virus--for those who have genital warts which are caused by this virus) which disseminates information and educational materials about HPV and sponsors HELP groups for people with this viral infection.


American Speech-Language-Hearing Association

10801 Rockville Pike

Rockville, Maryland  20852

1-800-638-8255 (Helpline)

(301) 897-5700

10:00am - 4:00pm, EST, Monday - Friday; callers can leave a message with their requests at any other time

Founded in 1925, the American Speech-Language-Hearing Association (ASLHA) is a national professional, scientific and credentialing association of speech-language pathologists and audiologists, the professionals who treat communication disorders. ASLHA's mission is to ensure that all people with speech, language and hearing disorders have access to quality services to help them communicate more effectively. Through the toll-free Helpline and written correspondence ASLHA provides information about speech and hearing disorders and referrals to speech-language pathologists and audiologists. Informational brochures are available (free of charge) on speech, language or hearing problems.


American Tinnitus Association

P.O. Box 5

Portland, Oregon  97207

(503) 248-9985

FAX (503) 248-9076

8:30am - 12:00pm and 1:00pm - 5:00pm, PST, Monday - Friday

The purpose of the American Tinnitus Association (ATA), founded in 1971, is to carry on and support research and educational activities relating to the treatment of tinnitus (the medical term for ringing in the ears and head noises) and other defects or diseases of the ear. ATA provides information and referral to hearing professionals, supports tinnitus self-help groups nationwide, provides a bibliography service, supports scientific research about tinnitus, promotes public education concerning tinnitus and its prevention (through hearing protection). Publications available include informational pamphlets, a quarterly journal -Tinnitus Today, and the Tinnitus Bibliography, a list of over 2000 writings related to tinnitus, updated annually.


American Trauma Society

8903 Presidential Parkway, Suite 512

Upper Marlboro, Maryland 20772-2656

1-800-556-7890

(301) 420-4189

FAX: (301) 420-0617

9:00am - 5:00pm, EST, Monday - Friday

Individual membership in the American Trauma Society (ATS) makes one an active participant in the national effort to reduce trauma. Trauma is any physical injury caused by violence or other forces. Most often, trauma is caused by motor vehicle crashes, falls, drowning, firearms, or fire and burns. The National Trauma Society engages in grassroots trauma prevention and awareness activities such as: National Trauma Awareness Month and programs which promote bicycle helmets, violence prevention, safe driving, and injury prevention at home. These efforts, and others, help to lessen your chance of injury. Membership privileges include a one year subscription to the ATS newsletter Traumagram, which features trauma prevention tips and programs, legislative updates and member and state division activities; membership in an ATS division (where applicable); discounted registration fees for the ATS Annual Meeting held each year to share the latest information on trauma treatment and prevention; discounts on purchases of trauma prevention and awareness materials listed in the ATS Materials Resource Catalog.


American Yoga Association

513 S. Orange Avenue

Sarasota, Florida  34236

1-800-226-5859

(813) 953-5859

9:00am - 1:00pm, EST, Monday - Friday

The American Yoga Association (AYA) is a nonprofit, educational organization founded in 1972. Their goal is to provide safe, effective and comprehensive instruction in Yoga techniques to promote health and well being. Besides traditional Yoga classes and seminars, the curriculum includes Easy Does It Yoga for those with physical limitations, and a stress management program for the business community. Products include the American Yoga Association Beginner's Manual (Simon & Schuster, 1987), a 2-tape audiocassette set called Complete Relaxation and Meditation, and a forthcoming basic Yoga videotape.


Aquatic Exercise Association, Inc.

P.O. Box 497

Port Washington, Wisconsin  53074

(414) 284-3416

FAX: (414) 284-1944 (24 hours)

9:00am - 3:45pm, CST, Monday - Friday

The Aquatic Exercise Association, Inc. (AEA) is dedicated to the professional development and continued success of their members in the aquatic fitness and aquatic therapy industries. They are a resource center, providing information through conventions, workshops and instructor certification. They publish a bi-monthly newsletter, the AKWA letter, and they offer books and videos on aquatic fitness and therapy for both professionals and the general public through their mail order service, AKWA Bookstore.


Arlin J. Brown Information Center, Inc., The

P.O. Box 251

Ft. Belvoir, Virginia  22060

(703) 752-9511

24 hours a day, 7days a week

The Arlin J. Brown Information Center, founded in 1963, is a nonprofit scientific, educational, humanitarian, membership organization. The Center is a clearinghouse for information on natural and non-toxic health modalities, with emphasis on cancer. The primary goal of the Center is to achieve total victory over cancer ignorance as quickly as possible. One of their publications is "March of Truth on Cancer" by Arlin J. Brown, a comprehensive handbook of the most valuable who-what-where information on 80 cancer treatments, plus home remedies. The Center also publishes the Health Victory Bulletin, a monthly newsletter which keeps readers informed about the latest developments on cancer and health.


Arthritis Foundation

P.O. Box 19000

Atlanta, Georgia  30326

1-800-283-7800

9:00am - 7:00pm, EST, Monday - Friday

The Arthritis Foundation is a nonprofit, voluntary health agency. The Foundation supports research to find cures and preventions for arthritis and provides services to improve the quality of life for those affected by arthritis. The Foundation is the source for information on arthritis, publishing a wide variety of books, brochures, and videotapes for both consumers and health professionals. Consumers can also call the Foundation's 800# or write the P.O. Box for answers to questions about arthritis, Foundation services, or locations for local chapters. Services include information and referral, education and exercise classes, support groups, and advocacy.


Association for Macular Diseases, Inc.

210 East 64th Street

New York, New York 10021

(212) 605-3719

9:00am - 5:00pm, EST, Monday - Friday

The Association for Macular Disease, Inc. is a nonprofit corporation organized to promote research and education in the scarcely-explored field of macular diseases (the macula lies at the very center of the retina of the eye and controls central visual acuity). Today they act as a nationwide support group for individuals and their families endeavoring to adjust to the restrictions and changes brought about by macular disease. Through their newsletter they counsel those afflicted, issue updates and medical advances as they occur, and keep the membership advised on newest developments on low-vision aids. Their long range goal to establish an eye bank devoted exclusively to research on macular problems is now in place. Members and their families are encouraged to make a posthumous donation of their eyes for special laboratory study devoted to macular degeneration alone. They are the only organization solely concerned with the entire macular spectrum.


Association of Birth Defect Children, Inc.

5400 Diplomat Circle, Suite 270

Orlando, Florida  32810

(407) 629-1466

9:00am - 4:00pm, EST, Monday - Friday

The Association of Birth Defect Children (ABDC), a national nonprofit organization, was established to provide information and support about birth defects associated with drugs, chemicals, radiation, and other environmental agents. ABDC disseminates information through an inquiry response service and a quarterly newsletter. The inquiry response service is provided at no cost, and there is a nominal annual donation for the newsletter. ABDC also gathers data through a national consumer's Birth Defects Registry that collects information about environmental exposures during pregnancy and their possible association with birth defects. ABDC is developing a new quarterly publication, Environmental Birth Defects Digest, which will contain abstracts of recent relevant research studies.


Asthma and Allergy Foundation of America

1125 Fifteenth Street, N.W., Suite 502

Washington DC  20005

1-800-7-ASTHMA  (1-800-727-8462) (24-hour patient information number--consumers may request that information regarding asthma and allergic diseases be sent to them.)

(202) 466-7643

FAX: (202) 466-8940

The Asthma and Allergy Foundation of America (AAFA), founded in 1953, is dedicated to finding a cure for and controlling asthma and allergic diseases. They serve the estimated 50 million Americans who suffer from asthma and allergies through the support of research, patient and public education programs, public and government advocacy, and a network of chapters and support groups located throughout the nation. AAFA's patient educational programs emphasize the need for self management and teamwork between the patients and care providers. Their services include a toll-free patient information number, a bi-monthly newsletter, patient conferences, school and community training programs, and reference materials.


Better Hearing Institute

5021B Backlick Road

Anandale, Virginia  22003

1-800-EAR-WELL (1-800-327-9355)

(703) 642-0580

FAX: (703) 750-9302

9:00am - 5:00pm, EST, Monday - Friday

Better Hearing Institute (BHI) is a nonprofit educational association that implements national public information programs on hearing loss and available medical surgical, hearing aid, and rehabilitation assistance for millions of Americans with uncorrected hearing problems. Its award-winning series of television, radio, and print media public service messages include many celebrities who overcame hearing loss. BHI maintains a toll-free "Hearing HelpLine" telephone services that provides information on hearing loss and hearing help to callers from anywhere in the United States and Canada.


Cesareans/Support Education and Concern

22 Forest Road

Framingham, Massachusetts  01701

(508) 877-8266 (answering machine 24-hours a day)

Casereans/Support Education and Concern (C/SEC, inc.) was founded in 1972 to provide emotional support for cesarean delivery families, promote education and share information with parents and professionals about cesarean childbirth, cesarean prevention, and vaginal birth after cesarean, and to change attitudes and policies which affect the childbirth experience. They have a number of books and pamphlets available, as well as audiovisual materials.


CFIDS Association of America, Inc., The

P.O. Box 220398

Charlotte, North Carolina  28222-0398

1-800-44-CFIDS (1-800-442-3437)

1-900-988-CFID (1-900-988-2343)

FAX: (704) 365-9755

The CFIDS Association, Inc. is the nation's leading nonprofit organization dedicated to conquering CFIDS (chronic fatigue and immune dysfunction syndrome, also known as chronic fatigue syndrome) by supporting research, education and public policy programs. Since 1987 their activities have included funding research and advocacy grants, publishing and distributing  their journal The CFIDS Chronicle, and lobbying in Washington DC to make government and private institutions more responsive to the needs of persons with CFIDS. In addition, the CFIDS Association, Inc. responds to inquiries, holds support group meetings and sponsors or co-sponsors CFIDS research conferences. In 1991 they implemented two CFIDS information lines to provide the most rapid dissemination of information possible. Their toll-free line (1-800-44-CFIDS) allows callers to leave their name and address to request further information on the disease and their association. The other line (1-900-988-CFID) provides the caller with the opportunity to hear "cutting edge" information on CFIDS research, treatment, diagnosis, advocacy efforts, and other related topics.


Children of Aging Parents

1609 Woodbourne Road, Suite 302A

Levittown, Pennsylvania  19057

(215) 945-6900

FAX: (215) 945-8720

9:00am - 5:00pm, EST, Monday - Friday; an answering machine is on after hours

Children of Aging Parents (CAPS), a national nonprofit organization founded in 1977, is a clearinghouse that provides information and referral, educational, support groups for caregivers, and counseling to help caregivers with the caregiving role emotionally. CAPS offers peer counseling in person and by telephone, publishes a newsletter (the CAPSule), provides employee assistance programs, and assists in developing caregiver support groups nationally. (A caregiver is anyone who is caring and concerned for an older person, be it health, physical safety, well being, medical attention, finding resources, or more. A caregiver can be giving hands-on care, occasional care, or caring from a distance.)


Choice in Dying

200 Varick Street

New York, New York  10014-4810

(212) 366-5540

Choice In Dying is the nation's leading nonprofit organization working for the rights of patients to make their own medical decisions at the end of life. It was created from the merger of Concern for Dying and Society for the Right to Die, the oldest national organizations in this field. Choice in Dying provides educational programs and published materials to the general public, health care professionals, and lawmakers about the needs of people who are dying. It advocates recognition and protection of individual rights at the end of life.


Citizens for Public Action on Blood Pressure and Cholesterol

7200 Wisconsin Avenue, Suite 1002

Bethesda, Maryland  20814

(301) 907-7790

FAX: (301) 907-7792

9:00am - 5:00pm, EST, Monday - Friday; answering machine available when out of office or after hours

Citizens for Public Action on Blood Pressure and Cholesterol is a nonprofit public advocacy group for public policy and resources to prevent heart disease. As an advocate for research, education and prevention programs, Citizens moniters public policy to enhance effective screening, education and treatment services. Citizens is a charter member of the National Heart, Lung and Blood Institute's advisory panels overseeing the National High Blood Pressure and Cholesterol Education Programs.


Cooley's Anemia Foundation

105 E. 22nd Street, Suite 911

New York, New York  10010

1-800-221-3571

(212) 598-0911

FAX: (212) 598-4892

9:00am - 5:00pm, EST, Monday - Friday

The Cooley's Anemia Foundation (CAF), founded in 1954, is a nonprofit, voluntary health organization dedicated to enhancing the quality of life of Cooley's anemia (thalassemia) patients, advancing the treatment and cure of this fatal blood disease, and educating the medical profession and public about Cooley's anemia. CAF conducts national patient service, research and public education programs. Free brochures on Cooley's anemia and the Foundation are available upon request. Their newsletter, Lifeline, is also available to the general public.


Coronary Club, Inc., The

9500 Euclid Avenue, Mail Code E4-59

Cleveland, Ohio  44195

(216) 444-3690

8:00am - 3:00pm, EST, Monday Friday; voice mail for leaving messages is on 24 hours a day, every day

The Coronary Club, Inc. is a nonprofit organization dedicated to improving the lives of cardiac patients through education and understanding. They publish Heartline, a monthly publication written by doctors, surgeons, nutritionists, and cardiac rehabilitation experts at the Cleveland Clinic Foundation.


EAR Foundation

2000 Church Street, Box 111

Nashville, Tennessee  37236

1-800-545-HEAR (4327) (voice/TDD)

(615) 329-7807 (voice/TDD)

FAX: (615) 329-7935

8:30am - 4:30pm, CST, Monday - Friday; phones are answered by a service at other times

In 1971 Michael E. Glasscock III, M.D. established the EAR Foundation to help bridge the gap between the hearing impaired and the world of the normally hearing. The EAR Foundation works to educate the public and the medical profession in the matters of hearing loss and diseases of the ear, and to sponsor basic clinical research in hearing and balance disorders. The EAR Foundation accomplishes these goals through: continuing medical education courses which train physicians from all over the world in the latest surgical techniques; scholarships for mainstreamed, hearing-impaired high school students bound for higher education; hearing health education programs for children; awareness programs for those who interact with the hearing-impaired; self-help groups for those suffering from such inner ear disorders as Meniere's disease; training dogs to serve as the "ears" of the deaf, allowing them to live independently and securely; and preliminary hearing screening tests which are conducted by phone.


Endometriosis Association

8585 N. 76th Place

Milwaukee, Wisconsin  53223

1-800-992-3636 (United States; answered with recorded message 24 hours a day, 7 days a week)

1-800-426-2363 (Canada; answered with recorded message 24 hours a day, 7 days a week)

(414) 355-2200 (Headquarters office; answered by staff 8:30am - 5:00pm, CST, Monday - Friday)

FAX: (414) 355-6065

The Endometriosis Association is an international nonprofit organization with members in 28 countries. They were founded in 1980 and provide support for women with endometriosis, education about endometriosis, and carry out and promote research on the disease. They operate approximately 150 support groups and chapters; crisis call listening services; direct assistance to individuals from headquarters and chapters and groups; educational materials such as their popular book Overcoming Endometriosis: New Help from the Endometriosis Association, now in its fourth printing, videotapes, conference audiotapes, newsletter six times per year; and brochures and kits.


Epilepsy Foundation of America

4351 Garden City Drive

Landover, Maryland  20785

Information and referral service: 1-800-EFA-1000 (1-800-332-1000) (answered by a specially trained staff 9:00am - 6:00pm, EST, regular work days throughout the year)

(301) 459-3700

FAX: (301) 577-2684

The Epilepsy Foundation of America (EFA), founded in 1968, is a national, charitable, nonprofit, voluntary agency dedicated to the welfare of people with epilepsy. Its goals are prevention and cure of seizure disorders, the alleviation of their effects, and the promotion of independence and optimal quality of life for people who have these disorders. In addition to education, advocacy, service and research support programs conducted at the national level, epilepsy clients throughout the United States are served by 83 state and local EFA affiliates. Other EFA services include a computerized comprehensive epilepsy library, membership discounts on anti-epileptic medications, a monthly newspaper, and employment programs in 13 major cities. EFA produces a variety of books, videos, and other educational materials.


Fitness Motivation Institute of America

36 Harold Avenue

San Jose, California  95117

1-800-538-7790

FAX: (408) 985-1675

8:30am - 4:30pm, PST, Monday - Friday

Founded in 1968, The Fitness Motivation Institute of America is an organization made up of professional people who are concerned with doing something about our nation's health problems. The organization offers fitness motivation programs, materals and research which they present to the public. They are the leaders in the field of ISOROBICS--a complete exercise program in 15 minutes a day. They are also the leaders in the field of injury prevention and performance improvement in the workplace, as well as one of the leaders in the field of injury prevention and conditioning for sports.


Foundation for Glaucoma Research

490 Post Street, Suite 830

San Francisco, California  94102

(415) 986-3162

8:30am - 5:00pm, PST, Monday - Friday

Founded in 1978, the Foundation for Glaucoma Research is a national nonprofit organization dedicated to protecting the sight of people who have glaucoma through education and research. They publish Gleams, a quarterly newsletter for glaucoma patients and their families, and a patient guide, Understanding and Living with Glaucoma. They also have a nationwide Glaucoma Support Network. This telephone-based network is an opportunity for glaucoma patients to talk to other glaucoma patients who have similar experiences with this disease. All of their information is provided to the general public free of charge. Donations are encouraged, but not mandatory. They are a private organization.


Glaucoma Foundation, The

310 E. 14th Street

New York, New York  10003

1-800-832-EXAM (3926)

(212) 260-1000

FAX: (212) 260-1002

9:00am - 5:00pm, EST, Monday - Friday

The Glaucoma Foundation, founded in 1984, is a nonprofit organization dedicated to supporting research, education, and treatment into the causes of glaucoma. They conduct a public education campaign designed to provide information about the disease and its treatment and to alert high risk populations about the importance of early detection.


Health Education Foundation

600 New Hampshire Avenue, N.W., Suite 452

Washington DC  20037

(202) 338-3501

8:30am - 5:15 pm, EST, Monday - Friday

The Health Education Foundation (HEF), founded in 1976, is an independent, nonprofit organization dedicated to the development of health promotion programs. Using a range of approaches--education, research, knowledge transfer, and knowledge utilization--HEF programs and publications are designed to help people understand their health options and the steps they can take to promote and maintain their well-being. The goal of HEF is to help individuals take an active role in maintaining and promoting the quality of health. Because of the background and experience of its directors, many acitivities have focused around alcohol issues, particularly the responsible use of alcohol. HEF publishes periodicals, books and other literature concerned with health promotion and disease prevention. Their HEF NEWS is a quarterly newsletter that provides current information about behavior, lifestyles and trends and is written for the general reader. Among other activities, HEF develops health promotion programs for government, industry and the business community, conducts research and evaluation on selected problems in health education and promotion, and sponsors conferences and symposia on prevention.


Human Kinetics Publishers

1607 North Market Street

P.O. Box 5076

Champaign, Illinois 61825-5076

1-800-747-4457 (6:00am, EST - 5:00pm, PST)

(217) 351-5076 (7:00am, CST - 5:30pm, CST)

FAX (217) 351-2674 (24 hours a day)

Founded in 1974 by sports psychologist Ranier Martens and his late wife, Marilyn, Human Kinetics Publishers is the foremost publisher of books and journals for physical education, sport, sports medicine and science, and fitness. In addition to over 750 titles currently in print they continue to publish 60-75 new titles each year. They have three offices outside the United States in Australia, Canada and Europe. Their yearly catalog is free upon request.


Huntington's Disease Society of America

140 W. 22nd Street, 6th Floor

New York, New York  10011-2420

1-800-345-HDSA (4372)

FAX: (212) 243-2443

7:00am - 1:00pm, EST, Monday, Tuesday, Wednesday, and Friday; recording machine on at other times

The Huntington's Disease Society of America (HDSA) is the only national voluntary health organization providing support and services to HD patients and their families. Founded in 1967, the organization has a network of chapters and affiliates across the United States. HDSA is dedicated to improving the lives of people with HD and their families and to finding a cure for Huntington's Disease. The Society's programs include: support of research into the causes, treatment and cure of HD; a national network of services/referrals to assist people with HD and their families; dissemination of timely information to the general public, HD families and the professional health community.


Hysterectomy Educational Resources and Services Foundation (HERS)

422 Bryn Mawr Avenue

Bala Cynwyd, Pennsylvania  19004

(215) 667-7757

9:00am - 5:00pm, EST, Monday - Friday

The HERS Foundation, established in 1982, provides information about the alternatives to hysterectomy, the risks of the alternatives, and coping with the consequences of hysterectomy. They provide the following services: telephone counseling by appointment (telephone appointments are scheduled for 9:30am to 5pm, EST, Monday through Friday - there is no charge for counseling); a lending library of books, video tapes, and audio tapes which circulate via mail; referral to gynecologists who specialize in the conditions for which women are seeking evaluation or treatment; copies of medical journal articles and scientific journal articles; a quarterly newsletter; networking women with each other all over the world on a one-to-one basis.


Impotence World Services

P.O. Box 5299

Maryville, Tennessee  37802-5299

(615) 983-6064

Impotence World Services (IWS) is headquarters for Impotents Anonymous (IA) for impotent men and I-ANON for partners of impotent men. AI and A-ANON are anonymous fellowships that offer support and resources to those affected by impotence. Anonymous discussions in chapter meetings revolve around impotence and its causes, both psychological and physical, and methods of testing, evaluation, and treatment. Names and addresses of members are held in complete confidence; no individual, company, or medical professional has access to IWS's files. A pamphlet entitled "Answers to the Most Often Asked Questions About Impotence" is available, as well as a listing of professionals that are experienced in dealing with impotence evaluation and treatment.


Informed Homebirth/ Informed Birth and Parenting

P.O. Box 3675

Ann Arbor, Michigan  48106

(313) 662-6857

10:00am - 5:00pm, EST, Monday - Friday

Informed Homebirth/ Informed Birth and Parenting (IH/IBP) is one of the major organizations in the U.S. today supporting homebirth, midwifery, and consumer choice in child bearing alternatives. They offer workshops in childbirth education training, childbirth assistance training, a book service for birth related topics, and a referral service that accesses alternative birthing services nationwide. Founded in 1977, they have trained teachers in the continental United States, as well as Canada, Australia, Bermuda, and Mexico.


International Center for the Disabled

340 E. 24th Street

New York, New York  10010

(212) 679-0100

(212) 889-0372 (TTY)

9:00am - 5:00pm, EST, Monday - Friday

The International Center for the Disabled (ICD), founded in 1917, is a comprehensive outpatient rehabilitation center providing a wide array of medical and vocational services to people with disabilities. ICD's programs include chemical dependency services, a learning disabilities clinic, a cognitive rehabilitation program for adults with head injury, speech and hearing services, employee rehabilitation services, and vocational evaluation, training and placement.


International Foundation for Homeopathy

2366 Eastlake E., Suite 329

Seattle, Washington  98102

(206) 324-8230

9:00am - 3:00pm, PST, Tuesday - Friday

The International Foundation for Homeopathy (IFH) is a nonprofit membership organization for the promotion of classical homeopathy (homeopathy is a highly systematic method of powerfully stimulating the body's own healing processes in order to cure illness). They publish a bi-monthly magazine (free with yearly membership), Resonance, and to date have trained 200 practitioners of homeopathy in their five week, year-long course for professionals (open to licensed health care providers). The IFH also conducts an Advanced Acute Homeopathy Course open to both lay and professional people. They maintain a worldwide membership of approximately 2,500 members.


International Stress Management Association

10455 Pomerado Road

San Diego, California  92131

(619) 693-4698

(619) 693-4857

9:00am - 4:00pm, PST, Monday - Friday

The International Stress Management Association (ISMA) is a nonprofit health agency formed in 1974 as the American Association for the Advancement of Tension Control, and later as the International Stress and Tension Control Association. ISMA's aim is the dissemination and acquisition of scientific knowledge for stress management, related disorders, and tension control strategies. ISMA facilitates education about relaxation methods and therapeutic applications through information provided to the general public.


Interstitial Cystitis Association

P.O. Box 1553, Madison Square Station

New York, New York  10159

1-800-HELP-ICA (4357-422)

(212) 979-6057 (message can be left; all calls returned within 24 hours)

FAX: (212) 677-6139

The Interstitial Cystitis Association (ICA), founded in 1984, is a nationwide nonprofit health organization working on behalf of all interstitial cystitis (IC) patients (IC is a chronic inflammation of the bladder wall). ICA's goals are: to provide IC patients with the most up-to-date information on IC, to provide IC patients, their familes and friends with a support network in their community, to attract the attention of the medical community to the seriousness of IC and to educate the public, to help establish a National Registry so the facts about IC can be gathered and studied, and to support research to find an effective treatment and cure for IC. Their newsletter, ICA Update, is published quarterly.


Leukemia Society of America, The

600 Third Avenue

New York, New York 10016

1-800-955-4LSA (4572) (24 hour national information hotline)

(212) 573-8484

9:00am - 5:00pm, EST, Monday - Friday

The Leukemia Society of America is a national, not-for-profit, volunteer health agency dedicated solely to seeking the causes and eventual cure of leukemia and its related diseases: lymphoma, Hodgkin's disease and multiple myeloma. The Society, which has 57 chapters in 32 states, sponsors research, patient aid, public and professional education, and community service programs. The Society alerts the public to disease danger, treatment, and therapy through literature and posters, films and other audiovisual materials, speaking engagements, seminars and educational programs, news and feature releases, and public service advertising in all media. Information is available from each local chapter and from the Society's national information hotline.


Living Bank, The

P.O. Box 6725

Houston, Texas  77265

1-800-528-2971

(713) 961-9431

24 hours a day, 7 days a week

The Living Bank was founded as a nonprofit corporation in 1968 to encourage and facilitate the donation of organs and tissue for transplantation to save human life. Today it is the nation's only multi-organ/tissue donor registration and education agency. The organization conducts both local and national education programs via media, quarterly newsletters and other materials, and provides legal donor forms to interested individuals and organizations. On receipt of such organ donations, it registers the prospective donors as members in its computers and files. The Living Bank also issues free legal donor cards for purse or wallet, and provides a 24-hour information and referral service, including emergency data for families and involved medical authorities. They provide information through newsletters, annual reports, brochures, news releases, and film/video presentations, and speakers.


Lupus Erythmetosus Support Club

8039 Nova Court

North Charleston, South Carolina  29420

(803) 764-1769

9:00am - 5:00pm, EST, Monday - Friday; messages can be left on an answering machine after hours

The Lupus Erythmetosus Support Club was founded in 1984. They give emotional support and educate patients with systemic lupus erythmetosus and related autoimmune diseases about new therapies, research, coping techniques, drugs contraindicated in lupus, lupus triggers, and the effects of diet and the environment in the immune system. They publish a journal every other month which is sent to their members (back issues are available), and they answer personal correspondence with members.


Lupus Foundation of America, Inc.

4 Research Place, Suite 180

Rockville, Maryland  20850-3226

(301) 670-9292

9:00am - 5:00pm, EST, Monday - Friday; staff that answers is bilingual

For leaving name and address to receive information on lupus:

1-800-558-0121 (English; answering machine on 24 hours)

1-800-558-0231	(Spanish; answering machine on 24 hours)

The purpose of the Lupus Foundation of America (LFA) is to assist local chapters in their efforts to provide supportive services to individuals living with lupus, to educate the public about lupus, and to support research into the causes and cure of lupus. Volunteers, through an extensive network of over 300 constituent chapters, subchapters, branches, support groups, and International Associated groups, provide the majority of services which link the Lupus Foundation to thousands of lupus patients and their families. The LFA sets standards and provides direction and general support to its chapters, leading the efforts to create a patient-oriented, nonprofit, voluntary health agency in an ethical and professional manner. The LFA has developed specific services and programs to provide chapters with assistance in meeting patients' needs and organizational goals. These include chapter support, volunteer leadership training, research, patient education programs, public awareness activities, professional education, advocacy, and resource development.


Lupus Network

230 Ranch Drive

Bridgeport, Connecticut  06606

(203) 372-5795

9:00am - 5:00pm, EST, Monday - Friday; recording during off-hours

The Lupus Network, Inc. (LN), founded in 1985, is a nonprofit educational organization which provides access to information and communication to those concerned with lupus. LN supports the distribution of information whether it be of an orthodox (i.e. drugs, surgery, etc.) or unorthodox (i.e. vitamins, diet, etc.) nature. LN educational materials are presented mainly via Heliogram, which is the official information packet-journal of the LN that is automatically sent to members of the LN. Heliogram provides a vehicle for patients to express themselves: their feelings, what works for them, and their viewpoints and experiences with lupus. The LN is primarily a patient organization, however, educators and professionals are provided with educational materials for their patients and a better understanding of lupus through Heliogram. The LN also has loose articles and materials (members receive discounted prices on literature).


March of Dimes Birth Defects Foundation

1275 Mamaroneck Avenue

White Plains, New York 10605

(914) 428-7100

9:00am - 5:00pm, EST, Monday - Friday

The March of Dimes Birth Defects Foundation, founded in 1938, is a nonprofit organization whose mission is to improve the health of babies by preventing birth defects and infant mortality. To accomplish this, it has programs of: research, recently producing breakthrough procedures and genetic discoveries; community services, to help pregnant women receive prenatal care; advocacy, for maternal and child healthcare services on national and state levels; and education, for health professionals and the public. March of Dimes printed materials are available to the public at clinics, hospitals, doctors' offices, and community centers nationwide. These materials cover topics including birth defects, genetic disorders, teenage pregnancy, the father's role, the effects of smoking, drinking and drugs on pregnancy, and good nutrition during pregnancy.


Maternity Center Association

48 E. 92nd Street

New York, New York  10128

(212) 369-7300

FAX: (212) 369-8747

9:00am - 5:00pm, EST, Monday - Friday

Maternity Center Association (MCA) is a nonprofit organization founded in 1918 dedicated to the improvement of maternity and infant care. To that end, MCA has established a birth center, the first out-of-hospital birth center in the United States, as a demonstration project in providing safe and economical care to childbearing women. This center has been replicated over 200 times in the U.S. and in other countries around the world. MCA also produces and sells publications on pregnancy and infant care for expectant parents, and publications for health professionals. These publications are sold all over the world. Anyone who is interested in receiving a free catalog of their publications can request one by writing or calling the Publications Department at the address and phone number listed above.


Medic Alert Foundation International

Turlock, California  95381-1009

1-800-344-3226

(209) 668-3333

24 hours a day, 7 days a week

FAX (208) 668-8752

Medic Alert's life-protecting service starts with a metal alerting emblem worn as a bracelet or necklace. The emblem bears the staff of Aesdulapius, the internationally recognized insignia of the medical profession, and the words "Medic Alert" in red. On the reverse side are engraved the special medical conditions of the wearer such as hypertension, takes beta blocker, allergic to penicillin, or wearing contact lenses. Also engraved on the back are the member's identification number and the number of Medic Alert's Emergency Response Center. The 24-hour-a-day Emergency Response Center provides detailed data to emergency personnel via a collect telephone call from anywhere in the world. Medic Alert's emergency hotline number engraved on the back of the emblem and printed on the wallet card provides vital information that aids diagnosis and spreads lifesaving treatment. Medic Alert's 24-hour lifetime protection is available for a nominal fee and the service is provided for the lifetime of every member. Each member receives a wallet card with personal medical information in addition to the engraved emblem. Each year, members receive a wallet card copy of the information listed on their computerized medical record, as a reminder to members to keep their record up-to-date. the record may be updated at any time by phone or by mail.


Melpomene Institute for Women's Health Research

1010 University Avenue

St. Paul, Minnesota  55104

(612) 642-1951

FAX: (612) 642-1871

8:30am - 3:30pm, CST, Monday - Thursday

The Melpomene Insitute for Women's Health Research, founded in 1982, is a nonprofit, membership-based organization that helps girls and women of all ages link physical activity and health through research, publication and education. Research is the heart of their activity, and their members are often their research subjects, as are other understudied populations. Educational activities include brown bag seminars, open to the public, on current topics about women's health and physical activity. The Resource Center collection provides access to more than 3,000 books and articles, including Melpomene's own research materials. The Melpomene Insitute also holds fitness events such as runs and walks.


Mended Hearts, Inc., The

7320 Greenville Avenue

Dallas, Texas  75231

(214) 706-1442

8:00am - 4:00pm, CST, Monday - Friday

The Mended Hearts is a nonprofit educational organization that serves as an extended support group for heart patients. It is composed of cardiac patients, spouses, health professionals and other interested persons who are particularly interested in helping people deal with the emotional recovery from heart disease. There are currently over 200 Mended Hearts chapters throughout the United States. Most chapters meet on a regular basis, usually monthly, and many feature presentations by health providers. Members are thus able to keep up with changing treatments and technologies in the heart field. Meetings are also devoted to members discussions, social interaction and mutual support. Most chapters send newsletters to members as an added way to stay in touch. Mended Hearts also has a visiting program. Members carefully trained as visitors strive to give emotional support to heart patients and families.


Muscular Dystrophy Association

3300 East Sunrise Drive

Tucson, AZ  85718

(602) 529-2000

FAX: (602) 529-5300

8:30am - 5:00pm, MST, Monday - Friday

The Muscular Dystrophy Association (MDA) is a national voluntary health agency which has as its primary objective the support of scientific investigators seeking the causes of and effective treatments for muscular dystrophy and related neuromuscular diseases. At the same time, MDA sponsors a broad program of selected patient and community services for those diagnosed with one of the 40 diseases encompassed by MDA. As part of its Patient and Community Services Program, MDA sponsors a nationwide network of over 235 clinics to provide diagnostic examinations, as well as therapeutic and rehabilitative follow-up care, genetic counseling and support services. Additional services provided by MDA include assistance with the provision of selected orthopedic equipment, flu shots, educational and recreational activities and summer camping sessions. MDA also publishes and distributes a vast array of educational materials targeted at those they serve as well as those who support MDA's cause.


National Adrenal Diseases Foundation

505 Northern Boulevard

Great Neck, New York  11021

(516) 487-4992

9:00am - 5:00pm, EST, Monday - Friday

The National Adrenal Diseases Foundation is a nationwide, nonprofit organization dedicated to providing services to both individuals with adrenal disease (with a focus on Addison's disease) and their families. Its goals include assisting the Addison's patient through informational and  educational activities, as well as support programs. The ways in which the foundation helps include: by coordinating area support groups to put patients and their families in touch with others to discuss common concerns; by supplying educational information on Addison's disease to patients, the public, and physicians; by serving as a centralized location to promote research efforts to better understand, treat and cure Addison's disease; by organizing fundraising events; by soliciting grants to achieve these objectives. Their publications include a newsletter and informational materials.


National Association for Sickle Cell Disease, Inc.

3345 Wilshire Boulevard, Suite 1106

Los Angeles, California  90010-1880

1-800-421-8453

(213) 736-5455

FAX: (213) 736-5211

8:30am - 5:00pm, PST, Monday - Friday

The National Association for Sickle Cell Disease (NASCD) is a national, nonprofit, voluntary health agency organized in 1971 to create awareness of the impact of the sickle cell conditions on the individual and family, and to coordinate a national effort to develop and implement comprehensive health care programs for persons with these conditions. The NASCD prepares and distributes educational materials, trains sickle cell trait counselors, conducts patient, professional and public education programs, and provides technical assistance for national, state and local programs designed to meet the needs of persons with the sickle cell conditions.


National Association for Visually Handicapped

22 W. 21st Street

New York, New York  10010

(212) 889-3141

FAX: (212) 727-2931

or

3201 Balboa Street

San Francisco, California  94121

(415) 221-3201

FAX: (415) 221-8753

9:00am - 5:00pm, local times, Monday - Friday

National Association for the Visually Handicapped (NAVH) is a national, nonprofit voluntary health agency that provides services for the partially seeing (not totally blind), including information and referral, counseling and guidance, informational literature (much in large print) for the layperson and professional, free loan library of large print books (by mail), visual aid rooms in New York and San Francisco where people can come try out various aids (by appointment), and newsletters for adults and children in large print.


National Association of Anorexia Nervosa and Associated Disorders

Box 7

Highland Park, Illinois  60035

(708) 831-3438

9:00am - 5:00pm, CST, Monday - Friday

Founded in 1976, National Association of Anorexia Nervosa and Associated Disorders (ANAD) is the first national, nonprofit, educational and self-help organization in America dedicated to alleviating the problems of eating disorders, especially anorexia and bulimia. ANAD came into existence in response to the needs of anorexics and their families. It offers many services (all free) including counseling, information and referrals, self-help groups for both victims and parents, educational programs, and a listing of therapists, hospitals and clinics treating anorexics. The group also encourages research.


National Center for Nutrition and Dietetics

216 W. Jackson Boulevard

Chicago, Illinois  60606-6995

1-800-366-1655

Registered dietitians and referral system available 9:00am - 4:00pm, CST, Monday - Friday; recorded messages 24 hours daily.

The American Dietetic Association (ADA) established the National Center for Nutrition and Dietetics (NDND) in 1990 to provide objective information about food and nutrition to the public, media, industry, and health care professionals. Funded by contributions from ADA members, individuals, and corporations, the center's major programs include: public education campaigns, such as National Nutrition Month®, and Project LEAN (Low-fat Eating for America Now); a national toll-free consumer nutrition service; and Nutrition InfoCenter Library. Individuals who are interested in nutrition issues may subscribe to From the Center.


National Council Against Health Fraud, Inc., The

P.O. Box 1276

Loma Linda, California  92354

(909) 824-4690

8:00am - 5:00pm, Monday - Thurday; 8:00am - 2:00pm, Friday, PST

The National Council Against Health Fraud, Inc. is a nonprofit organization comprised of health professionals, educators, researchers, attorneys, and concerned citizens wishing to actively oppose misinformation, fraud and quackery in the health marketplace. The purposes of the Council are: to conduct studies and investigations to evaluate claims made for health care products and services; to educate consumers, professionals, business people, legislators, law enforcement personnel, organizations and agencies against health fraud, misinformation, and quackery; to provide a center of communication between individuals and organizations concerned about health misinformation, fraud, and quackery; to support sound consumer health laws and oppose legislation which undermines consumer rights; and to encourage and aid in legal actions against consumer health protection law violators. They have a long list of resource materials on a variety of health issues available.


National Council on Alcoholism and Drug Dependence, Inc.

12 West 21st Street

New York, New York  10010

1-800-NCA-CALL (1-800-622-2255)

(212) 206-6770

FAX: (212) 645-1690

9:00am - 5:00pm, EST, Monday - Friday

The National Council on Alcoholism and Drug Dependence, Inc. (NCADD) is a national nonprofit organization combating alcoholism, other drug addictions, and related problems. Founded in 1944, NCADD's major programs include prevention and education, public information, medical/scientific information, public policy, advocacy and publications. NCADD's network of nearly 200 affiliates conduct similar activities at the state and local levels, and provide information and referral services to families and individuals seeking help with alcohol or other drug problems. NCADD sponsors 1-800-NCA-CALL, a national toll-free telephone number. Callers are given the number of the nearest NCADD affiliate or other referral resource and mailed general information about alcoholism or teen-specific information.


National Council on Patient Information and Education

666 11th Street, N.W., Suite 810

Washington DC  20001

(202) 347-6711

FAX: (202) 638-0773

8:30am - 5:00pm, EST, Monday - Friday; a recorded message answers calls after regular business hours

The National Council on Patient Information and Education (NCPIE), established in 1982, is a nonprofit coalition of organizations dedicated to improving communication between health care professionals and patients about prescription medicines. Their goal is to prepare patients to work with their health care providers and to follow their medication therapy safely and effectively. NCPIE provides information appropriate for the general consumer audience, women, parents, and older persons. Consumers request for free sample brochures must be accompanied by stamped self-addressed envelopes.


National Down Syndrome Congress

1800  Dempster Street

Park Ridge, Illinois  60068-1146

1-800-232-NDSC (6372)

(708) 823-7550

FAX (708) 823-9528

9:00am - 5:00pm, CST, Monday - Friday

Founded in 1973, the National Down Syndrome Congress (NDSC) is a nonprofit organization which promotes the interests of approximately 250,000 individuals with Down syndrome and their families through advocacy, information and referral services. Its membership consists primarily of parents, local Down syndrome parent organizations, and professionals in various fields. The NDSC also maintains an international referral listing of Down syndrome organizations and resources and a foreign membership. The NDSC is a multi-faceted clearinghouse for information on Down syndrome. They sponsor a toll-free telephone hotline that offers access to a wealth of information on any subject related to Down syndrome. The NDSC coordinates a local parent group network, holds an annual conference, publishes information on Down syndrome (including a journal, Down Syndrome News, that comes out ten times a year), and represents the interests of people with Down syndrome in legislative matters. It is the purpose of NDSC to create a national climate in which all persons will recognize and embrace the value and dignity of persons with Down syndrome.


National Foundation for Infectious Diseases

4733 Bethesda Avenue, Suite 750

Bethesda, Maryland 20814

(301) 656-0003

FAX: (301) 907-0878

8:00am - 5:00pm, EST, Monday - Friday

The National Foundation for Infectious Diseases (NFID), founded in 1973, is a public, nonprofit foundation dedicated to the prevention and research of, and education (both public and professional) about, infectious diseases. Funds received (from public contributions, other foundations, corporate, federal and professional organizations) support research and training grants in numerous areas of infectious diseases, and a variety of programs in public awareness and professional education--all aimed at the prevention, care or control of infectious diseases in the United States. Current programs include, but are not limited to: National Adult Immunization Awareness Week; Great American Flu Shootout; education and prevention to stop the spread of hepatitis B; The Double Helix, a bi-monthly newsletter; and educational brochures for the public.


National Headache Foundation

5252 North Western Avenue

Chicago, Illinois  60625

1-800-843-2256 (will be answered 24 hours a day after March 1, 1993)

The National Headache Foundation (NHF), formerly the National Migraine Foundation, is the oldest and largest lay organization in the country dedicated to serving headache sufferers. A membership group established in 1970, NHF provides information on headache causes and treatments, funds research and sponsors public and professional education programs nationwide. Subscriptions to the quarterly newsletter, audio and video tapes, as well as other educational materials are available. Headquartered in Chicago, IL, NHF has nearly 15,000 members, 800 of whom are physicians and 200 who are other health professionals. (A list of these physicians is available on request). To receive a complimentary copy of the newsletter along with other material from NHF, please send a #10 self-addressed stamped envelope with $.52 postage.


National Head Injury Foundation

1776 Massachusetts Avenue, N.W., Suite 100

Washington DC  20036

1-800-444-NHIF (6443) (Family Helpline: for people with head injuries/families only)

(202) 296-6443

9:00am - 5:00pm, EST, Monday - Friday

The National Head Injury Foundation (NHIF), founded in 1980, is dedicated to improving the quality of life for people with head injury and their families, and to promoting the prevention of head injury. NHIF offers information and resource services, education, advocacy and support, in addition to educational materials and annuals conferences and symposia.


National Hypoglycemia Association

P.O. Box 120

Ridgewood, New Jersey  07451

(201) 670-1189 (24 hours a day)

The purpose of the National Hypoglycemia Association is to provide information, education and support to hypoglycemics and all interested people. The services they provide include doctor referrals, consultations and evaluations, literature, and support groups.


National Institute of Hypertension Studies

295 Mt. Vernon

Detroit, Michigan  48202

(313) 931-3427

(313) 872-0505

9:00am - 5:00pm, EST, Monday - Friday

The National Institute of Hypertension Studies provides information about hypertension as well as individual hypertension symptom profiles.


National Insurance Consumer Helpline

1-800-942-4242

8:00am - 8:00pm, EST, Monday - Friday

The National Insurance Consumer Helpline (NICH) is a toll-free consumer information telephone service sponsored by insurance trade industry associations. The associations represent all segments of insurance including life, health, and home and auto (property-casualty) insurance companies. Trained personnel and licensed agents are available to assist consumers. They answer a wide variety of questions about various insurance matters, and are able to refer consumer complaints to appropriate sources and send consumer brochures upon request. The kinds of information and materials relating to health insurance include: long-term care, Medicare supplement, disability, major medical, and COBRA continuation rules.


National Kidney Foundation

30 East 33rd Street, 11th Floor

New York, New York 10016

1-800-622-9010

(212) 889-2210

For over 40 years, the National Kidney Foundation (NKF) has been the leading voluntary health agency dedicated to the eradication of diseases of the kidney and urinary tract. Through their affiliates, NKF distributes brochures, fact sheets and videos about kidney disease and related conditions. Topics covered include: nutrition, treatment, rehabilitation, dialysis, and coping with kidney diseases. Newsletters for transplant recipients and donor families are also available. NKF also distributes Organ Donor Cards. These materials are available for little or no cost.


National Multiple Sclerosis Society

733 Third Avenue

New York, New York  10017-3288

(212) 986-3240

1-800-227-3166 (to speak to a person)

1-800-624-8236 (information line: leave a message to have information sent to you)

1-800-LEARN-MS (1-800-532-7667) (National Resource Center and Library)

FAX: (212) 986-7981

11:00am - 5:00pm, EST, Monday - Thursday

The National Multiple Sclerosis Society (NMSS) serves persons with MS their families, health professionals, and the interested pubic. The NMSS provides funding for research, public and professional education, advocacy and the design of rehabilitative and psychosocial programs. Direct services to MS persons are provided through 140 local chapters and branches. Among the program offered by chapters are a variety of counseling and referral services; many offer group aquatics and other social/recreational support activities. 81 clinical diagnostic and treatment centers are supported by chapters in 25 states. The NMSS provides publications for the general public including pamphlets, books, and periodicals. Some information is available in Spanish.

The National Information Resource Center and Library responds to inquiries from clients, the public and professionals on diagnosis, symptoms, clinic and physician referrals, research, available treatments and psychosocial issues. The center is fully automated and will research complex questions related to the field of multiple sclerosis using text sources and computer services.


National Organization for Rare Disorders

P.O. Box 8923

New Fairfield, Connecticut  06812

1-800-999-NORD (6673)

(203) 746-6518

9:00am - 5:00pm, EST, Monday - Friday

The National Organization for Rare Disorders (NORD) has as its objectives: to encourage, promote and fund scientific research on the cause, control, and ultimate cure of rare disorders; to educate the general public and medical profession about the existence, diagnosis and treatment of rare disorders; to act as a clearinghouse for information about rare disorders and to network families with similar disorders together for mutual support; to foster communication among rare disease voluntary agencies, government bodies, industry, scientific researchers, academic institutions, and concerned individuals; to accumulate and disseminate information about Orphan Drugs and Devices (Orphan Drugs are therapies which alleviate symptoms of some rare diseases, but which have not been developed by the pharmeceutical industry because they are unprofitable), making known their availability to patients, physicians and other concerned parties.


National Osteoporosis Foundation

1150 17th Street, NW, Suite 500

Washington DC  20036

(202) 223-2226

The National Osteoporosis Foundation (NOF) is the nation's leading resource for patients, healthcare professionals, and organizations seeking up-to-date, medically sound information and program materials on the causes, prevention, and treatment of osteoporosis. Established in 1986 as America's only voluntary, nonprofit health organization dedicated to reducing the widespread prevelance of osteoporosis, the Foundation has grown to include a network of individuals, healthcare professionals and organizations who support its goals. Write for a free copy of "Stand UP To Osteoporosis."


National Perinatal Association

3500 E. Fletcher Avenue, Suite 525

Tampa, Florida  33613

(813) 971-1008

8:30am - 5:30pm, EST, Monday - Friday

The National Perinatal Association (NPA) is a multi-disciplinary group concerned with perinatal health issues from pre-conception through infancy. Their several thousand members foster optimal perinatal health and quality health care by promoting education, supporting research, and influencing national priorities. Since its beginning fifteen years ago, NPA has provided a forum for nurses, nurse practitioners, nurse-midwives, pediatricians, obstetricians, family physicians, social workers, nutritionists, clinical geneticists, genetic counselors, developmental specialists, respiratory therapists, outreach workers, consumers, administrators, educators legislators, and all others interested in perinatal health. They encompass fifty states and have formed coalitions with State Perinatal Associations and numerous other nonprofit organizations.


National Psoriasis Foundation

6443 S.W. Beaverton Highway, Suite 210

Portland, Oregon  97221

(503) 297-1545

FAX: (503) 292-9341

8:00am - 5:00pm, PST, Monday - Friday; phone recording after business hours

The National Psoriasis Foundation (NPF), founded in 1968, is a publicly supported, nonprofit lay health organization. Its mission is research, public education, and advocacy on behalf of people affected with psoriasis. The NPF provides telephone counseling, printed information, networking, educational meetings, a pharmacy service, physician referral, video and audio tapes, and research support. Information is provided at no charge to individuals contacting the NPF.


National Reye's Syndrome Foundation

426 North Lewis

Bryan, Ohio  43506

1-800-233-7393

8:00am - 5:00pm, EST, Monday - Friday; answering machine on after hours

The National Reye's Syndrome Foundation (NRSF) is the only citizen group generating a concerted, organized lay movement to eradicate Reye's Syndrome. The NRSF conducts awareness programs in order to aid in early detection and to educate the public and medical communitites about the risk factor involved with the use of aspirin. The NRSF has brochures, bulletins, television and radio public service announcements, movie and slide presentations, a speakers bureau available to groups and organizations free of charge, and a Reye's Syndrome documentary. Their research programs support investigation into the cause, management, treatment and prevention of the disease. And their service programs give the families experiencing the personal trauma of Reye's Syndrome support and guidance.


National Safety Council

1121 Spring Lake Drive

Itasca, Illinois  60143-3201

1-800-621-7619

(708) 285-1121

FAX: (708) 285-1315

8:00am - 5:45pm, CST, Monday - Friday

Founded in 1913, the National Safety Council (NSC) is a non-governmental, nonprofit, public service organization dedicated to the reduction of accidental deaths, injuries, and preventable illnesses worldwide. In its mission of protecting life and promoting health, the NSC works with hundreds of allied organizations in industry, labor, government, education, and the community at large, as well as through 85 chapters and affiliates, 4 regional offices, and an office in Brussels. The NSC disseminates information through its massive communications apparatus of publications, audiovisual materials, news releases, and broadcast public service messages. In addition, the NSC sponsors an annual convention, the Congress & Exposition, which is attended by more than 18,000 safety and health professionals and others interested in reducing accidental death and injury and preventable illnesses.


National Scoliosis Foundation

72 Mount Auburn Street

Watertown, Massachusetts  02172

(617) 926-0397

FAX: (617) 926-0398

9:00am - 5:00pm, EST, Monday - Thursday; an answering machine is available after hours to leave messages

The National Scoliosis Foundation (NSF) is a nonprofit organization focusing on educating the general public, assisting school screening, and maintaining a resource of information on scoliosis. They offer packets of information to parents and young people, adults with scoliosis, and health care professionals. In addition, they publish a bi-annual newsletter, The Spinal Connection, that includes and overview of the NSF's activities and services, and a Medical Update Information column.


National Sleep Foundation

122 S. Robertson Boulevard, Third Floor

Los Angeles, California  90048

(310) 288-0466

FAX: (310) 288-0570

7:30am - 5:00pm, PST,  Monday - Friday; recorded message before/after hours; all calls returned the following business day

The National Sleep Foundation (NSF), established in 1990 through a grant from the American Sleep Disorders Association, is a nonprofit organization dedicated to improving the health and quality of life of all people suffering from sleep disorders and to preventing the catastrophic accidents that are related to poor or disordered sleep. Through its programs, the NSF seeks to enhance understanding of sleep and sleep disorders and to foster scientific research, education and training in their diagnosis and treatment. In addition to available brochures about sleep disorders, the NSF distributes a quarterly newsletter. They also keep an extensive library of articles and publications in sleep and sleep disorders for reference.


National Society to Prevent Blindness

500 E. Remington Road

Schaumburg, Illinois  60173

1-800-331-2020

(708) 843-2020

8:00am - 5:00pm, CST, Monday - Friday

The National Society to Prevent Blindness (NSPB), founded in 1908, is a nationwide volunteer organization of people helping people enjoy a good sight for a lifetime. NSPB and its network of affiliates work through research, professional and public education, and direct service programs to help eliminate preventable blindness in America. The NSPB Center for Sight is a toll-free information service of the NSPB. General information on a broad range of vision, eye health and safety topics is provided free of charge. Requests for information are processed through the 800 number and by mail. The NSPB Center for Eye Safety is a division of the NSPB. The Center for Eye Safety collects, analyzes and disseminates information and materials that can be used to prevent or reduce morbidity from eye trauma and promote eye injury prevention strategies.


National Spinal Cord Injury Association

600 W. Cummings Park, Suite 2000

Woburn, Massachusetts  01801

1-800-962-9629 (hotline only)

(617) 935-2722

8:30am - 5:30pm, EST, Monday - Friday

Through their national network of over 50 chapters and support groups and their headquarters in Massachusetts, the National Spinal Cord Injury Association (NSCIA) provides services to individuals with a spinal cord injury or disease, their families, as well as professionals working in the field. NSCIA also has a great interest in the prevention of spinal cord injury and the abilities of individuals who have been paralyzed as a result of spinal cord injury. The NSCIA provides an Information and Referral service to individuals with spinal cord injury through their toll-free National Information Line.


National Stroke Association

8480 East Orchard Road, Suite 1000

Englewood, Colorado 80111-5015

1-800-STROKES (787-6537) (recorded information access)

(303) 771-1700

(303) 771-1887 (TDD)

FAX: (303) 771-1886

8:00am - 4:30pm, MST, Monday - Friday

The mission of the National Stroke Association (NSA) is to reduce the frequency, severity and impact of stroke. Founded in 1984, NSA is a nonprofit organization dedicated to educating stroke survivors, families, health professionals and the general public about stroke. It develops workshops, supports research, provides information and referral services, publishes educational material and a quarterly newsletter. It also provides guidance in developing stroke clubs and stroke support groups.


National Tay-Sachs and Allied Diseases Association

2001 Beacon Street, Suite 204

Brookline, Massachussetts  02146

(617) 277-4463

FAX:  (617) 277-0134

9:00am - 5:00pm, EST, Monday - Friday

Founded in 1956, the National Tay-Sachs and Allied Diseases Association (NTSAD) is a private, nonprofit, voluntary health organization dedicated to the prevention and ultimate eradication of Tay-Sachs and 40 related genetic disorders. NTSAD programs include: community and professional education, laboratory quality control, physician referral, parent support network, and advocacy and research. NTSAD also publishes a newsletter and sponsors an annual conference. Literature, brochures, videos, and a lending library are available to the public.


National Vaccine Information Center

512 West Maple Avenue, Suite 206

Vienna, Virginia  22180

(703) 938-DPT3 (3783)

24 hours a day; recorded information; can leave a request for mailed materials

The National Vaccine Information Center (NVIC), founded ten years ago by parents of vaccine-injured children, was originally called Dissatisfied Parents Together. This national, nonprofit educational organization is dedicated to educating parents and the general public about childhood diseases and vaccines in order to prevent deaths and injuries. The Center basically serves as an information clearinghouse on the mandated childhood vaccines and their benefits and risks. The staff monitors developments in safety and efficacy of the existing vaccines as well as with vaccines that are being developed for mass use in the United States. NVIC is the only national organization working to reform the mass vaccination system to make it safer for all children and adults and the only national organization which represents the needs of vaccine damaged victims and their families. The Center supports an educated parent's right to choose not to have a child vaccinated with a vaccine the parent considers to be a danger to the child's health. NVIC provides parent information packets on the mandated childhood vaccines, vaccine news updates, a quarterly newsletter, information about obtaining exemptions in the various states, information about how to apply for compensation for persons/families who have experienced vaccine adverse reactions, information to attorneys about the program, and various vaccine studies and federal reports.


National Women's Health Resource Center

2440 M Street, NW, Suite 325

Washington DC  20037

(202) 293-6045

FAX: (202) 293-7256

8:00am - 4:00pm, EST, Monday - Friday

The National Women's Health Resource Center (NWHRC) is a not-for-profit organization incorporated in 1988 dedicated to educating consumers and professionals about women's health issues. Information is available through the center to help women make informed decisions about their health. The Center is a membership organization, however individuals who are not members have access to health information. Services include the bi-monthly newsletter National Women's Health Report, conferences, specialty publications, and a national database, including community/national health resources and information about any women's health topic.


Natural Food Associates

U.S. Highway 59 South

P.O. Box 210

Atlanta, Texas  75551

1-800-594-2136

9:00am - 5:00pm, CST, Monday - Friday

Natural Food Associates has the following objectives: to teach people the value of natural, poison-free food grown on rich, fertile soil; to expose the dangers of chemicals in our food, water and land; to show the interrelationship of soil, water and human; to convince the American people that good food and better health are necessary to save our civilization.  Natural Food Associates, founded in 1953, publishes Natural Food & Farming Magazine, the official journal of the organization. NFA also maintains an information service on topics that include preventive medicine, gardening and livestock management, plus information on environmental conservation and recycling.


North American Vegetarian Society

P.O. Box 72

Dolgeville, New York  13329

(518) 569-7970

9:00am - 5:00pm, EST, Monday - Friday; messages may be left at other times on an answering machine

The North American Vegetarian Society (NAVS) is a nonprofit educational association founded in 1974 to promote vegetarianism and to provide resources, support and information to the general public, the media, health professionals, educators, and others. Members of the NAVS receive Vegetarian Voice, a quarterly newsmagazine, which includes in-depth looks at health, nutrition, lifestyle, environmental and animal rights issues, as well as recipes, books and restaurant reviews, and much more. NAVS also publishes informational booklets, including "Vegetarianism: Answers to the Most Commonly Asked Questions," a 16 page booklet that also includes recipes, tips to get you started and a recommended resource list. It is available for free by sending a stamped, self-addressed long (legal) envelope.


Overeaters Anonymous

PO. Box 92870

Los Angeles, California  90009

or

383 Van Ness Avenue, Suite 1601

Torrance, California  90501

(310) 618-8835 (World Service Office)

 8:00am - 4:30pm, PST, Monday - Friday

or check your local White Pages for "Overeaters Anonymous"

Overeater's Anonymous (OA) was founded in 1960 and encompasses 10,115 local groups in 48 countries. OA is not a diet-and calories club, but a 12-step self-help fellowship patterned after Alcoholics Anonymous. OA welcomes all individuals who have a desire to stop eating compulsively. It is a nonprofit organization and there are no dues or fees for members; it is entirely self-supporting. OA publishes Lifeline, a monthly magazine, as well as books pamphlets and other materials.


Paget Foundation, The

200 Varick Street, Suite 1004

New York, New York  10014-4810

1-800-23-PAGET (72438)

(212) 229-1582

FAX: (212) 229-1502

9:00am - 5:00pm, EST, Monday - Friday

Founded in 1978, The Paget Foundation For Paget's Disease of Bone and Related Disorders (formerly The Paget's Disease Foundation) is a private nonprofit voluntary health agency which assists patients and provides the medical community with up-to-date scientific and clinical information. The objectives of the foundation are: to reach patients and their families and provide them information about diagnosis, treatment and, if requested, refer them to physician specialists; to enhance public awareness of Paget's disease of bone, primary hyperparathyroidism and related disorders; to provide ongoing professional education for the medical community; and to foster and encourage research.


Parkinson's Educational Program - PEP·USA
Parkinson's Educational Program - PEP•USA

3900 Birch Street, #105

Newport Beach, California  92660

1-800-344-7872

(714) 250-2975

FAX: (714) 250-8530

8:00am - 5:00pm, PST, Monday - Friday; there is also a 24-hour answering machine so that people can leave their name and address

PEP•USA is a non-profit national association that promotes the establishment of support groups for people with Parkinson's disease, their family members and friends, and to assist the support groups in the services they offer their community. PEP•USA also provides peer counseling and materials for people with Parkinson's and for their family members. PEP•USA seeks to educate the public about Parkinson's as well as providing information for health care providers with the objectives of early diagnosis and a better understanding of the total treatment needed for people with Parkinson's and their family members. Additionally, PEP•USA promotes, encourages, and assists in any way possible in the search for the causes and cure of Parkinson's.


Phoenix Society for Burn Survivors, The

11 Rust Hill Road

Levittown, Pennsylvania  19056

1-800-888-BURN (2876)

(215) 946-BURN (2876)

24 hours a day

The Phoenix Society for Burn Survivors, founded in 1977 by Alan J. Breslau, is a national nonprofit organization working to overcome burn trauma and ease the return to regular, productive life through: disaster response, patient advocacy, peer counseling and support, re-entry programs, fire safety and burn prevention programs, burn survivors speakers bureau, public education on burns and prevention, information services, seminars and conferences, burn care research, and legislative action. They offer a newsletter which they publish quarterly, and they have area coordinators to help ease the burn survivor back into the mainstream of life. They currently have 281 area coordinators across the world as well as 6160 members, of which 1288 are professional members and 1748 are burn survivors. The rest are either cosmotologists, or the general public who like to contribute or are interested in the organization.


Physicians Who Care

215 E. Quincy, Suite 305

San Antonio, Texas  78215

1-800-545-9305

(210) 226-1400

FAX: (210) 225-6159

9:00am - 4:00pm, CST, Monday - Friday

Physicians Who Care believes the responsibility for medical care belongs first and foremost to physicians and patients. Accordingly, they affirm the right of the physician, as the provider of care, to diagnose, prescribe, test, and treat patients without undue outside interference. They affirm the right of the patient, as the person most affected by care, to choose his or her own physician and to help determine the type of treatment received. Physicians Who Care believes that everyone, including the poor, should have access to affordable, quality medical care. They are dedicated to finding ways to make this access a reality.


Polio Society, The

4200 Wisconsin Avenue, N.W., Suite 106273

Washington DC  20016

(301) 897-8180

8:30am - 6:00pm, EST, Monday - Friday; leave inquiries with answering service

The purpose of the Polio Society, a nonprofit corporation based in Washington DC since 1984, is to identify, target, and deliver to the post-polio community, their families, their physicians, and other health care professionals state-of-the-art medical and psychosocial information about the late effects of polio. The Polio Society maintains an organized national membership of 3500 polio survivors that have been listened to by the health care industry and local and national legislators.

The Polio Society sponsors a monthly information/support group meetings and patient-oriented conference, provides information on available health care services, encourages major health facilities to create post-polio clinics, and promotes public awareness through local and national newspaper, radio and magazine coverage.


PMS Access

P.O. Box 9326

Madison, Wisconsin  53715

1-800-222-4PMS (4767)

(608) 833-4PMS (4767)

FAX: (608) 833-7412

9:00am - 5:00pm, CST, Monday - Friday

PMS Access is an education and communications organization concerned with PMS (pre-menstrual syndrome), providing both general information and personal consultation. PMS Access operates a toll-free hotline and provides information packets for women and health care professionals. They have an extensive library of literature on PMS, including books, tapes and educational videos for purchase. They publish PMS Access, a national bi-monthly newsletter that keeps women abreast of new developments and research and other relevant issues, including a list of support group activities around the country. PMS Access also heads up a nationwide network of physicians, nurses, health professionals, and women with PMS. This growing network often serves as a referral source, linking women with support groups and physicians.


Public Citizen Health Research Group

2000 P Street, N.W., Suite 700

Washington DC  20036

(202) 833-3000

9:00am - 6:00pm, EST, Monday - Friday

The Public Citizen Health Research Group (PCHRG) is a division of Public Citizen, a nonprofit membership organization based in Washington DC representing consumer interests through lobbying, litigation, research and publications. Since its founding by Ralph Nader in 1971, Public Citizen has fought for consumer rights in the marketplace, for safe products, for a healthy environment and workplace, for clean and safe energy sources, and for corporate and government accountability. The PCHRG fights for protection against unsafe foods, drugs, and workplaces, and for greater consumer control over personal health decisions. They have an extensive list of publications which including court testimony, reports and hearings, as well as their bi-monthly Public Citizen Membership Magazine and their monthly Health Letter.  Because many of the issues that the PCHRG tackles on behalf of consumers are controversial, they do not accept government or corporate grants. Support funding comes from individual contributions from citizens throughout the country and from the sale of publications.


Rehabilitation International

25 E. 21st Street

New York, New York  10010

(212) 420-1500

(212) 420-1752 (TDD)

FAX: (212) 505-0871

9:00am - 5:00pm, EST, Monday - Friday

Rehabilitation International is a federation of 145 organizations in 82 countries conducting programs to assist people with disabilities and all who work for prevention, rehabilitation and integration.


Resolve, Inc.

1310 Broadway

Somerville, Massachusetts  02144-1731

(617) 623-0744 (HelpLine)

9:00am - 12:00 noon and 1:00pm - 4:00pm, EST, Monday - Friday

(617) 623-1156 (Business office)

FAX: (617) 623-0252

9:00am - 5:00pm, EST, Monday - Friday

Resolve, Inc. is a national, nonprofit consumer organization serving the unique needs of the infertile population and allied professionals with information, education and advocacy. It was founded in 1973 and has grown to include over 55 chapters nationwide. Resolve publishes a national newsletter (4 times a year) and over 60 fact sheets on medical and emotional aspects of infertility. Other services include the telephone HelpLine, physician referrals, member-to-member contact system and local chapter contacts with their own local programs.


Rose Kushner Breast Cancer Advisory Center

P.O. Box 224

Kensington, Maryland  20895

(301) 949-2531

FAX: (301) 949-1132

10:00am - 3:00pm, EST, Monday, Wednesday, and Friday

The Rose Kushner Breast Cancer Advisory Center is an independent, nonprofit information and education service founded in 1975 by Rose Kushner. The principal service is publication of the brochure "If You've Thought About Breast Cancer..." which is available in quantity from the Center (price on request) and is distributed at no charge to individual requests by breast cancer support organizations including Y-ME, its affiliates, and a number of divisions of the American Cancer Society. The brochure includes the latest information and treatment and diagnosis to help women save their breasts as well as their lives, and provides clear explanations of what a woman should do and expect if she should find a symptom of what might be cancer.


Self Help for Hard of Hearing People

7800 Wisconsin Avenue

Bethesda, Maryland  20814

(301) 647-2248

(301) 657-2249 (TTY)

9:00am - 5:00pm, EST, Monday - Friday

Self Help for Hard of Hearing People (SHHH) is a volunteer, international organization of hard of hearing people, their relatives and friends. It is a nonprofit, non-sectarian, self-supporting, educational organization. The primary purpose is to educate members, their friends, and relatives about the causes, nature and complications of hearing loss and what can be done about it. SHHH publishes a bi-monthly magazine (SHHH Journal) about hearing loss with an estimated readership of 200,000. They have a network of affiliates that meet regularly to learn about hearing loss, offer support, and promote self help. SHHH has discounted publications and resource materials covering all aspects of hearing loss from causes to coping strategies to new technology. SHHH sponsors annual conventions as well as national programs promoting awareness, education, employment and communication access. SHHH has an assistive devices demonstration center at the National office. Here the public is invited to try some of the many assistive listening devices and systems "beyond hearing aids", which are now available to help persons with hearing loss stay independent.


Spina Bifida Association of America

4590 MacArthur Boulevard NW, Suite 250

Washington DC  20007-4226

1-800-621-3141

(202) 944-3285

FAX: (202) 944-3295

9:00am - 5:00pm, EST, Monday - Friday; recorded information available after 5:00pm

Since 1975, the Spina Bifida Association of America (SBAA) has been serving as the national office representing approximately 100 local chapters of parents and other members of families having children born with spina bifida, individuals with spina bifida, and the medical and allied health professionals who work with them. In addition, the SBAA operates an information clearinghouse, an information and referral toll-free number, periodic public awareness and related efforts, and has assisted local chapters in their service provision. This nonprofit charitable institution provides information related to spina bifida including progress in the areas of medicine, education, legislation, and financial support, and also encourages the training of professionals involved in treatment.


Spondylitis Association of America

P.O. Box 5872

Sherman Oaks, California  91413

1-800-777-8189

9:00am - 5:00pm, PST, Monday - Friday

The Spondylitis Association of America (SAA), formerly called the Ankylosing Spondylitis Association, was founded in 1983 by ten Los Angeles Ankylosing Spondylitis (AS) patients, their families, and physicians to achieve four goals: to provide information and support to AS patients and their families; to educate physicians to recognize early symptoms of AS, to expand public awareness and understanding of AS and the services of the SAA; and to increase the funding of AS research. In the short time since its founding, the SAA has grown to more than 3,000 members in the United States. SAA is a national information and resource center and is the l;argest producer of AS patient information ans self-help publications in the country.


Strang Cancer Prevention Center/National High Risk Registry

428 E. 72nd Street, Suite 700

New York, New York 10021

1-800-521-9356 (Recorded information that can be accessed anytime. Inquirers leave name and address and information is sent to them. Enrollees leave daytime telephone number, and reason for call, then receive return call from Registry staff)

(212) 794-4900

FAX: (212) 794-4959

The National High Risk Registry for women with families histories of breast cancer was started in March 1990. The Registry serves as a resource for breast cancer prevention, protection and research. Based on a submitted family history, the geneticists at Strang provide each woman with an individual risk assessment, specific recommendations for a schedule of examinations and mammograms, breast cancer screening program referrals, recommendations for surveillance of other cancers, as well as breast self-examination calendar stickers.


Sudden Infant Death Syndrome (SIDS) Alliance

10500 Little Patuxent Parkway, Suite 420

Columbia, Maryland  21044-3505

1-800-221-SIDS (7437)

24 hours a day, 7days a week

The Sudden Infant Death Syndrome (SIDS) Alliance is a national, nonprofit, voluntary health organization uniting individuals, families, and professionals concerned about Sudden Infant Death Syndrome. The Alliance and its affiliates fund medical research to discover the causes of SIDS, offer emotional support to families who have lost babies to SIDS, and supply up-to-date information on SIDS to the general public, particularly to new and expectant parents.


TOPS Club, Inc.

4575 S. Fifth Street, P.O. Box 07360

Milwaukee, Wisconsin  53207

1-800-932-8677 (used only for providing prospective members with information about their program and the location of local TOPS chapters)

(414) 482-4620

8:00am - 4:30pm, CST, Monday - Friday; after business hours there is a short recorded message describing their program

TOPS (Take Off Pounds Sensibly) is a nonprofit weight control organization with 300,000 members in 11,600 chapters worldwide. Founded in 1948, it is the oldest major diet organization. TOPS is a support group, which employs group dynamics, competition, and recognition to aid its members in attaining and maintaining their weight goals. Members meet weekly in their local chapters. Programs vary, but all in some way provide members with positive reinforcement and motivation in reaching their goals. Information and services are available to their members only. Other than promotional materials, literature published by their organization is not available to the general public.


United Cerebral Palsy Associations, Inc.

1522 K Street, N.W. , Suite 1112

Washington DC  20005

1-800-USA-5UCP (872-5827)

(202) 842-1266

9:00am - 5:00pm, EST, Monday - Friday

United Cerebral Palsy Associations, Inc. (UCPA) is a national network of over 180 local affiliates in 45 states. The collective associations provide services to children and adults with disabilities and their families. The mission of the UCPA is to affect positively the quality of life for persons with cerebral palsy and also others with severe disabilities and multiple service needs and the families of both, and to prevent cerebral palsy and minimize its effects. UCPA is committed to the following purposes: to assure the rights and entitlements of persons with disabilities; to equip and enable individuals with cerebral palsy and other severe disabilities to attain the fullest possible employment, productivity, and participation in an integrated community; to support freedom of choice by assuring multiple options in daily living; to provide a continuity of quality human services; to improve the living conditions in all circumstances; to present factual material for the awareness and understanding of all segments of the public; to involve persons with cerebral palsy and also others with severe disabilities in decision-making processes affecting their lives; and to mobilize human and financial resources to accomplish these goals.


Women's Sports Foundation

342 Madison Avenue, Suite 728

New York, New York 10173

1-800-227-3988 (women's sports information line)

(212) 972-9170 (business line)

FAX (212) 949-8024

9:00am - 5:00pm, EST, Monday - Friday

The Women's Sports Foundation (WSF) is a nonprofit educational organization that is dedicated to promoting and enhancing the sports and fitness experience for all girls and women. The WSF was established in 1974 by Billie Jean King and other women athletes including Donna de Varona, Micki King Hogue and Wyomia Tyus. WSF's goal is to improve the physical, mental, and emotional well-being of all females through sports and fitness participation. The WSF works to improve public understanding of the benefits of sports and fitness for females of all ages. Programs include conferences, publications, research, public service announcements, videotapes and an information service for the public. WSF members include anyone with an interest in women's sports. Over 1,000 individuals are currently voting members. In addition, subscribers to Women's Sports and Fitness magazine, which is published by a separate company, are associate members of the WSF. There are currently 250,000 associate members.


World Health Organization

CH-1121 Geneva 27

Switzerland

(022) 791-2111

FAX: (022) 791-0746

or

WHO, Regional Office for the Americas/

Pan American Sanitary Bureau

525 23rd Street, N.W.

Washington DC  20037

(202) 861-3200

FAX: (202) 223-5971

The World Health Organization (WHO) was established on April 7, 1948. It is an intergovernmental organization and specialized agency within the United Nations system. WHO's objective is stated in its Constitution as "the attainment by all peoples of the highest possible level of health." It acts as the central authority directing and coordinating international health work, and it encourages technical cooperation for health with Member States. WHO performs it functions through three principal bodies: the World Health Assembly, the Executive Board and the Secretariat. WHO headquarters is located in Geneva, Switzerland. A characteristic feature of WHO is its decentralization. There are six regions, each of which has its own Regional Committee and Regional Office.


World Research Foundation

California Branch:

15300 Ventura Boulevard, Suite 405

Sherman Oaks, California  91403

(818) 907-5483

FAX: (818) 907-6044

9:30am - 1:00pm and 2:00pm - 5:30pm, PST, Monday - Thursday, 9:30am - 1:00pm, Friday

Arizona Branch:

40 Soldier Pass Road, #16

Sedona, Arizona  86336

(602) 282-1208

(Please contact the Arizona office for hours of operation)

The World Research Foundation (WRF) is a nonprofit health and environmental network designed to collect and disseminate health care and treatment information to lay people and professionals who wish to understand what therapy options may exist for their illness. In addition to an extensive library of books and periodicals dating back to the 1600's, the WRF is linked to over 500 computer databases which give access to important medical, scientific and environmental information from over 100 countries. For a fee the WRF can conduct a computer or library search on a given illness. There is no charge to visit the library and conduct your own research regarding your particular health interest.


Y-ME National Organization for Breast Cancer Information and Support

18220 Harwood Avenue

Homewood, Illinois  60430

1-800-221-2141 (national hotline, 9:00am- 5:00pm, CST, Monday - Friday)

(708) 799-9228 (24-hour hotline)

(708) 799-8338 (office telephone)

FAX: (708) 799-5937

Y-ME is a nonprofit consumer-oriented organization that provides information, referral, and emotional support to individuals concerned about or diagnosed with breast cancer. Its national toll-free hotline is staffed by trained counselors and volunteers who have experienced breast cancer. Y-ME national and its chapters conduct support meetings in many states. Y-ME provides free written materials and publishes a bi-monthly award-winning newsletter. A wig and prosthesis bank is available for those in need.

Descriptions taken from Health Information Resources in the Federal Government, Fifth Edition, 1990. Prepared by Office of Disease Prevention and Health Promotion National Health Information Center.


Alzheimer's Disease Education and Referral Center

P.O. Box 8250

Silver Spring, Maryland  20907

1-800-438-4380

FAX: (301) 587-4352

8:30am - 5:00pm, EST, Monday - Friday

The Alzheimer's Disease Education and Referral (ADEAR) Center is sponsored by the National Institute on Aging. ADEAR provides information and publications on Alzheimer's Disease to health and service professionals, patients and their families, caregivers, and the general public.


Cancer Information Service

Office of Cancer Communications

National Cancer Institute

Building 31, Room 10A16

9000 Rockville Pike

Bethesda, Maryland  20892

1-800-4-CANCER (4-226237)

The Cancer Information Service section of the National Institute of Health's (NIH) Office of Cancer Communications (OCC) answers requests from patients, the general public, and health professionals for cancer information. Responses include written response and distribution of NIH publications. Additionally, telephone inquiries are received through the Cancer Information Service national toll-free telephone number. Referrals are made when appropriate.

Publications directed toward consumers include pamphlets, bibliographies, reprints, reports, and books with some titles prepared especially for minority populations. The pamphlet series, "What You Need to Know About Cancer," provides information for cancer patients regarding symptoms, diagnosis, treatment, chemotherapy, cancer prevention including diet, skin cancer, DES exposure, dysplasia, Hodgkin's disease, leukemia, melanoma, Wilms' tumor, carcinogens, biopsies, and clinical trials. A list of NIH publications for patients and the public is available, as well as a list for health professionals.


Center for Chronic Disease Prevention and Health Promotion

Centers for Disease Control

Building 1, SSB249, MS A34

1600 Clifton Road, NE

Atlanta, Georgia  30333

(404) 639-3492

The Center for Chronic Disease Prevention and Health Promotion (CCDPHP), established in 1988, consists of the Division of Adolescent and School Health, the Division of Chronic Disease Control and Community Intervention, the Division of Nutrition, the Division of Reproductive Health, the Office on Smoking and Health, and the Office of Surveillance and Analysis. CCDPHP plans, directs, and coordinates a national program for the prevention of premature mortality, morbidity, and disability due to chronic illnesses and conditions and promotes the overall health of the population.

CCDPHP maintains two databases: the Health Promotion and Education Database and the AIDS School Health Education Database. These two databases are part of the federally sponsored Combined Health Information Database that is available through BRS (Bibliographic Retrieval System).

Serial publications: Chronic Disease Notes and Reports and Diabetes Update.


Centers for Disease Control

Management Analysis and Service Office

1600 Clifton Road, NE

Mail Stop D25

Atlanta, Georgia  30333

(404) 639-3286

(404) 639-3534 (publications)

The Centers for Disease Control include: Center for Environmental Health and Injury Control, Center for Infectious Diseases, Center for Prevention Services, Center for Chronic Disease Prevention and Health Promotion, National Center for Health Statistics, National Institute for Occupational Safety and Health, Dental Disease Prevention Activity, Clearinghouse on Health Indexes, and the Office on Smoking and Health. The Public Inquiries of the Centers for Disease Control (CDC) responds to inquiries from the general public and health care professionals on research conducted by CDC in the areas of environmental health, infectious diseases, health promotion and education, prevention services, and occupational safety and health. Callers and mail are referred to the appropriate CDC center, institute, or office and to other Federal, State, or private institutions.

Publications: Serial publications: Morbidity and Mortality Weekly Report (MMWR) and MMWR: Annual Summary - information on infectious diseases in the United States.


Center for Environmental Health and Injury Control

Centers for Disease Control

Management Analysis and Service Office

1600 Clifton Road, NE

Mail Stop D25

Atlanta, Georgia  30333

(404) 639-3286

(404) 639-3534 (publications)

Related Topics:

See Centers for Disease Control


Government Organizations - Center for Environmental Health and Injury Control - See Centers for Disease Control
See Centers for Disease Control


Center for Infectious Diseases

Centers for Disease Control

Management Analysis and Service Office

1600 Clifton Road, NE

Mail Stop D25

Atlanta, Georgia 30333

(404) 639-3286

(404) 639-3534 (publications)

Related Topics:

See Centers for Disease Control


Government Organizations - Center for Infectious Diseases - See Centers for Disease Control
See Centers for Disease Control


Center for Prevention Services

Centers for Disease Control

Management Analysis and Service Office

1600 Clifton Road, NE

Mail Stop D25

Atlanta, Georgia  30333

(404) 639-3286

(404) 639-3534 (publications)

Related Topics:

See Centers for Disease Control


Government Organizations - Center for Prevention Services - See Centers for Disease Control
See Centers for Disease Control


Clearinghouse on Disability Information

330 C Street, SW

Switzer Building, Room 3132

Washington DC  20202-2524

(202) 205-8241

FAX: (202) 205-9252

 The Clearinghouse on Disability Information was created by the Rehabilitation Act of 1973. The clearinghouse responds to inquiries and researches information operations serving the disabled field on the national, State, and local levels, especially in the areas of Federal funding, legislation, and programs benefiting people with disabling conditions. The clearinghouse also refers inquirers to other appropriate sources of information.

Publications include OSERS News in Print (newsletter), A Summary of Existing Legislation Affecting Persons with Disabilities, Educating Students with Learning Problems: A Shared Responsibility, and Pocket Guide to Federal Help for Individuals with Disabilities.


Consumer Information Catalog

Department TH

Pueblo, Colorado 81009

(202) 501-1794 (infomation)

The Consumer Information Catalog is a catalog of free and low-cost federal publications of consumer interest. It lists more than 200 pamphlets and brochures from over 30 government agencies. Information on health includes exercise and weight control, food and nutrition, drug and health aids, medical problems, and mental health. Delivery time is about three weeks.


Family Life Information Exchange

P.O. Box 37299

Washington DC  20013-7299

(301) 585-6636

FAX: (301) 565-5112

The Family Life Information Exchange (FLIE) was established in 1978 to serve as a clearinghouse on family planning issues. Their focus also includes clearinghouses on adolescent pregnancy and adoption. FLIE produces a directory of family planning grantees, delegates, and clinics supported by the Office of Population Affairs. FLIE collects materials, distributes a number of Department of Health and Human Services publications, maintains a database with approximately 5,000 entries, and makes referrals to other information centers.

Topical bibliographies are compiled and disseminated to interested family planning professionals. Available publications include Many Teens are Saying No (English and Spanish), Adolescent Abstinence: A Guide for Family Planning Professionals, Your Contraceptive Choices: For Now, For Later, and Directory of Family Planning Grantees, Delegates, and Clinics. Serial Publication: Resource Memo.


Food and Drug Administration

Office of Consumer Affairs

5600 Fishers Lane, HFE-50

Rockville, Maryland  20857

(301) 443-3170

The Food and Drug Administration's (FDA) responsibilities include food, drugs, cosmetics, biological products, medical devices, radiological services, and veterinary products sold in interstate commerce.

For information via computer, the Food and Drug Administration's Bulletin Board System (BBS) provides callers with FDA decisions, advisories, and press releases, as well as copies of congressional testimony by FDA officials, all searchable by keyword.

Phone Number: 1-800-222-0185

Settings: 2400 baud, 7 data bits, 1 stop bit, even parity

When your modem connects, hit the ENTER key. At the "login:" prompt type "bbs" (lower case) and hit the ENTER key.

After you register, to get a copy of the manual, type "manual" hit the ENTER key, type "scan" and hit the ENTER key. Turn on your computer screen capturing facility and then type a 1 and hit the ENTER key. To capture the entire document without having it pause every 24 lines, type "page" and hit the ENTER key before you type "scan".

For written information, the Office of Consumer Affairs (OCA) serves as a clearinghouse for FDA consumer publications. Approximately 70,000 requests are received each year, primarily in the areas of food and cosmetics. Inquiries are referred to appropriate agency offices for reply, or are answered by OCA staff, utilizing data from agency offices or agency publications.

Consumer materials are available on foods, nutrition, sodium, Federal regulations, cosmetics, medical devices, drug labeling, pharmaceuticals, health fraud, radiological health, and Reye's syndrome. Serial publication: FDA Consumer (monthly journal)


Food and Nutrition Information Center

National Agricultural Library, Room 304

10301 Baltimore Boulevard

Beltsville, Maryland  20705-2352

(301) 504-5719

FAX: (301) 504-5472

The Food and Nutrition Information Center (FNIC) was established to serve the information needs of persons interested in human nutrition, food service management, and food technology. FNIC acquires and lends books and audiovisual materials dealing with these areas of concern. The collection ranges from children's materials to the most sophisticated professional materials. Books and audiovisual materials may be borrowed from the library, and a photoduplication service is available for journal articles. Requests for services may be made in person, by letter, or by telephone. There is a 24-hour answering service to monitor calls for requests during nonbusiness hours.

FNIC uses the National Agricultural Library's database, AGRICOLA, for computerized literature searches.

Bibliographies and resource guides are available on such topics as sports, cardiovascular disease, dental health, older Americans, vegetarianism, cancer, diabetes, food composition, anorexia nervosa, bulimia, and various aspects of nutrition.


Food Safety and Inspection Service

Department of Agriculture, Room 1165-S

14th and Independence, SW

Washington DC  20250

(202) 447-9351 (public inquiries)

1-800-535-4555 (meat and poultry hotline)

(202) 447-3333 (Washington DC metropolitan area hotline)

The Food Safety and Inspection Service (FSIS) was established in 1981 to administer the meat and poultry program, which assures consumers that meat and poultry sold in the United States or shipped abroad is safe, wholesome, and truthfully labeled. FSIS inspects and analyzes domestic and imported meat, poultry, and meat and poultry food products; establishes standards and approves recipes and labels for processing meat and poultry products; and monitors the meat and poultry industries for violations of inspection laws.

FSIS produces a wide variety of pamphlets and other educational materials on such topics as food safety, food poisoning, labels on meat and poultry products, food additives, food labeling, sodium, herbs, and the food inspection program. A publications list is available. Serial publication: Food News for Consumers.


Government Printing Office

Superintendent of Documents

United States Government Printing Office

Washington DC  20402

(202) 783-3238

The Government Printing Office (GPO) has many publications on health available. The GPO Publications Reference File, a complete listing of GPO materials, is searchable by the public on DIALOG.

Except for certain catalogs, GPO does not distribute any free publications. Payment is required in advance of shipment. However, single copies of many of its publications are available free from the issuing agencies. The comprehensive listing of publications from GPO is the Monthly Catalog of U.S. Government Publications. It is divided by subject areas, a number of which are health-related. Subject Bibliographies (catalogs on certain subject categories--free of charge) on health topics include (use the Subject Bibliography number to the right of the publication title when ordering):

•	Accidents and Accident Prevention SB-229

•	Aging SB-39

•	Alcohol, Tobacco and Firearms SB-246

•	Customs, Immunizations and Passport Publications SB-27

•	Diseases in Humans SB-8

•	Drug Abuse SB-163

•	Food, Diet and Nutrition SB-291

•	Handicapped, The SB-37

•	Hearing and Hearing Disability SB-23

•	Hospitals SB-119

•	Insurance SB-294

•	Medicine and Medical Science SB-154

•	Mental Health SB-167

•	Occupational Safety and Health SB-213

•	Physical Fitness SB-239

•	Public Health SB-122

•	Recreational and Outdoor Activities SB-17

•	Vital and Health Statistics SB-121


Health Care Financing Administration

News and Information Branch

200 Independence Avenue, SW, Room 428-H

Washington DC  20201

(202) 245-6145

The Health Care Financing Administration (HCFA) administers Medicare, Medicaid, related quality assurance programs, and other programs. HCFA also makes certain that beneficiaries are aware of the services for which they are eligible, that services are accessible, and that they are provided in an effective manner. HCFA ensures that its policies and actions promote efficiency and quality within the total health care delivery system. Questions are answered or referred to the appropriate office for response. Information on reimbursement for kidney dialysis are referred to the appropriate agency.

Consumer materials include descriptive brochures on the Medicare and Medicaid programs, available from local Social Security offices. Professional materials are available on Medicare and Medicaid program statistics, DRGs (diagnosis-related groups), health care financing, and medical care utilization. Serial publication: Health Care Financing Review (quarterly journal).


Human Nutrition Information Service

6505 Belcrest Road

Hyattsville, Maryland  20782

(301) 436-7725

Electronic Bulletin Board: (301) 436-7725

The Human Nutrition Information Service (HNIS) conducts applies research in food consumption, nutrition knowledge and attitudes, dietary survey methodology, food composition, and dietary guidance and nutrition education techniques. HNIS uses the research data to monitor the food and nutrient content of diets of the American population, assess dietary status and trends in food consumption, further understand the factors that influence consumer food choices, maintain the National Nutrient Data Bank of the nutrient content of foods, provide dietary guidance in food selection and preparation and in food money management, and develop materials and techniques to help increase nutrition knowledge and to improve food selection and management. HNIS conducts the Nationwide Food Consumption Survey, the Continuing Survey of Food Intakes by Individuals, and the Diet-Health Knowledge Survey. Within the Department of Agriculture, HNIS coordinates the review and publication of Dietary Guidelines for Americans and develops information to help Americans put the guidelines into practice.

HNIS reports results of research on food consumption, food composition, and dietary guidance in both technical and popular publications, in forms that can be used by computers and by electronic bulletin board via telephone modem. An HNIS publications list is available.


Indian Health Service

Communications Director

Parklawn Building, Room 6-35

5600 Fishers Lane

Rockville, Maryland  20857

(301) 443-3593

The Indian Health Service (IHS) provides comprehensive health services through IHS facilities, tribally contracted hospitals, health centers, school health centers, and health stations. Health services provided include medical, dental, and environmental health programs. Special program concentrations are in disease prevention and health promotion, alcoholism, substance abuse, suicide, accidents, maternal and child health, nutrition, and otitis media (inflammation of the middle ear). Reports, directories, brochures, and pamphlets highlighting IHS activities are available.


National AIDS Information Clearinghouse

P.O. Box 6003

Rockville, Maryland  20849-6003

1-800-458-5231

1-800-342-AIDS (2437) (English hotline)

1-800-344-SIDA (7432) (Spanish hotline)

1-800-243-7012 (TT)

FAX: (301) 738-6616

The National AIDS Information Clearinghouse (NAIC) was established in 1987 by the Centers for Disease Control (CDC). Its purposes are to identify and respond to the needs of health professionals involved in the development and delivery of AIDS programs; ensure that the general public has access to information on AIDS; provide technical assistance to organizations involved in the fight against AIDS, particularly State health departments; assist in the development and assessment of resources; support all AIDS information delivery services of CDC, including the national AIDS hotline; and distribute single copies of selected publications. Requests for information can be made either by mail or by phone. A price list and catalog are available.

Two databases form the core of information for NAIC: 1) the Resources database, a directory of programs, projects, and organizations providing AIDS-related services, and 2) the Educational Materials Database, containing information about specialized educational materials tailored to specific audiences and focusing on different aspects of AIDS. The NAIC Resource Center is open to the public by appointment. The Resource Center contains copies of educational materials, videotapes, and reference works on AIDS and HIV infection. NAIC also distributes brochures, posters, and fact sheets about AIDS.


National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse

P.O. Box AMS

9000 Rockville Pike

Bethesda, Maryland  20892

(301) 495-4484

FAX: (301) 587-4532

The National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse (NAMSIC) is designed to help health professionals identify print and audiovisual educational materials concerning arthritis and musculoskeletal diseases, and to serve as an information exchange for individuals and organizations involved in public, professional, and patient education. Requests are answered by searching NAMSIC's database and other bibliographic sources and by making referrals to appropriate resources.

The database includes records for 6,300 documents published since 1975; about 1,000 records are added each year. The NAMSIC file is part of the Combined Health Information Database (CHID), publicly accessible online through BRS (Bibliographic Retrieval System). Copies of materials found in the database are not provided by NAMSIC but may be reviewed there by appointment. Materials indexed include pamphlets, journal articles, and audiovisual materials. Personal information requests from patient are referred to appropriate organizations.

Bibliographies, reference sheets, and directories for professionals are available on such topics as arthritis, musculoskeletal diseases, rheumatic diseases, skin diseases, biofeedback, nutrition, pharmaceuticals, patient education, systemic lupus erythematosus, scleroderma, Lyme disease, gout, treatment centers, statistics, health care personnel, audiovisual materials, physical exercise, ankylosing spondylitis, radiology, surgery, and the disabled. Also available are a publications list and irregular announcements of materials, resources, and services. Serial publication: Arthritis Clearinghouse Memo.


National Center for Education in Maternal and Child Health

200 North 15th Street, Suite 701

Arlington, Virginia 22201-7802

(703) 524-7802

FAX: (703) 524-9335

The National Center for Education in Maternal and Child Health (NCEMCH) responds to information requests from consumers and professionals, provides technical assistance, and develops educational and reference materials. The NCEMCH Resource Center contains professional literature, patient education materials, curricula, audiovisuals, and information about organizations and programs. Major content areas include pregnancy and childbirth, child and adolescent health, nutrition, high-risk infants, chronic illness and disability, human genetics, women's health and maternal and child health services and programs.

NCEMCH produces newsletters, bibliographies, booklets, brochures, resource guides and other educational materials, which are listed in a publications catalog. Most are free. The reference collection, available to the public by appointment, includes over 3,000 books and reports and 70 journal titles. Serial publication: MCH Program Interchange - published about 10 times a year, highlights a different topic in each issue.


National Center for Health Statistics

6525 Belcrest Road, Room 1064

Hyattsville, Maryland  20782

(301) 436-8500

Organized in 1960, the National Center for Health Statistics (NCHS) collects, analyzes, and disseminates data on health in the United States. Using surveys and registration systems, NCHS has developed data systems to collect statistics on births, deaths, marriages, and divorces in the United States; the extent and impact of illness and disability; determinants of health; health services; utilization of health care; health care costs and financing; and family growth and dissolution (Requests for current statistical information on infectious disease should be directed to the Centers for Disease Control). Staff members respond to requests from professionals or consumers using publications, computer printouts, microdata tapes, and special tabulations.

Much of the data collected and compiled by NCHS is part of the National Technical Information Service (NTIS) database, available online to the public through DIALOG and BRS (Bibliographic Retrieval System).

Materials available include statistical data on health, nutrition, vital statistics, health care delivery, dental health, health resources utilization, health care personnel, families, contraception, and health care economics. A publications list, indexed by subject, is available upon request. Most NCHS publications must be purchased from the Government Printing Office. Findings from surveys conducted by NCHS are released in the Vital and Health Statistics series and the Advanced Data series. Serial publications: Vital Statistics of the United States (annual report) and Monthly Vital Statistics Report.


National Diabetes Information Clearinghouse

P.O. Box NDIC

9000 Rockville Pike

Bethesda, Maryland  20892

(301) 468-2162

FAX: (301) 770-5164

National Diabetes Information Clearinghouse (NDIC), established in 1978, collects and disseminates information about patient education materials. NDIC maintains a meeting registry that includes regional, national, and international meetings, congresses, and symposia of interest to the diabetes community. NDIC distributes its own publications, as well as other diabetes-related materials. A library collection of approximately 5,000 items is open to the public, although materials do not circulate.

NDIC maintains an automated database of patient and professional materials that is a component of the Combined Health Information Database (CHID). CHID is available to the public through BRS (Bibliographic Retrieval System). Indexing is based on a thesaurus developed by NDIC.

Topical annotated bibliographies that provide ordering information are produced on such subjects as diet and nutrition, sports and exercise, and pregnancy. Other consumer materials are available on diabetes management, foot care, nutrition, dental care, insulin, self blood glucose monitoring, diabetes in older Americans, diabetes in young people, and eye care. Professional materials are available about all aspects of diabetes and its management including pregnancy, exercise, nutrition, diabetic retinopathy, and resources for patient education materials. Serial publication: Diabetes Dateline (newsletter).


National Digestive Diseases Information Clearinghouse

P.O. Box NDDIC

9000 Rockville Pike

Bethesda, Maryland  20892

(301) 468-6344

FAX: (301) 770-5164

The National Digestive Diseases Information Clearinghouse (NDDIC) was established in 1980 to provide a central information resource on digestive health and the prevention and management of digestive diseases. It develops, identifies, and distributes educational materials; encourages production of needed materials; and responses to requests for information.

NDDIC patient education materials are part of the Combined Health Information Database (CHID), which is accessible through BRS (Bibliographic Retrieval System).

Consumer materials are available on topics such as cirrhosis, diarrhea, gallstone diseases, dyspepsia, heartburn, hiatial hernia, hepatitis B, ulcers, ulcerative colitis, irritable bowel syndrome, and Crohn's disease. Materials for professionals cover gallstones, endoscopy, neonatal hepatitis, liver transplantation, and digestive disease treatments. A directory of professional and lay digestive disease organizations and a glossary of digestive terms is also available.


National Eldercare Institute on Health Promotion

601 E Street, NW

Fifth Floor

Washington DC  20049

(202) 434-2200

FAX: (202) 434-6474

The National Eldercare Institute on Health Promotion is designed to support State Units on Aging and others in the fields of aging and health in developing and implementing health promotion for older adults. The center offers training and technical assistance to State Units on Aging, maintains a health promotion library for professionals that can be accessed by telephone or letter, provides information on health promotion for minority populations, assists with program development, and provides information on State level programs. The center also provides resource lists and referrals to organizations that may be helpful in planning a health promotion campaign and offers individual consultation. In addition, a wide range of materials are available on health promotion topics, including exercise, nutrition, injury prevention, and medication use.

Publications available include: Health Promotion for Older Adults, Nutrition and Older Adults, Mental Health and Wellness and Older Adults, Healthy Aging: Model Health Promotion Programs for Minority Elders (also in video), and The National Resource Center on Health Promotion and Aging. A publication list is available. Serial publication: Perspectives in Health Promotion and Aging (bimonthly).


National Eye Institute

9000 Rockville Pike

Building 31, Room 6A-32

Bethesda, Maryland  20892

(301) 496-5248

The National Eye Institute, established in 1968, has primary responsibility within the National Institutes of Health and the Federal Government for supporting and conducting research aimed at improving the prevention, diagnosis, and treatment of eye disorders. In addition, NEI encourages the application of research findings to clinical practice, heightens public awareness of eye and vision problems, and cooperates with voluntary organizations that engage in related activities.

Materials are available on glaucoma, cataracts, retinal detachment, macular degeneration, ocular histoplasmosis, retinitis pigmentosa, refractive errors, corneal diseases, and diabetic retinopathy. Information on NEI-supported research is also available.


National Heart, Lung, and Blood Institute Education Programs Information Center

P.O. Box 30105

Bethesda, Maryland  20824-0105

(301) 951-3260

FAX: (301) 951-3269

The National Heart, Lung, and Blood Institute Education Programs Information Center was established in 1986 as a source of information and materials on cholesterol and smoking, two major risk factors for cardiovascular health. In 1987, it merged with the National High Blood Pressure Education Program. Two new programs, the National Blood Resource Education Program and the National Asthma Education Program, have also been added. Services include dissemination of public education materials, programmatic and scientific information for health professionals, materials on worksite health, and response to information requests. The center is a service of the National Institutes of Health.

A cholesterol, high blood pressure, and smoking education database and a blood resource database are subfiles on the Combined Health Information Database (CHID), which is available on BRS (Bibliographic Retrieval System).

Consumer materials are available on cholesterol, high blood pressure, smoking, asthma, chronic cough, heart disease, exercise, stroke, and blood resources. Serial publications: Infomemo provides program updates about cholesterol, high blood pressure, asthma, and smoking, and Infoline describes the activities of the National Blood Resource Education Program.


National Information Center for Children and Youth with Disabilities

P.O. Box 1492

Washington DC  20013

1-800-999-5599 (24-hour taped message)

(703) 893-6061

(703) 893-8614 (TT)

FAX: (703) 893-1741

8:30am - 5:30pm, EST, Monday - Friday

The National Information Center for Children and Youth with Disabilities (NICHCY) is a national information clearinghouse authorized by Congress to assist parents, educators, caregivers, advocates, and others working to improve the lives of children and youth with disabilities. NICHCY has established a strong network with parent groups throughout the country. Services include personal responses to other organizations/sources of help, and technical assistance to parent and professional groups.

NICHCY develops and distributes fact sheets on specific disabilities, general information for parents, vocational/transitional issues, special education, and legal rights and advocacy, as well as information on parent support groups and public advocacy. Issue and briefing papers on current, relevant topics in the special education and disabilities field are also published. Serial publications: News Digest and Transition Summary.


National Information Center for Orphan Drugs and Rare Diseases

P.O. Box 1133

Washington DC  20013-1133

1-800-456-3505

(301) 565-4020

FAX: (301) 565-5112

Services: The National Information Center for Orphan Drugs and Rare Diseases (NICODARD), a component of the Office of Disease Prevention and Health Promotion (ODPHP) National Health Information Center (ONHIC), gathers and disseminates information and responds to inquiries from patients, health professionals, and the general public. Orphan drugs or products are those used to prevent or treat rare diseases. Rare diseases or conditions are defined as those with a prevalence in the United States of 200,000 cases or fewer. NICODARD information specialists respond to questions by using ONHIC's computer database, library, and referral system. ONHIC' s database contains descriptions of many health-related organizations, including rare disease voluntary organizations.


National Injury Information Clearinghouse

5401 Westbard Avenue, Room 625

Bethesda, Maryland  20207

(301) 504-0424

FAX: (301) 504-0124

The National Injury Information Clearinghouse, a division of the U.S. Consumer Product Safety Commission (CPSC) collects, investigates, analyzes, and disseminates injury and data and information relating to the causes and prevention of death, injury, and illness associated with consumer products. The clearinghouse compiles data obtained from accident investigation reports, consumer complaints reported incidents, death certificates, news clips, and the CPSC-operated National Electronic Injury Surveillance System (NEISS). NEISS gathers data from a sample of hospitals that are statistically representative of emergency departments in the United States. From these data, estimates can be made of product-related injuries associated with consumer products. There may be fees for services.

Publications include statistical analysis of data in the automated files and CPSC analysis of hazard and accident patterns. Serial publication: NEISS Data Highlights (annual newsletter).


National Institute of Allergy and Infectious Diseases

Office of Communications

Building 31, Room 7A32

9000 Rockville Pike

Bethesda, Maryland  20892

(301) 496-5717

FAX: (301) 402-0120

The National Institute of Allergy and Infectious Diseases (NIAID) conducts and supports research on the prevention, diagnosis, and treatment of infectious, immunologic, and allergic diseases. NIAID is pursuing investigations in bacteriology, virology, mycology, immunology, and parasitology. It has major responsibility for research on the immune system and on its disorders, including AIDS.

Free consumer materials are available on sinusitis, poison ivy allergy, mold allergy, pollen allergy, dust allergy, asthma, rabies, sexually transmitted diseases, influenza, toxoplasmosis, and the immune system. A publications list is also available.


National Institute of Child Health and Human Development

Office of Research Reporting

National Institutes of Health

Building 31, Room 2A-32

9000 Rockville Pike

Bethesda, Maryland  20892

(301) 496-5133

The National Institute of Child Health and Human Development (NICHD) conducts and supports basic and clinical research in maternal and child health and the population sciences. NICHD will respond to individual inquiries on related topics such as studies on reproductive biology and contraception; fertility and infertility; developmental biology and nutrition; mental retardation; pediatric, adolescent, and maternal AIDS; and developmental disabilities.

Consumer materials are available on anorexia nervosa, Cesarean childbirth, Down's syndrome, oral contraception, precocious puberty, premature birth, pregnancy, smoking and pregnancy, vasectomy, childhood hyperactivity, maternal health, and child health. Professional materials are available on sudden infant death syndrome, developmental disabilities, pregnancy, and genetics. A publications list is available. Publication distribution is limited to single copy requests.


National Institute of Dental Research

Information Officer

9000 Rockville Pike

Building 31, Room 2C35

Bethesda, Maryland  20892

(301) 496-4261

The National Institute of Dental Research (NIDR) was established in 1948 to improve the dental health of the people of the United States through research and education.

The Research Data and Management Information Section maintains access to two computer-based information systems. NIDR ONLINE is an electronic bulletin board that contains full texts of requests for applications, news for the dental research community, and news lists of NIDR publications. DENTALPROJ is a database containing abstracts of ongoing dental research supported by Government agencies and can be searched on the MEDLARS (Medical Literature and Analysis Retrieval System) using the same commands as Medline.

NIDR publishes a wide range of consumer-oriented pamphlets that are available free of charge upon request. Topics include dental health, fluoride treatment, canker sores, dry mouth, periodontal disease, dental sealants, and pain research. Posters and professional materials on school fluoride programs are also available. Serial publication: NIDR Research News (irregular newsletter).


National Institute of Environmental Health Sciences

Public Affairs Officer

P.O. Box 12233

Research Triangle Park, North Carolina  27709

(919) 541-3345

The National Institute of Environmental Health Sciences (NIEHS), established in 1966, supports and conducts basic research focusing on the interaction between humans and potentially toxic or harmful agents in their environment. The research concentrates on recognizing, identifying and investigating environmental factors that may be harmful and quantifying those factors. NIEHS research also focuses on developing an understanding of the mechanisms of action of toxic agents on biological systems. Information based on research is transmitted to regulatory agencies, other government agencies, Congress, the medical and research communities, industry and the general public. NIEHS research is the basis of preventive programs for environmental-related diseases and for action by regulatory agencies. Grants and awards are also made to research organizations.

Directories of NIESH's research programs, monographs on topics such as chemical pollutants in the environment, and bibliographies are available. Serial publication: Environmental Health Perspective (bimonthy journal).


National Institute of Mental Health

5600 Fishers Lane, Room 15C05

Rockville, Maryland  20857

(301) 443-4513

The Public Inquiries division of the National Institute of Mental Health (NIMH) collects scientific, technical, and other information on mental health and illness from the staff and operating components of NIMH and outside sources; classifies stores, and retrieves information; and answers general inquiries from the public within two weeks.

Public Inquiries distributes single copies of NIMH publications at no charge. There are several consumer publications in Spanish. A publications list is also available. Serial publications: Caring About Kids and Plain Talk - NIMH series of fliers and pamphlets.


National Institute of Neurological Disorders and Stroke

Head, Scientific Publications Section, Office of Scientific and Health Reports

Building 31, Room 8A06

9000 Rockville Pike

Bethesda, Maryland  20892

(301) 496-5924

The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research and research training on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke. NINDS awards grants for research projects, program projects, and center grants; provides training support to institutions and fellowships to individuals in the field of neurological disorders and stroke; conducts intramural and collaborative research; and collects and disseminates research information.

Consumer materials are available on amyotrophic lateral sclerosis, aphasia, autism, cerebral palsy, dementias, epilepsy, Friedreich's ataxia, Huntington's disease, multiple sclerosis, muscular dystrophy, myasthenia gravis, neurofibromatosis, Parkinson's disease, shingles, spina bifida, spinal cord injury, torsion dystonia, stroke, head injury, Gaucher's disease, Nieman-Pick disease, Fabry's disease, metachrometic leukodystrophy, and lipid storage diseases. Professional materials are available on neurological disorders, stroke, epilepsy, Alzheimer's disease, and spinal cord injuries. A publications list is available.


National Institute on Aging Information Center

P.O. Box 8057

Gaithersburg, Maryland  20898-8057

1-800-222-2225

(301) 587-2528

FAX: (301) 589-3014

The National Institute on Aging (NIA) was established in 1974 to conduct and support biomedical, social, and behavioral research and training related to the aging process and the diseases and other special problems and needs of the aged. NIA provides for the study of biomedical, psychological, social, educational, and economic aspects of aging through in-house research conducted at its Gerontology Research Center in Baltimore, MD, and through grant support of extramural and collaborative research programs at universities, hospitals, medical centers, and nonprofit institutions training scientists for research careers in aging.

Free consumer materials are available on menopause, nutrition, arthritis, cancer, aging, Alzheimer's disease, constipation, crime, diabetes, exercise, hearing, high blood pressure, osteoporosis, medicines, senility, flu, urinary incontinence, skin care, and dental care. Some are translated into Chinese and Spanish. Professional materials are available on Alzheimer's disease and self-help groups. A publications list is available.


National Institute on Deafness and Other Communication Disorders Information Clearinghouse

P.O. Box 37777

Washington DC  20013

1-800-241-1044 (voice)

1-800-241-1055 (TT)

(301) 565-4020

FAX: (301) 565-5112

The National Institute on Deafness and Other Communication Disorders (NIDCD) became the 13th institute mandated by Congress within the National Institutes of Health in October 1988. NIDCD conducts and supports research and training with respect to disorders of hearing and other communication processes, including diseases affecting hearing, balance, voice, speech, language, touch, taste, and smell through research performed in its own laboratories. NIDCD also conducts a program of research grants, individual and institutional research awards, career development awards, center grants, and contracts to public and private research institutions and organizations. Other activities include conducting and supporting research and training through cooperation with professional, commercial, and voluntary and philanthropic organizations concerned with deafness and other communication disorders; disease prevention and health promotion; and the special biomedical and behavioral problems associated with having communication impairments or disorders.

NIDCD offers an introductory brochure; pamphlets on hearing loss, stuttering, dizziness, speech and developmental language disorders, and aphasia; fact sheets, and NIDCD Funding Mechanisms.


National Kidney and Urologic Diseases Information Clearinghouse

P.O. Box NKUDIC

9000 Rockville Pike

Bethesda, Maryland  20892

(301) 468-6345

FAX: (301) 770-5164

The National Kidney and Urologic Disease Information Clearinghouse (NKUDIC), sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases, is an information resource and referral organization. NKUDIC provides education and information on kidney and urologic diseases to patients, professionals, and the public.

NKUDIC maintains the kidney and urologic diseases subfile of the Combined Health Information Database (CHID). Staff may also produce custom literature searches from CHID.

Available materials include brochures; bibliographies on diabetes, kidney disease, and audiovisual materials; and fact sheets entitled "Prevention and Treatment of Kidney Stones," Understanding Urinary Tract Infections," and "Benign Prostatic Hyperplasia." Serial publication: "KU Notes" (bulletin).


National Library of Medicine

Public Information Officer

Building 38, Room 2S-10

8600 Rockville Pike

Bethesda, Maryland  20894

1-800-272-4787 (general information)

(301) 496-6308 (library hours)

(301) 496-6095 (reference desk)

(800) 638-8480; (301) 496-6193 (MEDLARS management)

In support of its mission to collect, preserve, and disseminate biomedical information, the National Library of Medicine (NLM) has assembled the largest collection of biomedical literature in the world. Included are over 4 million books, journals, technical reports, and other print and audiovisual  materials in 40 biomedical fields, as well as the Nation's largest medical history collection. Services of NLM include computer-based literature retrieval services, interlibrary loan services, programs of grant support for medical libraries, communications research and training, toxicology information services, and publications. Medical reference questions should be directed to the NLM Reference Desk.

NLM has 30 specialized databases composing the Medical Literature Analysis and Retrieval System (MEDLARS) available through a nationwide network of 15,000 centers, Individuals with microcomputers and modems can have direct access through the software GRATEFULMED, available for both IBM-PC and Apple Macintoshes. Fact sheets and pocket guides describing the databases are available. A MEDLARS management service desk at NLM is staffed to answer questions about the online system.

Publications: Numerous catalogs, guides, and indexes to specific NLM materials are available. Serial publications: Index Medicus (monthly), NLM Current Catalog (quarterly), and Bibliography of the History of Medicine (annual) - for sale by the Government Printing Office.


National Maternal and Child Health Clearinghouse

8201 Greensboro Drive, Suite 600

McLean, Virginia  22102

(703) 821-8955, ext. 254 or 265

FAX: (703) 821-2098

The National Maternal and Child Health Clearinghouse continues and expands the activities of the National Clearinghouse for Human Genetic Diseases. The clearinghouse is the centralized source of materials and information in the areas of human genetics and maternal and child health. The clearinghouse staff also responds to inquiries, disseminates approximately 500 publications, and produces fact sheets, topical bibliographies, and referral lists in the field.

Clearinghouse publications cover such as breastfeeding, developmental disabilities, phenylketoneuria (PKU), metabolic disorders, nutrition, prenatal care, perinatal care, and genetic diseases. Directories of clinical genetic service centers and Federal programs and voluntary and professional organizations in maternal and child health are also available.


National Rehabilitation Information Clearinghouse

8455 Colesville Road, Suite 935

Silver Spring, Maryland  20910

(301) 588-9284

FAX: (301) 587-1967

The National Rehabilitation Information Center (NARIC), established in 1977, is a service of the National Institute of Disability and Rehabilitation, Department of Education. NARIC supplies publications on disability-related topics, prepares bibliographies tailored to specific requests, and assists in locating answers to questions. The NARIC collection includes materials relevant to the rehabilitation of all disability groups, as well as documents relevant to professional and administrative practices and concerns. The collection contains over 300 periodical titles and over 20,000 research reports, books, and audiovisual materials. The public can use the collection or order materials from NARIC.

REHABDATA contains bibliographic information and abstracts for the entire NARIC collection, including materials for the entire NARIC collection, including materials produced from 1950 to the present. Direct access to the database is available through BRS (Bibiographic Retrieval System). In addition, the REHABDATA thesaurus is a useful aid for database searching.

Materials include a periodical holdings list and subject catalog. NARIC also publishes a directory of rehabilitation librarians. Serial publication: NARIC Quarterly - free newsletter.


National Sudden Infant Death Syndrome Resource Center

8201 Greensboro Drive, Suite 600

McLean, Virginia  22102

(703) 821-8955

FAX: (703) 821-2098

The National Sudden Infant Death Syndrome Clearinghouse was established in 1980 to provide information and educational materials on sudden infant death syndrome (SIDS), apnea, and other relates issues. Clearinghouse staff responds to information requests from professionals, families with SIDS-related deaths, and the general public by sending written materials and making referrals. The clearinghouse maintains a library of standard reference materials covering etiology, epidemiology, research, counseling, effects on families, training of emergency personnel, legal aspects, treatment, and prevention of SIDS. The clearinghouse staff also compiles annotated bibliographies on a variety of topics and maintains and updates mailing lists of State programs, groups, and individuals concerned with SIDS. In addition, the clearinghouse has fact sheets, catalogs, and bibliographies on areas of special interest to the community. The clearinghouse distributes publications on SIDS to professionals, parents, and the public. Serial publication: Information Exchange (quarterly newsletter) - promotes the exchange of information among SIDS groups nationwide.


National Worksite Health Promotion Resource Center

777 North Capital Street, NE, Suite 800

Washington DC  20002

(202) 408-9320

The National Worksite Health Promotion Resource Center provides information about currently operating worksite health promotion programs in American corporations. The center also provides bibliographies of low-cost and free worksite health promotion materials available to businesses and develop lists of vendors offering health promotion services. Publications: Wellness Programs for Older Workers and Retirees, and Worksite Wellness Media Reports are available.


Occupational Safety and Health Administration

U.S. Department of Labor

200 Constitution Avenue NW, Room N-3647

Washington DC  20210

(202) 523-8148

The Occupational Safety and Health Administration (OSHA) was created under the Occupational Safety and Health Act of 1970 to encourage employers and employees to reduce workplace hazards and implement new or improved safety and health programs; establish separate but dependent responsibilities and rights for employers and employees to achieve better safety and health conditions; maintain a reporting and record-keeping system to monitor job-related injuries and illnesses; develop mandatory job safety and health standards and enforce them; and provide for the development, analysis, evaluation, and approval of State occupational safety and health programs. The Act also provides six distinct provisions for protecting the safety and Health of Federal workers on the job. OSHA also encourages a broad range of voluntary workplace improvement efforts, including consultation programs, training and education efforts, grants to increase safety and health compliance, and a variety of other similar programs.

Materials are available on occupational health, occupational safety, asbestos, back injuries, emergency response, hazard communication, Federal regulations, hearing, accidents. statistical data, and carcinogens. A publications list is available upon request with a self-addressed mailing label.


Office for Substance Abuse Prevention's National Clearinghouse for Alcohol and Drug Information

P.O. Box 2345

Rockville, Maryland  20847-2345

1-800-729-6686

(301) 468-2600

1-800-487-4889 (TT)

FAX: (301) 468-6433

The National Clearinghouse for Alcohol and Drug Information (NCADI) was established in 1987. NCADI gathers and disseminates current knowledge on alcohol and drug-related subjects. Services include subject searches on an in-house automated database and response to inquiries for statistics and other information. NCADI also develops resource materials and operates the Regional Alcohol and Drug Awareness Resource (RADAR), a nationwide linkage of drug information centers.

NCADI's online database, IDA (Information on Drugs and Alcohol), has two major components, a prevention materials resource and a traditional bibliographic resource. The bibliographic component is made up of journal articles, books, reports, proceedings, and conference papers and other primary source materials. The prevention materials component describes a variety of materials including, but not limited to, pamphlets, posters, videos, curricula, booklets, etc. Acquisitions are prevention and education oriented, and tend more to the psycho-social aspects of alcohol and other drug abuse rather than scientific and technical research. The database grows by 4,000 to 6,000 entries annually. All materials in IDA are housed in the NCADI library. IDA is accessed through the team of NCADI information specialists. The primary audiences requiring literature searches are educators, community and prevention planners, and policymakers.

A library is available and open to the public. The collection contains information on all aspects of alcohol and other drug abuse including over 80 journals, newsletters, and major U.S. newspapers.

Publications include The Drug-Free Communities Series; Be Smart! Stay Smart! Don't Start!, a prevention program for parents, teachers, and students aged 8-12 as well as posters, pamphlets, resource lists, fact sheets, and directories. A free publications catalog is available. Serial publication: Prevention Pipeline (bimonthly).


Office of Disease Prevention and Health Promotion National Health Information Center

P.O. Box 1133

Washington DC  20013-1133

1-800-336-4797

(301) 565-4020

FAX: (301) 565-5112

9:00am - 5:00pm, EST, Monday - Friday

The Office of Disease Prevention and Health Promotion (ODPHP)  National Health Information Center (ONHIC) was established in 1979 to help the public and health professionals locate health information through identification of health information resources, an information and referral system, and publications. Utilizing a database that contains descriptions of health-related organizations, ONHIC staff refer inquiries to the most appropriate resources. Where appropriate, a direct answer is provided, primarily to requests for the names and addresses of organizations, publication ordering information, inquiries regarding ONHIC, or inquiries for which the staff has no database resource. A core collection of health reference materials, journals, newsletters, and educational materials is available for use by the public; advance arrangements are recommended.

ONHIC's database of referral organizations is publicly accessible through DIRLINE, a database on the National Library of Medicine's MEDLARS (Medical Literature Analysis and Retrieval System). The ONHIC component of DIRLINE contains descriptions of about 1,100 diverse health-related organizations. ONHIC's DIRLINE records are labeled "HR" in the Secondary Source ID (SI) field. ONHIC staff do not diagnose, make direct referrals to health care professionals, answer questions about pharmaceutical side effects, or recommend treatment for medical conditions.

ONHIC offers a directory of selected health information resources in the Federal Government and provides resource guides on topics such as selected Federal information clearinghouses and information centers, national health observances, toll-free telephone numbers for health information, minority health, Spanish language health resources, and long-term care. ONHIC also distributes many of ODPHP's publications. A publications list is available.


Office of Minority Health Resource Center

P.O. Box 37337

Washington DC  20013-7337

1-800-444-6472

FAX: (301) 565-5112

9:00am - 5:00pm, EST, Monday - Friday

The Office of Minority Health Resource Center (OMH-RC) responds to information requests on minority health, locates sources of technical assistance through the Resource Persons Network, and provides referrals to relevant organizations. Activities concentrate on the minority health priority areas. Bilingual staff members are available to serve Spanish-speaking requesters.

Publications include the Closing the Gap series and the Report of the Secretary's Task Force on Black and Minority Health.


Office on Smoking and Health

MS K-50

1600 Clifton Road, NE

Atlanta, Georgia  30333

(404) 488-5701

FAX: (404) 488-5767

The Office on Smoking and Health (OSH) offers bibliographic and reference services through its Technical Information Center (TIC). TIC publishes and distributes a number of titles and comprehensive bibliographies in the field of smoking and health. The Epidemiology Branch collects and analyzes data sets on tobacco use. This section also designs and conducts national surveys on smoking behavior, attitudes, knowledge, and beliefs among adult and teenagers on a periodic basis, and works with other individuals and organizations that are interested in incorporating smoking behavior as part of their survey research activities.

The Smoking and Health Database contains almost 50,000 citations and abstracts. Sources indexed include journal articles, conference reports, and newsletters. Reference services are also provided by telephone. Copies of reference items are provided only in single copies, and only in cases where material cannot be obtained from other sources.

OSH offers consumer publications on smoking and teenagers, smoking and pregnancy, and smoking cessation. Materials for professionals cover cancer, heart disease, and lung disease associated with smoking. Serial publications: Smoking and Health Bulletin (quarterly) - abstracts of current literature, Bibliography of Smoking and Health (annual), and Health Consequences of Smoking (the annual report of the Surgeon General).


President's Council on Physical Fitness and Sports

701 Pennsylvania Avenue, NW, Suite 250

Washington DC  20004

(202) 272-3430

FAX: (202) 504-2064

The President's Council on Physical Fitness and Sports (PCPFS) is an outgrowth of the President's Council on Youth Fitness, established in 1956. PCPFS conducts a public service advertising program, prepares educational materials, and cooperates with government and private groups to promote the development of physical fitness leadership, facilities, and programs. PCPFS also works with schools, clubs, recreation agencies, and major employers on program design and implementation; advises Federal agencies on the conduct of fitness-related programs; and offers a variety of testing, recognition, and incentive programs for individuals, institutions, and organizations.

Materials are available on exercise, school physical education programs, corporate fitness, and physical fitness for youth, adults and senior citizens. Citations, including abstracts, come from 2,000 journals. A publications list is available. Serial publications: President's Council on Physical Fitness and Sports Newsletter (bimonthly) - articles on conferences, exemplary physical fitness programs, information about free materials, sports competitions, and news from other organizations; and Physical Fitness/Sports Medicine (quarterly bibliography) - extracted from the MEDLARS (Medical Literature Analysis and Retreival System) database encompassing exercise physiology, sports injuries, physical conditioning, and medical aspects of exercise.


Rural Information Center

Room 304

10301 Baltimore Boulevard

Beltsville, Maryland  20705

1-800-633-7701

(301) 504-5547

FAX: (301) 504-5181

8:00am - 4:30pm, EST, Monday - Friday

The Rural Information Center is part of the National Agriculture Library and provides information and referrals to the public and to professionals.  The Center focuses on the delivery of health services in rural areas.


Toxic Substances Control Act Assistance Information Service

401 M Street, SW

Washington DC  20024

(202) 554-0515

FAX: 554-5603

The Toxic Substances Control Act Assistance Information Service provides information and referrals about toxic substances to government officials, the public, and the press.