Welcome !

This is the list of useful links related to
muscular dystrophy

edited by Giovanni Naso

PERSONAL WEB PAGES OF PEOPLE HAVING MUSCULAR DYSTROPHY : 

- Paolo and Remigio Cordioli founders of Parent Project site in Villafranca
- Jeff Eidsness
- Christopher and Patrick Furlong
- Debra Louise Glann
- Rod Grizbear
- Matt Haynes
- Richard Henderson
- James Lambert and his family
- Martin and his page about Benign Congenital Myopathy
- Cody Namesnik
- Petri Niemela
- Melissa Richardson
- Kevin M. Rudolph
- Thomas Saccomanno
- Ryan Santolo
- Mark Shager
- Zack Stark
- Ryan Struck
JOURNALS : 
- Basic and Applied Myology
- Biophysical Journal 
     (Muscle and contractility, Proteins in the topics covered)
- Cell 
     (dystrophy in the search area; order FAX available)
- DM
     (Distrofia Muscolare: the official magazine of UILDM - in Italian)
- Journal of Biological Chemistry
     (muscular dystrophy in the search field: Words anywhere in Article)
     (Free abstract - Full texts for members only)
- Journal of Muscle Research and Cell Motility
- M.D.A.'s Muscular Dystrophy Association - Messenger
- Nature
- Neuromuscular Disorders
- Nature genetics
RESEARCH CENTERS AND UNIVERSITIES: 
- Children's Hospital - Boston
- Boston University Neuromuscular Research Center
     (Surface EMG)
- Leiden University Medical Center - Holland
- Medical Genetics - Duke University Medical Center
     (Bethlem Myopathy director Dr. Marcy Speer)
- Manchester University - North West Regional Neuromuscular Unit
- Melbourne Neuromuscular Research Center
     (Research publications)
- Muscle physiology lab - University of California
     (The introduction to muscle physiology)
- Pittsburg Gene Theraphy Center
- TIGEM - Telethon Institute of Genetics and Medicine
- TIGET - Telethon Institute for Genetic Theraphy
ASSOCIATIONS : 
- ENMC - European Neuromuscular Centre
     (Diagnostic Criteria for Neuromuscular disorders)
- MDA - Finland
- MD - England 
     (- Fact sheets
      - Research
      - Care
      - Muscular biopsy)
- MDA - USA
- MDA - Australia
     (- Parent's guide 
      - Discussing MD with children
      - Discussing MD with children, Italian version
      - FAQ)
- MDAC - Canada
- MuscleNet - University of Padova
- Muscle Power - England
- Parent Project : USA, Italy
- Polish Neuromuscular Association
- Telethon - Italy
     (Achievements)
- UILDM - Unione Italiana Lotta alla Distrofia Muscolare
     (It is in Italian but an English version is also available)
- VSN - Holland
- WMS - World Muscle Society
MAILING LISTS : 
- MD-List@Basix.COM 
- strength-l@dnaco.net

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* Last update: 7 MARCH 1998 *