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$Title{Rett Syndrome Foundation}
$Subject{International Rett Syndrome Foundation IRSA neurological mental
retardation young females resource resources}
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Copyright (c) 1991-92,1993   Tribune Media Services, Inc.


A Resource About Rett Syndrome Foundation


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     Several times each year I find a letter from a reader with a child
suffering from Rett Syndrome and plea to write about the International Rett
Syndrome Foundation (IRSA).  Rett Syndrome is a very rare neurological
condition that only strikes young girls, first described in 1965, severely
affecting their development.  Since, I could find little to write about, I
usually passed over the question.  However according to Ms. Kathy Hunter,
President of IRSA "based upon population estimates performed in other
countries there may be 10,000 undiagnosed cases in the U.S." and that perhaps
it is the cause of "1/4 of all profound mental retardation in young females".
That requires some attention.  You may obtain more information from IRSA, 8511
Rose Marie Drive, Fort Washington Drive, Fort Washington MD 20744 for a
stamped self addressed envelope.

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The material contained here is "FOR INFORMATION ONLY" and should not replace
the counsel and advice of your personal physician.  Promptly consulting your
doctor is the best path to a quick and successful resolution of any medical
problem.