$Unique_ID{BRK01114} $Pretitle{} $Title{Down Syndrome} $Subject{retarded retardation mongoloid idiocy mongoloidism trisomy G 21 syndromes National Down Syndrome Congress resource resources booklet} $Volume{Z-0} $Log{} Copyright (c) 1991-92,1993 Tribune Media Services, Inc. A Resource About Down Syndrome ------------------------------------------------------------------------------ In a recent column I discussed the life expectancy of Down Syndrome patients and used statistics taken from a recently published item in one of the many medical journals I review each month. In my mailbag today, I received a long letter from Kathleen Marafino, President of the Nation Down Syndrome Congress, directing my attention to scientific study conducted by Patricia A. Baird, M.D. and Adele D. Sadovnick, Ph. D. in the Province of British Columbia, Canada which found that "life expectancy in Down Syndrome is much better in recent years than in the early decades of this century". According to the findings published in the Journal of Pediatrics, overall survival in individuals with Down Syndrome was found to be 70.98% at age 30. Although the statistics do not provide percentages past age 30, they certainly are more encouraging than those I cited. And that is all to the good, for my personal preference is always for "good news" statistics. Since many of my readers may have a real need for more information about Down Syndrome, I recommend that they contact the National Down Syndrome Congress, 1605 Chantilly Drive, Suite 250, Atlanta, GA 30324 (toll free telephone number 1-800-232 NDSC) and request their materials. Of particular note is their informative patient education booklet "Down Syndrome" which discusses many aspects of this condition and provides explanations about chromosome abnormality and the causes of Down Syndrome. The annual membership fee of the Congress is but $ 15.00 and provides many benefits including free access to their national clearinghouse. ---------------- The material contained here is "FOR INFORMATION ONLY" and should not replace the counsel and advice of your personal physician. Promptly consulting your doctor is the best path to a quick and successful resolution of any medical problem.